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A study on the construction of the support system for siblings of children with special needs.

Research Project

Project/Area Number 15330131
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Social welfare and social work studies
Research InstitutionNational rehabilitation Center for Persons with Disabilities (Research Institute)

Principal Investigator

KITAMURA Yayoi  National rehabilitation Center for Persons with Disabilities, Research Institute, Researcher, 障害福祉研究部, 研究員 (80360684)

Co-Investigator(Kenkyū-buntansha) UEDA Reiko  Okinawa Prefectural College of Nursing, President, Professor, 学長 (80010015)
Project Period (FY) 2003 – 2006
Project Status Completed (Fiscal Year 2006)
Budget Amount *help
¥14,400,000 (Direct Cost: ¥14,400,000)
Fiscal Year 2006: ¥3,400,000 (Direct Cost: ¥3,400,000)
Fiscal Year 2005: ¥3,400,000 (Direct Cost: ¥3,400,000)
Fiscal Year 2004: ¥3,300,000 (Direct Cost: ¥3,300,000)
Fiscal Year 2003: ¥4,300,000 (Direct Cost: ¥4,300,000)
Keywordsdisability / chronic illness / autism / mental retardation / workshop / discussion / self perception / 同胞 / 家族 / 親
Research Abstract

Purpose: The purpose of this study is 1) to modify the American model of sibling support workshop for Japanese, and 2) to construct a system to carry sibling support projects in Japan.
Methods: 1) A community survey was carried to know the concerns of Japanese siblings and the need of sibling support projects, 2) run workshops for siblings and evaluated the effects for participants without discussions by adult sibling facilitators and workshops with discussion by professional facilitators, 3) developed two other types of sibling support projects with two parents' groups on developmental disabilities and evaluated the effects for participants.
Results: 1) Concerns by Japanese siblings are same as concerns by American and European siblings, and most mothers answered that they would like to send their children to sibling support projects, 2) Workshops without discussions increased the degree of communication between siblings and mothers on disabilities and siblings released from stressed experiences, workshops with discussions run smoothly with some modification, such as, doubled time, writing time before presentation, and small group discussions before an open discussion, 3) Summer camp of siblings with autistic children covered loneliness of siblings and provided some opportunities for participants to share faced experiences and feelings on sibling concerns.
Discussion: These results suggest that 1) at least one sibling support workshop is required by Japanese parents and siblings for every city, 2) workshops for siblings are effective to decrease loneliness of siblings and increase communication opportunities between siblings and their mothers, even without discussion activities, 3 other types of sibling support projects, except workshops are expected to work effective, such as summer camps and out-going activities.

Report

(5 results)
  • 2006 Annual Research Report   Final Research Report Summary
  • 2005 Annual Research Report
  • 2004 Annual Research Report
  • 2003 Annual Research Report
  • Research Products

    (19 results)

All 2007 2005 2004 2003

All Journal Article (19 results)

  • [Journal Article] 特殊なニーズのある子どものきょうだいを対象としたワークショップの日本における実践方法~討論をしない場合を中心として~2007

    • Author(s)
      北村弥生
    • Journal Title

      言語発達遅滞研究 第13号

      Pages: 1-20

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] The impact of a workshop with a puppet show for young siblings of children with special needs.2007

    • Author(s)
      Kitamura.Y., R.Ueda, S.Lee
    • Journal Title

      4th world congress of the international society of physical and rehabilitation medicine -ISPPRM

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] A workshop manual without discussion sessions for siblings of children with special needs in Japan.2007

    • Author(s)
      Kitamura Y.
    • Journal Title

      Research on developmental delay on language No. 13

      Pages: 1-20

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] The impact of a workshop with a puppet show for young siblings of children with special needs.2007

    • Author(s)
      Ki tamura.Y., R.Ueda, S.Lee
    • Journal Title

      4th world congress of the international society of physical and rehabilitation medicine-ISPPRM

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] 特殊なニーズのある子どものきょうだいを対象としたワークショプの日本における実践方法~討論をしない場合を中心として~2007

    • Author(s)
      北村弥生
    • Journal Title

      言語発達障害研究 第13号

      Pages: 1-20

    • Related Report
      2006 Annual Research Report
  • [Journal Article] 海外におけるきょうだいに対する支援事業2005

