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Development of an Effective Support System for the Families with Children with Severe Disabilities that Need Lone- Term Hospitalization

Research Project

Project/Area Number 08672695
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Nursing
Research InstitutionKitasato University

Principal Investigator

MORI Hideko  Kitasato University, School of Nursing, Professor, 看護学部, 教授 (30276167)

Co-Investigator(Kenkyū-buntansha) TAKAHASHI Izumi  Kitasato Univ., School of Nursing, Lecturer, 看護学部(当時), 講師(当時) (10206790)
HONMA Teruko  Kitasato Univ., School of Nursing, Lecturer, 看護学部(当時), 講師(当時) (80209337)
TORII Hiroko  Kitasato University, School of Nursing, Professor, 看護学部, 教授 (10227671)
HIRAI Ruri  Kitasato Univ., School of Nursing, Instructor, 看護学部(当時), 助手(当時) (70265726)
YAMAZAKI Michiko  Kitasato Univ., School of Nursing, Instructor, 看護学部(当時), 助手(当時) (80276170)
Project Period (FY) 1996 – 1998
Project Status Completed (Fiscal Year 1998)
Budget Amount *help
¥2,200,000 (Direct Cost: ¥2,200,000)
Fiscal Year 1998: ¥800,000 (Direct Cost: ¥800,000)
Fiscal Year 1997: ¥800,000 (Direct Cost: ¥800,000)
Fiscal Year 1996: ¥600,000 (Direct Cost: ¥600,000)
KeywordsChildren with severe disabilities / Long-term-hospitalization / Family system nursing / Home care / Development of family support system / 看護継続教育 / 家族の看護 / システム化 / 障害
Research Abstract

There are many children with severe disabilities who require long-term hospitalization in spite of their families' desire to take them back home. The goal of this research was to find factors that enabled earlier discharge of these children, and a system model was organized that supported both the families as well as the health professionals. The research proceeded in two ways. First, interviews were held with families that had long-term hospitalized children with severe disabilities, primary nurses, and physicians in charge following the interview guidelines. The second way entailed meetings for research and practices in family nursing. The results were as follows : (1) The crucial factor was the severity of the children's conditions or symptoms that needed high technology medicine, however, these children were already out of the acute phase of their illness and new therapy was not necessary. It was only necessary to wait for their condition to improve. Therefore, a support system was concidered for the families and the health professionals to have mutual confirmation in their decision-making to discharge and arrange home care. (2) From a systemic point of view, there were several systems (or subsystems) that were functioning separately in the family, in the hospital, and in the community. In order to arrange home care for those children, each system should combine to utilize manpower to support these families.

Report

(4 results)
  • 1998 Annual Research Report   Final Research Report Summary
  • 1997 Annual Research Report
  • 1996 Annual Research Report

URL: 

Published: 1996-04-01   Modified: 2016-04-21  

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