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The Attempt to develop a community-based, continuing--nursing-care system model for children with disability or chronic illness in the community and their families.

Research Project

Project/Area Number 13470533
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionMie Prefectural College of Nursing (2003)
The University of Tokyo (2001-2002)

Principal Investigator

SUGISHITA Chieko  Mie Prefectural College of Nursing, Professor, 看護学部, 教授 (60010063)

Co-Investigator(Kenkyū-buntansha) MURATA Keiko  Kobe University, School of Medicine, Professor, 医学部, 教授 (90105172)
HOHASHI Naohiro  Kobe University, School of Medicine, Associate professor, 医学部, 助教授 (60251229)
TORII Hiroko  Kitasato University, School of Nursing, Professor, 看護学部, 教授 (10227671)
OHWAKI Makiko  The University of Shiga Prefecture, College of Nursing, Associate professor, 看護短期大学部, 助教授 (00280008)
HAYASHI Kunihiko  Gunma University, School of Medicine, Professor, 医学部, 教授 (80282408)
上別府 圭子  東京大学, 大学院・医学系研究科, 助教授 (70337856)
Project Period (FY) 2001 – 2003
Project Status Completed (Fiscal Year 2003)
Budget Amount *help
¥12,100,000 (Direct Cost: ¥12,100,000)
Fiscal Year 2003: ¥2,000,000 (Direct Cost: ¥2,000,000)
Fiscal Year 2002: ¥7,700,000 (Direct Cost: ¥7,700,000)
Fiscal Year 2001: ¥2,400,000 (Direct Cost: ¥2,400,000)
Keywordschildren with disability or chronic illness in the community / community care / family nursing / continuing-nursing-care system in the community / support program / nationwide survey / 家族 / 看護 / 継続看護 / 地域
Research Abstract

A community-based, continuing-care system model for children with disability orchronic illness and their families was developed by the universities in collaboration with their local communities. From the model, possible nursing care activities were identified as follows :
<Kobe University> A five-day support program was carried out for care-giving mothers of asthmatic children, where they were provided with useful information and resources. Analysis of the 12 validly completed forms from the program's questionnaire survey indicated the effectiveness of the program in that it (1)improved the self-care ability of mothers and their children, (2)tended to decrease family stress from maintaining the health of the affected child, and (3)promoted peer-support among the participating individuals.
<Shiga Prefectural College> Analyses of the records of the past practices and information from interview surveys indicated several factors as requisites for community-based continuing care. The findings … More also showed that subjects chanced their images and expectations of nursing staff. A homepage was built based on this study to publicize the research aims and to improve understanding of the contents, which opened a window for individuals seeking care assistance and became itself part of the system.
<Kitasato University> A survey was conducted among nursing colleges and. universities and major medical institutions nationwide on the activities of nurses in support of children with disabilities or chronic illnesses and their families.
Theme activities were categorized into those which were part of on-going medical treatment, and systematic activities :
(1)care counseling, (2)on-going nursing care, (3)supportive actions to strengthen family ties, and (4)support for improved liaison within the existing system. The counseling activities offered for pediatric outpatients and their families suggested the need for providing more support facilities and staff for the benefit of such children.
<Gunma University> A homepage was built by the research group in an effort to provide unified publicity for the study findings. Less

Report

(4 results)
  • 2003 Annual Research Report   Final Research Report Summary
  • 2002 Annual Research Report
  • 2001 Annual Research Report
  • Research Products

    (11 results)

All 2004 2003 Other

All Journal Article (6 results) Publications (5 results)

  • [Journal Article] 障害を持って生まれた子どもと家族への看護介入2004

    • Author(s)
      大脇万起子
    • Journal Title

      家族看護 3

      Pages: 118-121

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Journal Article] The Nursing intervention for Children with Disorders and their Families.2004

    • Author(s)
      Ohwaki, M.
    • Journal Title

      Family Nursing 3

      Pages: 118-121

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Journal Article] 知的障害児と母親への家族支援プログラムにおける看護学生の参加意義-看護学生への聞き取り調査の結果から-2003

    • Author(s)
      池田亜希子
    • Journal Title

      家族看護学研究 9・2

      Pages: 82-82

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Journal Article] 在宅障害児の家族支援プログラムにおける同胞支援の検討2003

    • Author(s)
      大脇万起子
    • Journal Title

      家族看護学研究 9・2

      Pages: 105-105

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Journal Article] The Significance of the Participation of Nursing Student in the Family Support Program to children with Mental Retardation and their Mothers.2003

    • Author(s)
      Ikeda, A.
    • Journal Title

      Japanese Journal of Research in Family Nursing 9(2)

      Pages: 82-82

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Journal Article] The Investigation of the Support to Siblings in the Support Program to Children with Disability in the Community.2003

    • Author(s)
      Owaki, M.
    • Journal Title

      Japanese Journal of Research in Family Nursing 9(2)

      Pages: 105-105

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 大脇万起子: "障害を持って生まれた子どもと家族への看護介入"家族看護. 3. 118-121 (2004)

    • Related Report
      2003 Annual Research Report
  • [Publications] 大脇万起子: "在宅障害児の家族支援プログラムにおける同胞支援の検討"家族看護学研究. 9・2. 105 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 池田亜希子: "知的障害児と母親への家族支援プログラムにおける看護学生の参加意義-看護学生への聞き取り調査の結果から-"家族看護学研究. 9・2. 82 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 大脇万起子: "地域連携型継続看護システムの実践と評価-在宅障害児をもつ家族の認識・評価を通して"第23回日本看護科学学会学術集会講演集. 236 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 法橋尚宏: "喘息児を養育する母親への地域連携型支援プログラムの実践と効果"日本小児科看護学会第14回学術集会講演集. (2004)

    • Related Report
      2003 Annual Research Report

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Published: 2001-04-01   Modified: 2016-04-21  

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