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Development of a nursing system to relieve the degree of stress in families of children with disabilities

Research Project

Project/Area Number 12672321
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionHamamatsu University, School of Medicine

Principal Investigator

NARAMA Miho  School of Medicine Professor, 医学部, 教授 (40207923)

Co-Investigator(Kenkyū-buntansha) SEKI Kyoko  School of Medicine Assistant, 医学部, 助手 (60345832)
HORI Taeko  School of Medicine Lecturer, 医学部, 講師 (40303557)
Project Period (FY) 2000 – 2002
Project Status Completed (Fiscal Year 2002)
Budget Amount *help
¥3,000,000 (Direct Cost: ¥3,000,000)
Fiscal Year 2002: ¥600,000 (Direct Cost: ¥600,000)
Fiscal Year 2001: ¥800,000 (Direct Cost: ¥800,000)
Fiscal Year 2000: ¥1,600,000 (Direct Cost: ¥1,600,000)
Keywordshome care / children with disabilities / total care / families / spina bifida / nursing at outpatient clinic / coordinator / 小児 / 障害 / 包括的養育支援 / 看護相談 / 健康管理
Research Abstract

The purposes of this research were to identify the state of nursing for children with disabilities and their families at outpatient clinics, and to develop a nursing to relieve the degree of stress experienced by the family.
Results were as follows :
1. We investigated the state of nursing care for children who require home care and their families by means of a questionnaire conducted at outpatient clinics. Subjects were 512 head nurses of outpatient clinics in Japan. The rates of practice of nursing care related to home care were higher than those of care related to families' health and finance. A relationship was identified between the existence of a pediatric nurse specialist at the outpatient clinic and the quality of nursing.
2. We visited two spina bifida clinics in the U.S.A. in order to collect data regarding medical team systems. The spina bifida clinic was identified as very effective system for providing comprehensive care for patients and their families. A specific nurse had a special role as coordinator of the medical team.
3. We developed nursing guidelines focused on total care for children with spina bifida and their families. We also examined the effect of nursing practice on attainment of self-care by children and on the degree of stress experienced by mothers. In several cases, the degree of stress felt by mothers decreased when children improved, independently of illness management practice.
4. We held a nursing forum in order to distribute the results of this research to a wide audience of nurses, and to build a nursing network.

Report

(4 results)
  • 2002 Annual Research Report   Final Research Report Summary
  • 2001 Annual Research Report
  • 2000 Annual Research Report
  • Research Products

    (9 results)

All Other

All Publications (9 results)

  • [Publications] 堀 妙子: "医療的処置を行っている小児が通院している外来看護の実態と看護師の意識に関する調査"日本小児看護学会誌. 11. 28-33 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 奈良間美保: "二分脊椎症児と家族のトータルケア-米国の2施設における専門外来の現状と今後の課題-"小児看護. 25. 1009-1014 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 奈良間美保: "二分脊椎症児の母親のストレスに対する精神的援助"小児看護. 25. 1000-1004 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] Hori T.: "A study of nursing cares and nurse's perception of pediatric outpatient clinic"Journal of Japanese society of child health nursing. 11-2. 28-33 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] Narama M.: "Total care for children with spina bifida and their families : The state of two spina bifida clinics in the U.S.A. and a view of effective system"The Japanese Journal of Child Nursing. 25-8. 1009-1014 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] Narama M.: "Nursing care focused on the stress experienced by mothers of children with spina bifida"The Japanese Journal of Child Nursing. 25-8. 1000-1004 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2002 Final Research Report Summary
  • [Publications] 堀妙子: "医療処置を行っている小児が通院している外来看護の実態と看護師の意識に関する調査"日本小児看護学会誌. 11・2. 28-33 (2002)

    • Related Report
      2002 Annual Research Report
  • [Publications] 奈良間美保: "二分脊椎症児と家族のトータルケア-米国の2施設における専門外来の現状と今後の課題-"小児看護. 25・8. 1009-1014 (2002)

    • Related Report
      2002 Annual Research Report
  • [Publications] 奈良間美保: "二分脊椎症児の母親のストレスに対する精神的援助"小児看護. 25・8. 1000-1004 (2002)

    • Related Report
      2002 Annual Research Report

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Published: 2000-04-01   Modified: 2016-04-21  

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