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Construction of empirical care model focused on the family empowerment rearing the child with severe motor and intellectual disabilities at home in Japan

Research Project

Project/Area Number 15K15846
Research Category

Grant-in-Aid for Challenging Exploratory Research

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionUniversity of Tsukuba

Principal Investigator

Wakimizu Rie  筑波大学, 医学医療系, 准教授 (70510121)

Co-Investigator(Kenkyū-buntansha) 佐藤 奈保  千葉大学, 大学院看護学研究科, 准教授 (10291577)
松澤 明美  茨城キリスト教大学, 看護学部, 准教授 (20382822)
沼口 知恵子  茨城県立医療大学, 保健医療学部, 准教授 (50381421)
藤岡 寛  茨城県立医療大学, 保健医療学部, 教授 (90555327)
西垣 佳織  聖路加国際大学, 大学院看護学研究科, 准教授 (90637852)
Co-Investigator(Renkei-kenkyūsha) IWASAKI Nobuaki  茨城県立医療大学, 保健医療学部, 教授 (70251006)
Research Collaborator Ozawa Hiroshi  
KISHINO Miyuki  
IWATA Naoko  
YAMAGUCHI Keiko  
SASAKI Mikiko  
AKIMOTO Kazuhiro  
SAITO Saori  
Project Period (FY) 2015-04-01 – 2018-03-31
Project Status Completed (Fiscal Year 2017)
Budget Amount *help
¥3,640,000 (Direct Cost: ¥2,800,000、Indirect Cost: ¥840,000)
Fiscal Year 2017: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2016: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2015: ¥2,340,000 (Direct Cost: ¥1,800,000、Indirect Cost: ¥540,000)
Keywords発達障害児 / 在宅 / 重症心身障害 / 家族 / エンパワメント / パス解析 / 在宅重症児ケア / 家族エンパワメント / 児の養育者 / 児の同胞 / サービスシステム / コミュニティ / インフォーマルサービス / フォーマルサービス / 重症心身障害児 / 在宅重症児 / 地域 / 同胞 / モデル / 重症児 / 家族看護 / 在宅看護 / 地域包括ケアモデル / きょうだい
Outline of Final Research Achievements

This study aims to construct the empirical model to promote family empowerment of children with severe motor and intellectual disabilities (SMID) at home.
The result of covariance structure analysis suggests that “the use of social resource,”“burden of primary caregiver,”“the number of agencies which support family,””household income,”and“home-visit service usage time” form family empowerment. Among them, “the use of social resource” was most influential to family empowerment. Additionally,“the use of social resource”was associated with “the number of agencies which support family,” “home-visit service usage time,” “visiting service usage time,”and“academic background of primary caregiver”, and also“the burden of primary caregiver”was associated with “the number of people who support family,”“the number of arousals during sleep,”and“bonds of family”(GFI=0.977 AGFI=0.958 CFI=0.922 RMSEA=0.040).

Report

(4 results)
  • 2017 Annual Research Report   Final Research Report ( PDF )
  • 2016 Research-status Report
  • 2015 Research-status Report
  • Research Products

    (15 results)

All 2017 2016 2015 Other

All Journal Article (6 results) (of which Peer Reviewed: 6 results,  Open Access: 3 results,  Acknowledgement Compliant: 6 results) Presentation (7 results) (of which Int'l Joint Research: 3 results) Remarks (2 results)

  • [Journal Article] Roles and Hopes of Family Members Living with SMID Children in Japan2016

    • Author(s)
      Wakimizu R, Yamaguchi K, Fujioka H
    • Journal Title

      Health

      Volume: 8 Pages: 787-799

    • Related Report
      2016 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Journal Article] 在宅重症心身障がい児家族の支援ニードと専門職による重要度および実践度評価―看護職および行政職を対象としたデルファイ法による調査より―2016

    • Author(s)
      涌水理恵, 藤岡寛, 沼口知恵子, 西垣佳織, 佐藤奈保, 山口慶子
    • Journal Title

      厚生の指標

      Volume: 63 Pages: 23-32

    • NAID

      40020801590

    • Related Report
      2016 Research-status Report
    • Peer Reviewed / Acknowledgement Compliant
  • [Journal Article] Assessment of Quality of Life, Family Function and Family Empowerment for Families who provide Home Care for a Child with Severe Motor and Intellectual Disabilities in Japan2016

