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Frameworks for Information Disclosure to the Terminally Ill -In an Ethics of Relationship in Japan-

Research Project

Project/Area Number 12672287
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field 基礎・地域看護学
Research InstitutionNagano College of Nursing

Principal Investigator

KONISHI Emiko  Nagano College of Nursing, School of Nursing, Professor, 看護学部, 教授 (70011054)

Co-Investigator(Kenkyū-buntansha) OKUBO Ikuko  Nagano College of Nursing, School of Nursing, Assistant, 看護学部, 助手 (20301418)
OTA Katsumasa  Nagano College of Nursing, School of Nursing, Professor, 看護学部, 教授 (60194156)
MITOH Takako  Nagano College of Nursing, School of Nursing, President, 看護学部, 学長 (00086266)
MAYUMI Naoya  Nagano College of Nursing, School of Nursing, Assistant, 看護学部, 助手 (10315848)
YAHIRO Michiko  Nagano College of Nursing, School of Nursing, Assistant, 看護学部, 助手 (10326100)
デーヴィス アン  長野県看護大学, 看護学部, 教授 (70291573)
Project Period (FY) 2000 – 2001
Project Status Completed (Fiscal Year 2001)
Budget Amount *help
¥2,000,000 (Direct Cost: ¥2,000,000)
Fiscal Year 2001: ¥900,000 (Direct Cost: ¥900,000)
Fiscal Year 2000: ¥1,100,000 (Direct Cost: ¥1,100,000)
KeywordsInformation disclosure / Truth telling / Terminally ill patients / ethics in terminal care / Ethics of relationships / ターミナル患者 / 家族 / 関係性の倫理
Research Abstract

This study, using data of our earlier studies regarding ethical issues in terminal care, took the next logical step and developed four possible frameworks for information disclosure to families and patients within an ethics of relationships. Framework A relies heavily on notions of doing no harm by withholdmg information from patients and having the family make decisions. The circumstances that this model is ethically used is only when the patient indicates that he/she does not want to know or when the family already knows the patient's intentions and has a good relationship with the patient. In framework B, the family receives the information first and the patient is told later. The delayed telling depends on the perceived readiness of the patient to hear this news. For the patient to know is not the same as the patient being told. Framework C requires the doctor to inform both the family and the patient about the patient's terminal illness. In this way, the family can help and support the patient when the patient receives this news. Framework D, informs only the patient about the diagnosis and prognosis and what these mean for the future. This would be most unusual except in those cases of patients who have no family.
These four frameworks were tested by l )family interviews, 2) physicians interviews, and 3) literature review. The results showed the following :
1) Framework D is seldom used. This family involvement in information disclosure is the norm in Japan.
2) Framework C fits most ethically with the Japanese ethics of relationship.

Report

(3 results)
  • 2001 Annual Research Report   Final Research Report Summary
  • 2000 Annual Research Report
  • Research Products

    (15 results)

All Other

All Publications (15 results)

  • [Publications] デービス アン, 小西恵美子, 見藤隆子: "ターミナル患者への情報開示への枠組み"生命倫理. 10(1). 154-160 (2000)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] E Konishi, AJ Davis: "Right to Die and the Duty to Die : Perceptions of Nurses in the West and Japan"International Nursing Review. 48(1). 17-28 (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] Konishi E, Davis AJ, Aiba T: "The ethics of withdrawing artificial food and fluid from terminally ill patients : an end of life dilemma for Japanese nurses and families"Nursing Ethics. 9(1). 7-19 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] 小西恵美子, デービス アン: "死ぬ権利と死ぬ義務:日本、欧米の看護婦の意識"インターナショナルナーシングレビュー. 20(5). 11-20 (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] デービス アン, 小西恵美子, 江藤裕之: "論文査読の倫理:査読者、著者、編集者の権利と義務"クオリティーナーシング. 8(1). 49-56 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] 小西恵美子: "高齢者のターミナルケアに対する子世代の意識:長野県農村部での調査から"ターミナルケア. 10(4). 314-318 (2000)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] Konishi, Emiko, AJ Davis: "Right to Die and the Duty to Die : Perceptions of Nurses in the West land Japan"International Nursing Review. 48(1). 17-28 (2001)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] Konishi, E, AJ Davis, Aiba T: "The ethics of withdrawing artificial food and fluid from terminally ill patients : an end of life dilemma for Japanese nurses and families"Nursing Ethics. 9(1). 7-19 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2001 Final Research Report Summary
  • [Publications] デービス アン, 小西恵美子, 見藤隆子: "ターミナル患者への情報開示への枠組み"生命倫理. 10(1). 154-160 (2000)

    • Related Report
      2001 Annual Research Report
  • [Publications] E Konishi, AJ Davis: "Right to Die and the Duty to Die : Perceptions of Nurses in the West and Japan"International Nursing Review. 48(1). 17-28 (2001)

    • Related Report
      2001 Annual Research Report
  • [Publications] Konishi E, Davis AJ, Aiba T: "The ethics of withdrawing artificial food and fluid from terminally ill patients : an end of life dilemma for Japanese nurses and families"Nursing Ethics.

    • Related Report
      2001 Annual Research Report
  • [Publications] 小西恵美子, デービス アン: "死ぬ権利と死ぬ義務:日本、欧米の看護婦の意識"インターナショナルナーシングレビュー. 20(5). 11-20 (2001)

    • Related Report
      2001 Annual Research Report
  • [Publications] デービス アン, 小西恵美子, 江藤裕之: "論文査読の倫理:査読者、著者、編集者の権利と義務"クオリティーナーシング. 8(1). 49-56 (2002)

    • Related Report
      2001 Annual Research Report
  • [Publications] 小西恵美子: "高齢者のターミナルケアに対する子世代の意識:長野県農村部での調査から"ターミナルケア. 10(4). 314-318 (2000)

    • Related Report
      2001 Annual Research Report
  • [Publications] デービスアンJ(翻訳者:小西恵美子,見藤隆子): "ターミナル患者への情報開示の枠組み-社会,家族,患者に関る意志決定-"生命倫理. 10(1). 154-160 (2000)

    • Related Report
      2000 Annual Research Report

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Published: 2000-04-01   Modified: 2016-04-21  

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