    • Author(s)
      北村弥生
    • Journal Title

      いとしご No.94

      Pages: 12-12

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] 終末期小児がん患児の同胞への看護支援した問題への介入事例2005

    • Author(s)
      永吉美智枝, 北村弥生, 渡辺輝子, 赤池文子, 牧本敦, 上田礼子
    • Journal Title

      小児がん看護研究 1号

      Pages: 41-47

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Activities for siblings in Europe and the U. S.2005

    • Author(s)
      Kitamura, Y.
    • Journal Title

      Itoshigo (A newsletter of Japan Autism Association) No. 94

      Pages: 12-12

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] A case report of nursing support for siblings of child with cancer on faterless family during a terminal period.2005

    • Author(s)
      Nagayoshi, M., Y.Kitamura, T.Watanabe, H.Akaike, A.Makimoto, R.Ueda
    • Journal Title

      Jpn. J. Pediatric Oncology Nursing Research No. 1

      Pages: 41-47

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] きょうだいに対する支援事業2005

    • Author(s)
      北村弥生
    • Journal Title

      いとしご No.94

      Pages: 12-12

    • Related Report
      2005 Annual Research Report
  • [Journal Article] 口唇口蓋裂児の自尊心としれに関連する変数2005

    • Author(s)
      北村弥生, 上田礼子, 玉城彰子, 河田聡子, 藤田博子
    • Journal Title

      国立身体障害者リハビリテーションセンター研究紀要 25

      Pages: 1-5

    • Related Report
      2005 Annual Research Report
  • [Journal Article] 口唇口蓋裂児の自尊心とそれに関連する変数2004

    • Author(s)
      北村弥生, 上田礼子, 玉城彰子, 河田聡子, 藤田博子
    • Journal Title

      国立身体障害者リハビリテーションセンター研究紀要 25

      Pages: 1-5

    • NAID

      40007377981

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Self-esteem and the related variables in children with clef t lips and/or palates.2004

    • Author(s)
      Kitamura, Y., R.Ueda, A.Tamashiro, S.Kawada, H.Fujita
    • Journal Title

      Nat. Rehab. Res. Bull. Jpn. No. 25

      Pages: 1-5

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] 慢性疾患患児の同胞の自己概念と意識 -血液疾患群、神経疾患群、対照群の比較-2003

    • Author(s)
      北村弥生, 上田礼子, 大川洋二, 下平雅之, 岩川善英, 神山潤
    • Journal Title

      国立身体障害者リハビリテーションセンター研究紀要 23

      Pages: 11-16

    • NAID

      110000382481

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Japanese Parents' Needs with Mentally Retarded Children and Their Siblings and Support Systems for Siblings2003

    • Author(s)
      Kitamura.Y., R.Ueda, A.Tokui
    • Journal Title

      Proceedings of 16th Asian Conference on Mental Retardation

      Pages: 171-174

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Concerns and self-perception of siblings of children with special needs and their wishes to attend sibling support projects - community based survey -2003

    • Author(s)
      Kitamura.Y., R.Ueda
    • Journal Title

      2nd world congress of the international society of physical and rehabilitation medicine -ISPPRM

      Pages: 807-810

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Self-percept ion and feelings of siblings of children with chronic illness.2003

    • Author(s)
      Kitamura, Y., R.Ueda, H.Ohkawa, M.Shimohira, Y.Iwakawa, J.Kohyama
    • Journal Title

      Nat. Rehab. Res. Bull. Jpn. No. 23

      Pages: 11-16

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Japanese Parents' Needs with Mentally Retarded Children and Their Siblings and Support Systems for Siblings.2003

    • Author(s)
      Kitamura.Y., R.Ueda, A.Tokui
    • Journal Title

      Proceedings of 16th Asian Conference on Mental Retardation

      Pages: 171-174

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] Concerns and self-perception of siblings of children with special needs and their wishes to attend sibling support projects-community based survey2003

    • Author(s)
      Ki tamura.Y., R.Ueda
    • Journal Title

      2nd world congress of the international society of physical and rehabilitation medicine-ISPPRM

      Pages: 807-810

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary

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Published: 2003-04-01   Modified: 2016-04-21  

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