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A study of the domiciliary treatment, social care and quality of life of patients suffering from neuromuscular disorders.

Research Project

Project/Area Number 14570335
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Public health/Health science
Research InstitutionEhime University

Principal Investigator

KATO Tadahiro  Ehime University, Faculty of Education, associate professor, 教育学部, 助教授 (60325363)

Co-Investigator(Kenkyū-buntansha) OKADA Katutoshi  Ehime University, Department of Medicine, Assistant, 医学部, 助手 (10314949)
FUJIMOTO Kouichiro  Ehime University, Department of Medicine, Assistant, 医学部, 助手 (30243778)
KONISHI Masamistu  Ehime University, Department of Medicine, Professor, 医学部, 教授 (40274328)
Project Period (FY) 2002 – 2003
Project Status Completed (Fiscal Year 2003)
Budget Amount *help
¥3,500,000 (Direct Cost: ¥3,500,000)
Fiscal Year 2003: ¥1,600,000 (Direct Cost: ¥1,600,000)
Fiscal Year 2002: ¥1,900,000 (Direct Cost: ¥1,900,000)
Keywordsneurological intractable disorder / social care / quality of life / experience of disorder / talking / quantitative study / qualitative study / doctrine of social constitutions / 介護保険 / 患者のQOL / ライフヒストリー / 介護ストレス / 介護・福祉サービスの満足度
Research Abstract

The objective of the present study was to develop an effective medical method for providing a high quality of life style for residential patients with neurological intractable disorders. There are considerable social and welfare problems associated with the support of disorder, as described below. One hundred patients and their caregivers in Y residential area were enrolled in this study based on informed consent, irrespective of whether they had lost the ability of daily living or not. A questionnaire about the caregivers' concerns about their patients, their preparations and methods of crisis managements in home, and concrete behavior and family concepts just in this case were studied. The following results were obtained :
1.Increasing the intensity of annual drills to deal with a questionnaire in the caregiver curriculum suggests an improvement in the protection of patient's lives, since this helped to make caregivers more aware of their patient's safety. Incidentally, some caregivers were found to not always be keeping an eye on their patients ;
2.The caregivers had difficulty in taking preventive measures against patients' death ;
3.The severe lessons learned through the crisis intervention unfortunately have not translated into practical effects ;
4.The patients and caregivers viewed our ongoing survey in a favorable light. A lot of life-threatening crises which recently occurred throughout the home care are forcing a number of caregivers to re。evaluate their perceptions of safety in the house and to re-examine the roles they play in the encounter in day to day living of their patients. Therefore, we conclude that our annual questionnaire to patients and caregivers may be effective in reminding them of the tragedy of the nursing care in home, and consequently to help prepare them for future crisis. Further studies are in progress to improve cost-effectiveness and patient's comprehension and involvement in their own safety.

Report

(3 results)
  • 2003 Annual Research Report   Final Research Report Summary
  • 2002 Annual Research Report
  • Research Products

    (19 results)

All Other

All Publications (19 results)

