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Study on ethical issues in collection and utilization of health data

Research Project

Project/Area Number 07307030
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Public health/Health science
Research InstitutionShowa University

Principal Investigator

NAKAMURA Ken-ichi  Showa University School of Medicine Professor, 医学部, 教授 (90050400)

Co-Investigator(Kenkyū-buntansha) NIINO Naoakira  Showa University School of Medicine lecturer, 医学部, 講師 (40201686)
NAKAMURA Yoshikazu  Jichi Medical School School of Medicine Assistant Professor, 医学部, 助教授 (50217915)
KIKUCHI Shogo  Juntendo University School of Medicine lecturer, 医学部, 講師 (40224901)
INABA Yutaka  Juntendo University School of Medicine Profesor, 医学部, 教授 (30010094)
Project Period (FY) 1995 – 1997
Project Status Completed (Fiscal Year 1997)
Budget Amount *help
¥1,600,000 (Direct Cost: ¥1,600,000)
Fiscal Year 1997: ¥700,000 (Direct Cost: ¥700,000)
Fiscal Year 1996: ¥900,000 (Direct Cost: ¥900,000)
Keywordshealth data collection / health data utilization / ethical issues / privacy protection / examinees'attitudes / health professionals'attitudes / bibliographical study / 倫理
Research Abstract

This study was carried out to consider ethical issues on collection and utilization of personal health data in relation to the privacy protection.
In the first year, the examinees' attitudes to the health surveys were studied using a common form on the inhabitants in rural and metropolitan areas, workers in an enterprise and students. No psychological resistances were found except for the questions on family's health history and menstrual or reproductive histories of females. Seventy or eighty percent of examinees agreed with the use of blood samples for the purposes other than health check-up. But those who agreed with the use without the examinees' consent were approximately 20%. In general, females were more sensitive than males and youngsters were more sensitive than the elders to the use without the examinees' consent.
In the second year, the attitudes of health professionals were surveyed on the epidemiologists, public health nurses and occupational health professionals. In general, their attitudes on the protection of personal data were in accord with the current international codes on ethics. However, it is supposed that some problems on personal data protection may occur in small enterprises, because personal health data are mainly handled by non-medical staffs. The obligatory health check-up based on the Industrial Safety and Health Law was critisized by some occupational health professionals in younger generation.
In the third year, we collected domestic and foreign literatures on ethical. problems in epidemiologic studies. In the Western countries where rigid protection system on personal data was provided by law, there were found much comments which stressed the benefit of utilization of the research results, to get understanding and cooperation of public to epidemiologic studies.

Report

(4 results)
  • 1997 Annual Research Report   Final Research Report Summary
  • 1996 Annual Research Report
  • 1995 Annual Research Report
  • Research Products

    (27 results)

All Other

All Publications (27 results)

  • [Publications] 中村 健一, 稲葉 裕, 他: "健康調査における倫理問題-被調査者の意識を中心に-" 日本衛生学雑誌. 51・1. 246- (1996)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 菊地 正悟: "血液検査の癌検診への導入-導入の是非決定のための手順-" 医学のあゆみ. 176・7. 448-449 (1997)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 黒沢 美智子, 他: "健康情報収集・利用に際しての倫理問題に関する日本疫学会会員の意識調査" Journal of Epidemiology (Supplement). 7・1. 137- (1997)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 中村 健一, 新野 直明: "健康情報の収集・利用についての産業保健専門職の意識" 産業衛生学雑誌. 39・臨時増刊. S454- (1997)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 中村 好一, 他: "地域保健活動における情報収集・利用の倫理問題" 日本公衆衛生雑誌. 45・3. 251-261 (1998)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 中村 健一, 他: "疫学・予防医学の倫理に関する文献学的考察" 日本衛生学雑誌. 53・1. 71- (1998)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Nakamura, K et al.: "Ethical issues in health survey, especially on attitudes of examinees" Jpn.J.Hyg.51(1). 246 (1996)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Kikuchi S.: "Introduction of blood examination to cancer screening" J.Clin.& Experiment.Med.176(7). 448-449 (1996)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Kurosawa M et al: "Attitudes of JEA members for ethical issues of epidemiological study" J.Epidemiol.(suppl.). 137 (1997)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Nakamura K et al.: "Attitudes of occupational health professionals on collection and utilization of health data" San Ei Shi. 39(suppl.). S454 (1997)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Nakamura Y et al.: "Ethical issues in collection and utilization of health data for community health programs" J.J.P.H.45(3). 251-261 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] Nakamura K et al.: "Bibliographical study on ethical issues of epidemiological research" Jpn.J.Hyg.53(1). 71 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1997 Final Research Report Summary
  • [Publications] 黒沢美智子,他: "健康情報収集・利用に際しての倫理問題に関する日本疫学会会員の意識調査" Journal of Epidemiology. 7・1 (Supplement). 137 (1997)

