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Studies on the Illness Experience of Hansen's disease Sufferers

Research Project

Project/Area Number 12610227
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field 社会学(含社会福祉関係)
Research InstitutionKenmei Women's Junior College

Principal Investigator

ARARAGI Yukiko  Kenmei Women's Junior College, Department of Home Economics, Associate professor, 生活学科, 助教授 (50268827)

Project Period (FY) 2000 – 2002
Project Status Completed (Fiscal Year 2002)
Budget Amount *help
¥2,200,000 (Direct Cost: ¥2,200,000)
Fiscal Year 2002: ¥800,000 (Direct Cost: ¥800,000)
Fiscal Year 2001: ¥600,000 (Direct Cost: ¥600,000)
Fiscal Year 2000: ¥800,000 (Direct Cost: ¥800,000)
KeywordsHansen's disease sufferers / illness experience / leprosarium / subjective meaning / life history / active interview / positionality / field research / ハンセン病 / 療養所 / 社会復帰者 / ハンセン病社会復帰者 / フェルト・スティグマ / ハンセン病国賠訴訟 / パッシング / 在宅患者 / スティグマ / 隠蔽
Research Abstract

In this study, I examined the life-world of two kinds of sufferers of Hansen's disease hy life-history interviewing, one is the inmate of leprosaria and the other is the ex-patients living outside leprosaria in spite of prohibition by the Leprosy Prevention Law (1907-96).
I described the sufferers' horizons of subjective meaning based on the active interviews. The lives of sufferers have been painful because of the stigma put on due to the disease. They have to keep their medical records secret even to their partners and the neighbors. Some of them, therefore, had an alias ( in this paper you will find a woman with six aliases. ) even in leprosaria and they disconnected from their families. The experience of living itself was just a trauma for them. And also the conflict for redressing was tough between plaintiffs and non-plaintiffs in the suit. All the sufferers got the good result and were saved legally. However, I was confronted by the difficulty to position myself during the interviews in the situation like this: Is this the proper way the story goes?
I laid special emphasis on the meaning of the narration leading to the positive life for the sufferers. This point of view proves to be powerful in accounting for the significance of the space of discourse to integrate the sufferer into 'the illness experience' featuring the researcher itself.
Also I examined the relationship between illness experience of individuals and the history of policy in chap. 5 and the illness experience of sufferers from the viewpoint of the information-in-act in chap.6.

Report

(4 results)
  • 2002 Annual Research Report   Final Research Report Summary
  • 2001 Annual Research Report
  • 2000 Annual Research Report
  • Research Products

    (9 results)

All Other

All Publications (9 results)

  • [Publications] 蘭 由岐子: "6つの名前を生きるということ-あるハンセン病者の「病いの経験」"賢明女子学院短期大学研究紀要. 36. 67-75 (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 蘭 由岐子: "ハンセン病社会復帰者の「病いの経験」-ライフヒストリー・インタビューから"賢明女子学院短期大学研究紀要. 37. 33-60 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 蘭 由岐子: "ハンセン病者にとっての結婚と家族-ある病者の語りから"賢明女子学院短期大学研究紀要. 38. 23-32 (2003)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] ARARAGI, Yukiko,: "The Illness Narratives of an Aged Woman living in a Leprosarium,"BEACON,. Vol.36. 67-77 (2001)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] ARARAGI, Yukiko,: "The Illness Experience of Hansen's disease Recoverers living outside a Leprosarium,"BEACON,. Vol.37. 33-60 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] ARARAGI, Yukiko,: "The Illness Narratives of a Hansen's disease Sufferer on Marriage and Family,"BEACON,. Vol.38. 23-32 (2003)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 蘭 由岐子: "ハンセン病者にとっての結婚と家族-ある病者の語りから"賢明女子学院短期大学研究紀要. 38. 23-32 (2003)

    • Related Report
      2002 Annual Research Report
  • [Publications] 蘭由岐子: "ハンセン病社会復帰者の病いの経験-ライフヒストリー・インタビューから-"賢明女子学院短期大学 研究紀要. 第37号. 33-60 (2002)

    • Related Report
      2001 Annual Research Report
  • [Publications] 蘭由岐子: "6つの名前を生きるということ-ハンセン病者の「病いの経験」-"賢明女子学院短期大学研究紀要. 第36号. 67-76 (2001)

    • Related Report
      2000 Annual Research Report

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Published: 2000-04-01   Modified: 2016-04-21  

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