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Study on assessing of subjective QOL of children and adults with severe motor and intellectual disabilities

Research Project

Project/Area Number 14380105
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field 教科教育
Research InstitutionNara University of Education

Principal Investigator

GOMA Hideyo  Nara university of Education, Education for children with disabilities, Professor, 教育学部教育実践開発講座, 教授 (40234968)

Co-Investigator(Kenkyū-buntansha) USHIO Reiko  Kibi International University, Professor, 保健科学部, 教授 (80281525)
KOTANI Hiromo  Kyoto University of Education, Associate Professor, 教育学部, 助教授 (10294266)
MURATA Miyuki  Hyogo University of Teacher Education, Assistant Professor, 学校教育学部, 講師 (70295666)
Project Period (FY) 2002 – 2004
Project Status Completed (Fiscal Year 2004)
Budget Amount *help
¥3,100,000 (Direct Cost: ¥3,100,000)
Fiscal Year 2004: ¥900,000 (Direct Cost: ¥900,000)
Fiscal Year 2003: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 2002: ¥1,700,000 (Direct Cost: ¥1,700,000)
KeywordsQOL (quality of life) / children with severe motor and intellectual disabilities / 主観的満足度 / 質問紙 / 微笑行動 / 主体的表現 / Quality of Life / 評価表
Research Abstract

To assess subjective QOL(quality of life) of children with both motor and intellectual disabilities. Participants (aged 6-18 years) were 90 subjects and were interviewed personally. The questionnaire is consists of 36 questions covering the 8 domains, which were based on the QOL-26 WHO. The subjects were divided into four groups (A : children with mild motor and mild intellectual disabilities, B : children with severe motor and mild intellectual disabilities, C : children with mild motor and severe intellectual disabilities, D : children with severe motor and severe intellectual disabilities). Result : They answered by way of the Language, eyes, expression such as smile, motion or tense of extremities and so on. Most of children answered that they are happy in general, their needs are satisfied, and they are content with supports given by the people around them. Total scores of group C (83.5±12.1:mean±SD) and group D (82.7±9.0) were significantly lower than group A (92.0±9.0) and group B (90.5±9.0). As for details of each domain, in "Self-impression", "Self-determination and Choices" and "Chances to do", score of group D was lower than score of group A. Conclusion : These results indicate that the lack of understanding and insufficiency in preparing choices affect children's QOL, and better supporting system of needed.

Report

(4 results)
  • 2004 Annual Research Report   Final Research Report Summary
  • 2003 Annual Research Report
  • 2002 Annual Research Report
  • Research Products

    (11 results)

All 2005 2004 2003 2002 Other

All Journal Article (9 results) Book (1 results) Publications (1 results)

  • [Journal Article] 微笑行動を手がかりとした重症心身障害児のQOL評価に関する検討2005

    • Author(s)
      郷間英世, 伊丹直美
    • Journal Title

      奈良教育大学教育実践総合センター研究紀要 14

      Pages: 29-35

    • NAID

      120001075826

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] Smiling Response and Subjective QOL of Children with severe motor and intellectual disabilities2005

    • Author(s)
      Hideyo Goma, Naomi Itami
    • Journal Title

      Bulletin of Center for Educational Research and Development (Nara University of Education) Vol.14

      Pages: 29-35

    • NAID

      120001075826

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] 微笑行動を手がかりとした重症心身障害児のQOL評価に関する検討2005

    • Author(s)
      郷間英世, 伊丹直美
    • Journal Title

      奈良教育大学教育実践総合センター研究紀要 第14号(印刷中)

    • NAID

      120001075826

    • Related Report
      2004 Annual Research Report
  • [Journal Article] 重症心身障害者の母親の持つ養育態度の検討2003

    • Author(s)
      牛尾禮子, 郷間英世, 佐藤典子
    • Journal Title

      日本重症心身障害学会誌 28

      Pages: 187-190

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] 特別支援教育の展望「医療の立場から」2003

    • Author(s)
      郷間英世
    • Journal Title

      肢体不自由児教育 161

      Pages: 42-45

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] A study on Attitude of mothers of children with severe motor and Intellectual disabilities2003

    • Author(s)
      Reiko Ushio, Hideyo Gome, Noriko Sato
    • Journal Title

      Journal of Severe Motor and Intellectual Disabilities Vol.28

      Pages: 187-190

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] Subjective QOL of Children with Severe Motor and Intellectual Disabilities2002

    • Author(s)
      H Goma, N Itami, H Kotani, R Ushio, N Sato
    • Journal Title

      Proceedings of the 4^<th> International Conference of Health Behavioral Science 2001

      Pages: 194-197

    • NAID

      10013378949

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] Subjective QOL of Children with Severe motor and intellectual Disabilities2002

    • Author(s)
      Hideyo Goma, Naomi Itami, Hiromi Kotani, Reiko Ushio, Noriko Sato
    • Journal Title

      Proceedings of the 4^<th> International Conference of Health Behavioral Science 2001

      Pages: 194-197

    • NAID

      10013378949

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Journal Article] 重症心身障害児・者の母親仲間がもつ機能の検討

    • Author(s)
      牛尾禮子, 村井弘育, 澤田和子, 郷間英世, 小埜野直樹
    • Journal Title

      日本重症心身症学会誌 (投稿中)

    • NAID

      10025699442

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Book] 重症児教育(思春期以降の医療課題)2004

    • Author(s)
      小谷裕実
    • Publisher
      クリエツかもがわ
    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2004 Final Research Report Summary
  • [Publications] 牛尾禮子, 郷間英世, 佐藤典子: "重症心身障害者の母親の持つ養育態度の検討"日本重症心身障害学会誌. 第28巻3号. 187-190 (2003)

    • Related Report
      2003 Annual Research Report

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Published: 2002-04-01   Modified: 2016-04-21  

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