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Research governance model for stem cell research rooted in value sharing

Research Project

Project/Area Number 15K19148
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Medical sociology
Research InstitutionKyoto University

Principal Investigator

Suzuki Mika  京都大学, iPS細胞研究所, 特定研究員 (60555259)

Research Collaborator SATO keiko  
Project Period (FY) 2015-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000)
Fiscal Year 2017: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2016: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2015: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywords再生医療 / 臨床研究 / 信頼 / 意識調査 / 細胞提供者 / 研究ガバナンス
Outline of Final Research Achievements

Our objective was to investigate the concerns and expectations of potential donors regarding the donation of embryos or blood to derive hPSCs for research/ clinical purposes. From this survey, we will extract certain key components for sharing salient values that would help to develop a stem cell research governance model. We asked about concerns regarding donations of their blood/embryo to create iPS/ES cells for research/clinical purposes for 45 potential donors were interviewed (Male 4, Female 41). They expressed concern about the items regarding risk and researchers’ behavior. On the other hand, they did not express concern about the features of iPS/ES cells. Also, they did not express concern about whether there will be periodic contact (email or post) by the researchers or research institute. We concluded from the analysis that potential donors are concerned about not only compliance but also researcher conduct including ethics.

Academic Significance and Societal Importance of the Research Achievements

本研究では、幹細胞研究分野における細胞を提供する立場の人を対象に、iPS/ES細胞を用いる研究や医療目的で細胞提供する際に、気がかりな点やどのような体制があれば協力しようと思うかといった意識調査を行い、よりよい研究実施体制構築に資する基礎的データを得た。このようなデータはこれまでわが国では少なかったことから、本成果は、学術的な価値があると考える。
また、研究活動は、社会からの信頼なくして実施できるものではないが、細胞を提供する立場の人の声を研究実施体制の構築・向上にフィードバックする点においても、社会的な貴重な試みであり、意義があるといえる。

Report

(5 results)
  • 2018 Annual Research Report   Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • 2015 Research-status Report
  • Research Products

    (5 results)

All 2019 2018 2017

All Journal Article (2 results) Presentation (3 results) (of which Int'l Joint Research: 2 results,  Invited: 1 results)

  • [Journal Article] Research governance model for stem cell research rooted in value sharing: Interview survey for potential donors (introduction of ongoing survey)2019

    • Author(s)
      Mika Suzuki
    • Journal Title

      Uehiro-Carnegie-Oxford Ethics Conference 2017 ‘Ethics of iPS Cell and Genetic Research and Therapy’

      Volume: 0 Pages: 127-131

    • Related Report
      2018 Annual Research Report
  • [Journal Article] 価値共有に根差した幹細胞研究のガバナンスモデル-潜在的提供者へのインタビュー調査(研究計画の紹介)2019

    • Author(s)
      鈴木美香
    • Journal Title

      上廣・カーネギー・オックスフォード倫理会議2017.iPS細胞/遺伝子を用いた研究と治療に関する倫理的課題

      Volume: 0 Pages: 371-374

    • Related Report
      2018 Annual Research Report
  • [Presentation] 人々が研究者を信頼し、安心して細胞を提供するために必要な要素の解明―潜在的細胞提供者への意識調査より―2018

    • Author(s)
      鈴木美香、佐藤恵子
    • Organizer
      日本生命倫理学会
    • Related Report
      2018 Annual Research Report
  • [Presentation] Building the trust: The role of the professional and the role of the general public.2018

    • Author(s)
      Mika Suzuki
    • Organizer
      Who Owns Your Body? Beyond The Physical. University of Hong Kong
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research / Invited
  • [Presentation] Research governance model for stem cell research rooted in value sharing: Interview survey for potential donors <Introduction of ongoing survey>2017

    • Author(s)
      Mika Suzuki
    • Organizer
      2017 Uehiro-Carnegie-Oxford Ethics Conference
    • Related Report
      2017 Research-status Report
    • Int'l Joint Research

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Published: 2015-04-16   Modified: 2020-03-30  

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