| Project/Area Number |
10672130
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
Medical sociology
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| Research Institution | KAGOSHIMA UNIVERSITY |
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Principal Investigator |
HOKONOHARA Masashi Faculty of Medicine, KAGOSHIMA UNIVERSITY, Professor, 医学部, 教授 (40041412)
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| Co-Investigator(Kenkyū-buntansha) |
FUKANO Yosikazu Faculty of Medicine, KAGOSHIMA UNIVERSITY, Professor, 医学部, 教授 (40189915)
IMANAKA Hiroyuki Faculty of Medicine, KAGOSHIMA UNIVERSITY, Assistant Professor, 医学部, 講師 (80223329)
TAKEI Shuji Faculty of Medicine, KAGOSHIMA UNIVERSITY, Assistant Professor, 医学部, 講師 (60175437)
OWATASHI Akihiko Faculty of Medicine, KAGOSHIMA UNIVERSITY, Research Associate, 医学部, 助手 (30295282)
SHIOKAWA Mutsuko Faculty of Medicine, KAGOSHIMA UNIVERSITY, Professor, 医学部, 教授 (00206046)
丹羽 さよ子 鹿児島大学, 医学部, 講師 (00197550)
田畑 裕子 鹿児島大学, 医学部, 助手 (30274864)
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| Project Period (FY) |
1998 – 2000
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| Project Status |
Completed (Fiscal Year 2000)
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| Budget Amount *help |
¥2,000,000 (Direct Cost: ¥2,000,000)
Fiscal Year 2000: ¥300,000 (Direct Cost: ¥300,000)
Fiscal Year 1999: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 1998: ¥1,200,000 (Direct Cost: ¥1,200,000)
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| Keywords | infant rheumatic diseases / QOL / juvenile rheumatiod arthritis (JRA) / systemic lupus erythematodes (SLE) / daily life / carry-over / social life / growth retardation / SLE / 日常生活動作 / 成長障害 / 骨塩量 / リハビリテーション / 小児リウマチ性疾患 / QOL / 日常生活実態調査 |
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| Research Abstract |
Head investigator, Dr.Hokonohara is responsible for the care of more than 200 infant patients suffering from rheumatic diseases at the Pediatric Clinic in Kagoshima University Hospital.
Together with Dr.Takei and a team of other doctors, children are diagnosed and following the results of consultation with patients, a variety of examinations are performed. Previously diagnosed patients are also consulted through a questionnaire. Team investigators examine the daily-life capabilities of the patients, QOL, psychology, and rehabilitation methods. Comparative studies are also made of the level of clinical disabilities and muscle power, biological examinations and bone density.
Following research into growth retardation and bone metabolism in patients suffering from juvenile rheumatoid arthiritis, results, already presented, have so far shown that these have been affected by disease activity, steroid administration and growth factor. (Congress of Japan Rheumatism Association, Kyushu Rheumatis
… More
m Association)
Research into the number of 'carry-over' patients (over 15 years old) with rheumatic diseases, has revealed that 43.2% of patients were 16 years old or more. In the questionnaires about daily school and social life, these patients stated that they encountered a variety of hardships. The need for daily care became quite apparent.(Congress of Japan Pediatric Society)
Furthermore, in the research into the QOL of patients with rheumatic diseases, the SDI, SLEDAI and CHO questionnaires were used and the following conclusions were drawn. It is thought that as patients grow more and more conscious of their organ disability and the duration of the disease, this begins to affect their physical mobility and their studies.(Cogress of Japanese Society of Child Health, Congress of Japan Rheumatism Association)
From the above data, it can be seen that the longer the duration of infant rheumatic diseases, the greater the effect on the QOL, and hence it is clear that both mental and physical care is needed. Less
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