  • [Publications] 加藤匡宏, 紅谷博美, 信原孝司: "障害者支援のネットワークと職域保健"愛媛大学教育実践総合センター紀要. 20. 187-191 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 加藤匡宏, 紅谷博美, 信原孝司: "神経難病を抱えながら就労を続けるクラアントへの心理臨床"愛媛大学教育実践総合センター紀要. 20. 193-198 (2002)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 加藤匡宏, 向井陽子, 相模健人, 秋山智: "神経難病患者の在宅医療・福祉サービスと患者の生活の質に関する研究 第1報 神経難病患者の生活実態調査"愛媛大学教育実践総合センター紀要. 21. 151-163 (2003)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 加藤匡宏, 向井陽子, 相模健人, 秋山智: "神経難病患者の在宅医療・福祉サービスと患者の生活の質に関する研究 第2報 神経難病患者の生活介護と臨床心理士の役割"愛媛大学教育実践総合センター紀要. 21. 165-173 (2003)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 秋山智, 加藤匡宏: "生涯教育の視点からの「デス・エデュケーション」の実践的研究 愛媛大学共通教育の授業展開より"愛媛大学教育実践総合センター紀要. 21. 175-189 (2003)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 秋山智, 加藤匡宏: "神経難病患者のインターネット・コミュニティ 神経筋難病情報サービス「読者の交流室」の分析を通して"日本難病看護学会誌. 7(2). 129-136 (2003)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Tadahiro Kato, Hiromi Beniya, Takashi Nobuhara: "The role of the clinical psychologist in occupational health, First report Employee assistance programs and industrial health."Bulletin of The Center for Education and Educational Research The Faculty of Education Ehime University. 21. 187-191 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Tadahiro Kato, Hiromi Beniya, Takashi Nobuhara: "The role of the clinical psychologist in occupational health, Second report A study of a client with multiple sclerosis employed in an office environement."Bulletin of The Center for Education and Educational Research The Faculty of Education Ehime University. 21. 193-198 (2002)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Tadahiro Kato, Youko Mukai, Takehito Sagami, Satoru Akiyama: "A study of the domiciliary treatment, social care and quality of life of patients suffering from neuromuscular disorders. First report An investigation into the problems patients with neuromuscular disorders encounter in day to day living."Bulletin of The Center for Education and Educational Research The Faculty of Education Ehime University. 21. 151-163 (2003)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Tadahiro Kato, Youko Mukai, Takehito Sagami, Satoru Akiyama: "A study of the domiciliary treatment, social care and quality of life of patients suffering from neuromuscular disorders. Second report The role of clinical psychologists in the support and care of patients with neuromuscular disorders encounter in day to day living."Bulletin of The Center for Education and Educational Research The Faculty of Education Ehime University. 21. 165-173 (2003)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Satoru Akiyama, Tadahiro Kato: "A practical study of death education from the view point of a lifelong education. -the application of Common lecture in Ehime University."Bulletin of The Center for Education and Educational Research The Faculty of Education Ehime University. 21. 175-189 (2003)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] Satoru Akiyama, Tadahiro Kato: "The study of Internet-community of patients with intractable diseases."Japanese of Japan Intractable Illness Nursing Society.. 7(2). 129-136 (2003)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2003 Final Research Report Summary
  • [Publications] 加藤匡宏, 向井陽子, 相模健人, 秋山智: "神経難病患者の在宅医療・福祉サービスと患者の生活の質に関する研究 第1報 神経難病患者の生活実態調査"愛媛大学教育実践総合センター紀要. 21. 151-163 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 加藤匡宏, 向井陽子, 相模健人, 秋山智: "神経難病患者の在宅医療・福祉サービスと患者の生活の質に関する研究 第2報 神経難病患者の生活介護と臨床心理士の役割"愛媛大学教育実践総合センター紀要. 21. 165-173 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 秋山智, 加藤匡宏: "生涯教育の視点からの「デス・エデュケーション」の実践的研究 愛媛大学共通教育の授業展開より"愛媛大学教育実践総合センター紀要. 21. 175-189 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 秋山智, 加藤匡宏: "神経難病患者のインターネット・コミュニティ 神経筋難病情報サービス「読者の交流室」の分析を通して"日本難病看護学会誌. 7(2). 129-136 (2003)

    • Related Report
      2003 Annual Research Report
  • [Publications] 中村美佐, 岡部美香, 加藤匡宏: "多発性硬化症に罹患したA氏の病い体験のかたりの光と影"臨床教育人間学研究I. 1(印刷中). (2004)

    • Related Report
      2003 Annual Research Report
  • [Publications] 加藤匡宏, 紅谷博美, 信原孝司: "障害者支援のネットワークと職域保健"愛媛大学教育実践総合センター紀要. 20. 187-191 (2002)

    • Related Report
      2002 Annual Research Report
  • [Publications] 加藤匡宏, 紅谷博美, 信原孝司: "神経難病を抱えながら就労を続けるクラアントヘの心理臨床"愛媛大学教育実践総合センター紀要. 20. 193-198 (2002)

    • Related Report
      2002 Annual Research Report

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Published: 2002-04-01   Modified: 2016-04-21  

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