    • Related Report
      1997 Annual Research Report
  • [Publications] 中村好一: "疫学研究におけるインフォームド・コンセント(私見)" Journal of Epidemiology. 7・1 (Supplement). 169 (1997)

    • Related Report
      1997 Annual Research Report
  • [Publications] 中村健一, 新野直明: "健康情報の収集・利用についての産業保健専門職の意識" 産業衛生学雑誌. 39 臨時増刊. S454 (1997)

    • Related Report
      1997 Annual Research Report
  • [Publications] 中村好一,他: "地域保健活動における情報収集・利用の倫理的問題" 日本公衆衛生雑誌. 45・3 (予定). (1998)

    • Related Report
      1997 Annual Research Report
  • [Publications] 中村健一,他: "疫学・予防医学の倫理に関する文献学的考察" 日本衛生学雑誌. 53・1 (予定). (1998)

    • Related Report
      1997 Annual Research Report
  • [Publications] 中村健一,稲葉裕他: "健康調査における倫理問題-被調査者の意識を中心に-" 日本衛生学雑誌. 51(1). 246 (1996)

    • Related Report
      1996 Annual Research Report
  • [Publications] 中村好一: "医療情報の活用と患者のプライバシー保護の観点からみた大学病院の医療情報管理規定" 医療情報学. (発表予定).

    • Related Report
      1995 Annual Research Report
  • [Publications] 石川 澄: "保健医療福祉へのPHDの活用とプライバシー保護の整合" 第15回医療情報学連合大会論文集. 65-66 (1995)

    • Related Report
      1995 Annual Research Report
  • [Publications] 中村 好一: "医療情報システムのセキュリティとプライバシー保護" 新医療. 22. 74-77 (1995)

    • Related Report
      1995 Annual Research Report
  • [Publications] 中村健一: "海外勤務者の健康管理の現状と問題点" 日本産業衛生学会産業医部会報. 4号. 1-3 (1995)

    • Related Report
      1995 Annual Research Report
  • [Publications] 菊地 正悟: "血清検査の癌検診への導入-導入の是非決定のための手順" 医学のあゆみ. 176(7). 448-449 (1996)

    • Related Report
      1995 Annual Research Report
  • [Publications] 中村 健一(分担): "医療科学" 医学書院, 289 (1995)

    • Related Report
      1995 Annual Research Report
  • [Publications] 稲葉 裕(分担): "第2版公衆衛生看護学大系(10)健康管理論" 日本看護協会出版会, 238 (1995)

    • Related Report
      1995 Annual Research Report
  • [Publications] 稲葉 裕(分担): "第2版新簡明衛生公衆衛生" 南山堂(印刷中), 340 (1996)

    • Related Report
      1995 Annual Research Report
  • [Publications] 稲葉 裕(分担): "TEXT公衆衛生・予防医学" 南山堂(印刷中), 678 (1996)

    • Related Report
      1995 Annual Research Report

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Published: 1996-04-01   Modified: 2016-04-21  

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