Development of regional care for patients with incurable neurological disease, using a market research method

Research Project

Project/Area Number	13672457
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Single-year Grants
Section	一般
Research Field	基礎・地域看護学
Research Institution	Tottori University
Principal Investigator	TANIGAKI Shizuko Tottori University, School of Health Science, Associate Professor, 医学部, 助教授 (80263143)
Co-Investigator(Kenkyū-buntansha)	HITOMI Hiroe Tottori University, School of Health Science, Associate Professor, 医学部, 助教授 (30259593) MIYABAYASHI Ikuko Tottori University, School of Health Science, Assistant Professor, 医学部, 講師 (40294334) YAKURA Noriko Tottori University, School of Health Science, Professor, 医学部, 教授 (40116380) MATSUURA Haruyo Tottori University, School of Health Science, Assistant Professor, 医学部, 講師 (70243409)
Project Period (FY)	2001 – 2002
Project Status	Completed (Fiscal Year 2002)
Budget Amount *help	¥600,000 (Direct Cost: ¥600,000) Fiscal Year 2002: ¥600,000 (Direct Cost: ¥600,000)
Keywords	incurable neurological diseases / market research method / regional care / マーケティング・リサーチ手法 / ネットワーク / 神経難病患者 / ケアニーズ / マーケティング
Research Abstract	In this research, purposes were to investigate needs in care of patients with incurable neurological diseases using a marketing research method and develop an effective protocol in regional care of the patients. The needs of the patients were analyzed qualitatively and quantitatively. During two years of the investigation, the followings were revealed needs for: 1) developing a swift referral system to a specialist, 2) psychological support after definitive diagnosis, 3) Providing an place to hold a patient meeting with peer counseling and letting the patient self-develop an effective role in this activity. 4) activities that will educate family members and public on incurable diseases. In 2003, we plan to develop a system based in the Tottori University Teaching Hospital in association with supporting regional hospitals. The preparation has begun with a budget funding development of infrastructure, including an appointment of a consultant on incurable diseases in each supporting hospital, hosting of continuing education, and having committee meetings.