| Project/Area Number |
09672300
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
Medical sociology
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| Research Institution | KYOTO UNIVERSITY |
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Principal Investigator |
TATSUMI Junko Graduate School of Medicine, Kyoto University, Instructo, 医学研究科, 助手 (80128222)
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| Co-Investigator(Kenkyū-buntansha) |
NISHIGORI Chikako Graduate School of Medicine, Kyoto University, Instructor, 医学研究科, 助手 (50198454)
TAKEBE Hiraku Graduate School of Medicine, Kyoto University, Professor, 医学研究科, 教授 (10028318)
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| Project Period (FY) |
1997 – 1998
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| Project Status |
Completed (Fiscal Year 1998)
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| Budget Amount *help |
¥3,100,000 (Direct Cost: ¥3,100,000)
Fiscal Year 1998: ¥900,000 (Direct Cost: ¥900,000)
Fiscal Year 1997: ¥2,200,000 (Direct Cost: ¥2,200,000)
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| Keywords | Dowm Syndrome / Internet / Database / Medicine / Walfare / Education / Counseling / Announcement |
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| Research Abstract |
In 1996, we carried out a questionnaire investigation about the explanation contents when the parents were told that their children had Down syndrome (DS) from the pediatricians or the obstetricians. Also we asked the current status of public supports for the people with DS.As the results of the survey, it found that the knowledge and the information about DS were lacking in the professionals of medical, welfare and education. Medical, ethical and social environment surrounding people with DS and the other handicaps are still far from ideal in Japan. In order to solve these problems we established the database for DS by using an Internet system. The information service system by Internet can easily get the information which needs anyone in the medical organization, the health center, the administrative system, the university, the school and each home. For the necessary item to be able to be early referred to, it adopted the content method and added simple explanation to each information. Also, the data can be referred to by the key word. It exhibited the database to in general on November 20th, 1997. We got 2786 accesses totally when analyzing the 185-day use situation from February 23rd, 1 998 to September 8th per the same year. It indicates that an average number of the accesses of one day are 44. It is possible to say a considerable utilization rate for single when thinking of being a database for the single disorder. Forty percents of the users of the database were the parents or siblings of the persons with DS.The use of the medical staffs and the educator was 1 5% respectively. The use of the professionals of welfare was about 7%. It is necessary to enrich the data of welfare in our database in the future. The URL of the database on Internet is as follows ; http : //jdsn.ces.kyutech.ac.jp/jdsn-bin/jdsn-lib.
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