| Budget Amount *help |
¥4,420,000 (Direct Cost: ¥3,400,000、Indirect Cost: ¥1,020,000)
Fiscal Year 2017: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2016: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2015: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
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| Outline of Final Research Achievements |
Genomic and genetic analysis studies are rapidly spreading due to the drastic improvement of genome analysis technology. In order to participate in these studies, the consent of the subject is required. Using underage subjects who lack the ability to consent raises some issues, such as informed consent by proxy and informed assent, as well as other issues that concern the specific nature of genetic information. In case of comprehensive genome analysis studies, e.g. whole-genome sequencing studies, problems unique to them also arise. In this study, I examine ELSI concerning underage subjects in comprehensive genome analysis studies, and consider how best to develop regulations and systems for this kind of research. The findings have been presented at several academic conferences as well as in print.
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