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Pregnant women and their family's perception, expectations of informed consent about prenatal diagnoses

Research Project

Project/Area Number 16592151
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionYamaguchi University

Principal Investigator

MURAKAMI Kyoko  Yamaguchi University, Graduate School of Medicine, associate professor, 大学院医学系研究科, 助教授 (10294662)

Co-Investigator(Kenkyū-buntansha) TSUJINO Kumiko  Yamaguchi University, Graduate School of Medicine, professor, 大学院医学系研究科, 教授 (60269157)
TSUKAHARA Masato  Yamaguchi University, director, 大学院医学系研究科, 副学長 (20136188)
IINO Hidechika  Yamaguchi University Hospital, Department of Nursing, Vice Director, 医学部附属病院, 副看護部長 (20284276)
Project Period (FY) 2004 – 2006
Project Status Completed (Fiscal Year 2006)
Budget Amount *help
¥2,700,000 (Direct Cost: ¥2,700,000)
Fiscal Year 2006: ¥800,000 (Direct Cost: ¥800,000)
Fiscal Year 2005: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 2004: ¥1,400,000 (Direct Cost: ¥1,400,000)
Keywordspregnant women / prenatal diagnosis / informed-consent / prenatal ultrasound / congenital anomaly / 羊水検査 / 育児
Research Abstract

The purpose of this study was to clarify perceptions about prenatal diagnoses information among pregnant women and their family.
Two-hundred fifty-two pregnant women were surveyed using a specifically designed tool to assess knowledge and perception about prenatal ultrasound screening and fetal anomaly. All women recognized that they took their ultrasound screening test for check fetal growth. Two-hundred thirty-three (92.5%) of the subjects were looking forward to having an ultrasound test. One-hundred seventy (67.5%) of the subjects worried about to detect fetal anomaly by ultrasound test. However, 234 pregnant women (92.9%) would like to know the fact if their fetal would have congenital anomaly.
Semi-structured interviews were conducted with five mothers having a child with congenital anomaly. Data were continually analyzed by inductive qualitative method. In the first category three themes were extracted : Desire for appropriate information ; Anxiety and acceptance of developmental disability ; and Comparison with normal children and/or congenital anomaly children. In the second category, caring for rest of the family, there were five themes: Raising children without consciousness of patient's condition ; Telling siblings ; Experiencing husband's calm perception of condition ; and Thankfulness for grandparents' understanding. In the social supports category, there were three themes : Getting information from support groups ; Care by public health nurses, and Necessity of coordination by professionals.
Nurses have to support the mother with a congenital anomaly child by trying to understand their perceptions and experiences, and assessing reactions within the family.

Report

(4 results)
  • 2006 Annual Research Report   Final Research Report Summary
  • 2005 Annual Research Report
  • 2004 Annual Research Report
  • Research Products

    (6 results)

All 2007 2006 2005

All Journal Article (5 results) Book (1 results)

  • [Journal Article] A report of two linked studies of knowledge and attitudes to prenatal screening and testing in adults of reproductive age in Japan and the UK2007

    • Author(s)
      Skirton H
    • Journal Title

      Midwifery Jan(印刷中)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2006 Final Research Report Summary
  • [Journal Article] A report of two linked studies of knowledge and attitudes to prenatal screeningl and testine in adults of reproductive age in Japan and the UK2007

    • Author(s)
      Skirton H
    • Journal Title

      Midwifery (印刷中)

    • Related Report
      2006 Annual Research Report
  • [Journal Article] 遺伝診療での看護師の役割・注意点2006

    • Author(s)
      村上 京子
    • Journal Title

      小児看護 29(2)

      Pages: 213-218

    • Related Report
      2005 Annual Research Report
  • [Journal Article] 乳幼児を持つ母親の育児ストレスに関する要因の分析2005

    • Author(s)
      村上 京子
    • Journal Title

      小児保健研究 64(3)

      Pages: 425-431

    • NAID

      10016159087

    • Related Report
      2005 Annual Research Report
  • [Journal Article] 障害児をもつ母親の養育に対する陽性・陰性感情の分析2005

    • Author(s)
      飯野 英親
    • Journal Title

      日本遺伝看護研究会誌 3(1)

      Pages: 1-8

    • NAID

      40007442500

    • Related Report
      2005 Annual Research Report
  • [Book] A report of two linked studies of knowledge and attitudes to prenatal screening and testing in adults of reproductive age in Japan and the UK.2007

    • Author(s)
      Skirton H
    • Publisher
      Midwifery(in press)
    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2006 Final Research Report Summary

URL: 

Published: 2004-04-01   Modified: 2016-04-21  

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