    • Author(s)
      Rie Wakimizu, Keiko Yamaguchi, Hiroshi Fujioka, Chieko Numaguchi, Kaori Nishigaki, Naho Sato, Miyuki Kishino, Hiroshi Ozawa, Nobuhiro Iwasaki
    • Journal Title

      Health

      Volume: 8 Pages: 304-317

    • Related Report
      2016 Research-status Report 2015 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Journal Article] 在宅重症心身障がい児家族の支援ニードと専門職による重要度および実践度評価―看護職および行政職を対象としたデルファイ法による調査より―2016

    • Author(s)
      涌水理恵、藤岡寛、沼口知恵子、西垣佳織、佐藤奈保、山口慶子、岸野美由紀
    • Journal Title

      厚生の指標

      Volume: 63(4) Pages: 23-32

    • NAID

      40020801590

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Acknowledgement Compliant
  • [Journal Article] Roles and Hopes of Family Members Living with SMID Children in Japan2016

    • Author(s)
      Rie Wakimizu, Keiko Yamaguchi, Hiroshi Fujioka
    • Journal Title

      Health

      Volume: in press

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Journal Article] 在宅重症心身障害児の家族エンパワメント 父親が担う役割2015

    • Author(s)
      藤岡寛、涌水理恵、沼口知恵子、西垣佳織、佐藤奈保、岸野美由紀、岩崎信明、小沢浩
    • Journal Title

      日本重症心身障害学会誌

      Volume: 40 Pages: 359-366

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Acknowledgement Compliant
  • [Presentation] 在宅重症心身障がい児の主な家族介護者の社会資源活用に関連する認識の探索2017

    • Author(s)
      西垣 佳織, 涌水 理恵, 藤岡 寛, 沼口 知恵子, 佐藤 奈保, 松澤 明美, 山口 慶子, 佐々木 実輝子
    • Organizer
      日本小児保健学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 在宅重症心身障害児の家族エンパワメントに焦点を当てたケアモデルの開発2017

    • Author(s)
      涌水 理恵, 藤岡 寛, 西垣 佳織, 松澤 明美, 岸野 美由紀, 岩田 直子, 山口 慶子, 佐々木 実輝子
    • Organizer
      日本外来小児科学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 学齢期の障がいのある子どもを育てる母親の就労とその関連要因2017

    • Author(s)
      松澤明美, 涌水理恵, 藤岡寛, 西垣佳織, 沼口知恵子, 佐藤奈保
    • Organizer
      日本看護科学学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] Family Empowerment and Associated Factors of Families Raising a Child with Severe Motor and Intellectual Disabilities in Japan2017

    • Author(s)
      Keiko Yamaguchi, Mikiko Sasaki, Rie Wakimizu, Hiroshi Fujioka, Chieko Numaguchi, Kaori Nishigaki, Naho Sato, Akemi Matsuzawa, Miyuki Kishino
    • Organizer
      The East Asian Forum of Nursing Scholars
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Factors Associated with Quality of Life in Sibling of Children with Severe Motor and Intellectual Disabilities2017

    • Author(s)
      Sasaki,M., Yamaguchi, K., Wakimizu, R., Fujioka, H., Numaguchi, C., Nishigaki, K., Sato, N., Matsuzawa, A., Iwata, N., Kishino, M.
    • Organizer
      The East Asian Forum of Nursing Scholars
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] The Field Survey Of The Families Home-Rearing Children With Severe Motor And Intellectual Disabilities In Japan: Focused On Family Member’s Individual QOL2015

    • Author(s)
      Rie Wakimizu
    • Organizer
      12th International Family Nursing Conference
    • Place of Presentation
      Denmark, Odence
    • Year and Date
      2015-08-18
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] 在宅重症児家族の支援ニードと専門職による実践の現状および必要度の評価~デルファイ法を用いて~2015

    • Author(s)
      涌水理恵、藤岡寛、沼口知恵子、西垣佳織、佐藤奈保、山口慶子、岸野美由紀
    • Organizer
      日本小児看護学会学術集会
    • Place of Presentation
      千葉、APAホテル東京ベイ幕張
    • Year and Date
      2015-07-25
    • Related Report
      2015 Research-status Report
  • [Remarks]

    • URL

      http://www.md.tsukuba.ac.jp/nursing-sci/child/index.html

    • Related Report
      2017 Annual Research Report
  • [Remarks] 筑波大学医学医療系小児保健看護学研究業績

    • URL

      http://www.md.tsukuba.ac.jp/nursing-sci/child/paper.html

    • Related Report
      2016 Research-status Report

URL: 

Published: 2015-04-16   Modified: 2019-03-29  

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