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Study support for nurturing the skills for self-determination relative to genetic issues

Research Project

Project/Area Number 16390633
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Fundamental nursing
Research InstitutionTokai University

Principal Investigator

MIZOGUCHI Michiko  Tokai University, Health Sciences, Professor (00287103)

Co-Investigator(Kenkyū-buntansha) MORITA Minako  The Japanese Red Cross College of Nursing, 看護学部, Professor (50288065)
NISHIMURA Yumi  Osaka University, Center of Communication Design, Associate professor (00257271)
MAEDA Hiroki  Tokai University, Education center, Associate professor (00338740)
SHIBUE Kasane  Shizuoka University, Department of Education, Associate professor (10377707)
小笹 優美  東海大学, 健康科学部, 助手 (40420955)
Project Period (FY) 2004 – 2007
Project Status Completed (Fiscal Year 2007)
Budget Amount *help
¥12,900,000 (Direct Cost: ¥12,300,000、Indirect Cost: ¥600,000)
Fiscal Year 2007: ¥2,600,000 (Direct Cost: ¥2,000,000、Indirect Cost: ¥600,000)
Fiscal Year 2006: ¥2,300,000 (Direct Cost: ¥2,300,000)
Fiscal Year 2005: ¥3,400,000 (Direct Cost: ¥3,400,000)
Fiscal Year 2004: ¥4,600,000 (Direct Cost: ¥4,600,000)
Keywordshereditary issues / study program / 学習支援 / 成人一般
Research Abstract

The objective of this study was the development and trial implementation of a study support program to enable the general public to acquire the knowledge and attitudes needed for adequately requesting support or making the necessary decisions upon encountering problems of genetic nature. In this final year of the project, the 3-day study support pilot program implemented in 2006 was subjected to analysis and evaluation. The study support program was constructed as the process by which subjects presented with a written request for participation in a simulated genetic study, including explanation of the blood collection involved for developing a genetic test for diagnosing lung cancer based upon cancer-associated chromosomal data, come to attain understanding of the issues involved through avenues such as discussion, acquisition of knowledge, and role play. Program evaluation was made through analysis of the processes involved in the: 1) evolution of the program itself, 2) facilitators supporting the program, 3) role play, 4) opening/closing session discussions, and 5) program efficacy. Analysis results were presented to the participants for their comments on the contents of analysis, and consent was obtained regarding disclosure of the study process. Evaluation revealed that the participants were able to obtain grasp of the necessary facts to deal with the simulated situation through the program, and utilize the facts in the role play. It also enabled the participants to conjoin their own experience and the problems surrounding genetic medical care, gaining awareness of the possible issues that can arise therein. Further refinement of this program including modifications to allow for wider general use is the next theme to be addressed in this study.

Report

(5 results)
  • 2007 Annual Research Report   Final Research Report Summary
  • 2006 Annual Research Report
  • 2005 Annual Research Report
  • 2004 Annual Research Report
  • Research Products

    (8 results)

All 2008 2007 2006 2005

All Journal Article (4 results) (of which Peer Reviewed: 1 results) Presentation (4 results)

  • [Journal Article] 「遺伝」について「学習」するとはどのようなことか?-大学生へのグループ・インタビューの分析から-2007

    • Author(s)
      前田 泰樹, 溝口 満子, 守田 美奈子, 西村 ユミ, 渋江 かさね
    • Journal Title

      日本遺伝看護学会誌 5

      Pages: 1-17

    • NAID

      40015658178

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2007 Annual Research Report 2007 Final Research Report Summary
    • Peer Reviewed
  • [Journal Article] What is involved in the acquisition of genetic knowledge? From a focus group interview of undergraduate students2007

    • Author(s)
      Hiroki, Maeda, Michiko, Mizoguchi, Minako, Morita, Nishimura, Yumi
    • Journal Title

      J. Jpn. Soc. Genet. Nurs 5(1)

      Pages: 1-17

    • NAID

      40015658178

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2007 Final Research Report Summary
  • [Journal Article] 「遺伝」について「学習」するとはどのようなことか? -大学生のグループ・インタビューの分析から-2007

    • Author(s)
      前田 泰樹
    • Journal Title

      日本遺伝看護学会誌 5(1)

      Pages: 26-26

    • Related Report
      2006 Annual Research Report
  • [Journal Article] 遺伝を考える視点の発見の仕方2005

    • Author(s)
      西村 ユミ
    • Journal Title

      日本遺伝カウンセリング学会誌 26(1)

      Pages: 26-26

    • Related Report
      2005 Annual Research Report
  • [Presentation] Construction of a learning resource for promoting the power of autonomous decision-making relative to genetic issues2008

    • Author(s)
      Minako Morita, Michiko Mizoguchi, Yumi Nishimura, Hiroki Maeda, Kasane Shibue
    • Organizer
      International Society of Nurses in Genetics Annual Conference
    • Place of Presentation
      Bristol,UK
    • Year and Date
      2008-05-20
    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2007 Annual Research Report 2007 Final Research Report Summary
  • [Presentation] Construction of a learning resource for promoting the power of autonomous decision-making relative to genetic issues2007

    • Author(s)
      Minako, Morita, Michiko, Mizoguchi, Yumi, Nishimura, Hiroki, Maeda, Kasane, Shibue
    • Organizer
      International Society of Nerses in Genetics
    • Place of Presentation
      Bristol, UK
    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2007 Final Research Report Summary
  • [Presentation] Ways of discovering viewpoints from which to consider genetics- From focus group interviews of the general public-2006

    • Author(s)
      Yumi, Nishimura, Minako, Morita, Michiko, Mizoguchi, Hiroki, Maeda, Yumi, Ozasa
    • Organizer
      International Society of Nurses in Genetics Annual Conference
    • Place of Presentation
      New Orleans, USA
    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2007 Final Research Report Summary
  • [Presentation] Process of identification of the standpoints from which genetic issues are captured -from the operation of focus group interviews on the common citizen-2005

    • Author(s)
      Yumi, Nishimura, Minako, Morita, Michiko, Mizoguchi, Hiroki, Maeda
    • Organizer
      CInternational Society of Nerses in Genetics 2005
    • Place of Presentation
      Salt Lake City, USA
    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2007 Final Research Report Summary

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Published: 2004-04-01   Modified: 2016-04-21  

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