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Rebuilding the social support system for the Self-Stigma of recovered Hansen's disease patients, affected by the Leprosy Prevention Law

Research Project

Project/Area Number 15K11814
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Gerontological nursing
Research InstitutionUniversity of Nagasaki

Principal Investigator

KAWAGUCHI Asako  長崎県立大学, 看護栄養学部, 教授 (60555473)

Co-Investigator(Kenkyū-buntansha) 磯野 真穂  国際医療福祉大学, 医療福祉学研究科, 講師 (50549376)
石川 美智  活水女子大学, 看護学部, 准教授 (40638706)
Project Period (FY) 2015-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥4,940,000 (Direct Cost: ¥3,800,000、Indirect Cost: ¥1,140,000)
Fiscal Year 2018: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2017: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2016: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2015: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywordsハンセン病 / スティグマ / らい予防法 / 社会支援システム / 差別 / 偏見 / 社会支援 / 隔離政策
Outline of Final Research Achievements

The present study aimed to illustrate self- discrimination and the associated psychology of patients who have recovered from Hansen’s disease, thereby examining their social support system. Interviews with 31 patients who recovered from Hansen’s disease and Hansen’s disease patient support organizations were conducted as well as data analysis.
The results showed that the self-stigma entrenched in these patients, such as “the source of infection,” “the deeply etched identity as a Hansen’s disease patient,” and “denial of the self,” was associated with their refusal to visit hospitals and use nursing home care services.

Academic Significance and Societal Importance of the Research Achievements

研究成果の学術的意義は、これまでハンセン病回復者の内面に刻み込まれたもの(セルフ・スティグマ)の実態と生成過程を明らかにした研究はない。これらが明らかになったことによる社会的意義は、ハンセン病回復者が生活行為を回避・制限しない生活を可能にするために必要なケアプログラムの開発の基本的考えを導き出した。このことは、ハンセン病回復者が損なった人間性の回復と残された生活の質を豊かにできると考える。

Report

(4 results)
  • 2018 Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • 2015 Research-status Report
  • Research Products

    (6 results)

All 2017

All Presentation (6 results) (of which Invited: 1 results)

  • [Presentation] スティグマが内面化しているハンセン病回復者の差別体験に関する感情―質的データ分析ソフトNVivo 11を用いてー2017

    • Author(s)
      河口朝子,岡﨑美智子
    • Organizer
      第30回日本看護福祉学会学術大会
    • Related Report
      2017 Research-status Report
  • [Presentation] ハンセン病回復者のセルフ・スティグマの様相2017

    • Author(s)
      河口朝子, 岡﨑美智子,石川美智
    • Organizer
      日本看護研究学会第43回学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] らい予防法がハンセン病回復者の生活環境に及ぼしたもの-消毒規定からみた分析-2017

    • Author(s)
      河口朝子,岡﨑美智子、磯野真穂,石川美智
    • Organizer
      第29回ハンセン病コ・メディカル学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] ハンセン病回復者のセルフ・スティグマの生成過程2017

    • Author(s)
      河口朝子, 岡﨑美智子,石川美智
    • Organizer
      第37回日本看護科学学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] Coping of a patient who recovered from Hansen’s disease with body image change against social stigma2017

    • Author(s)
      Asako Kawaguchi, Michiko Okazaki, Maho Isono
    • Organizer
      The 12th Japan-Korea International Nursing Conference
    • Related Report
      2017 Research-status Report
  • [Presentation] ハンセン病者という過去を胸に抱えて生きる  ―回復者の語りからケアを導くー2017

    • Author(s)
      河口朝子
    • Organizer
      第29回ハンセン病コ・メディカル学術集会
    • Related Report
      2017 Research-status Report
    • Invited

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Published: 2015-04-16   Modified: 2025-03-27  

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