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Development of care guideline that improve the Quality of Life of people with mesothelioma and thier family

Research Project

Project/Area Number 16H05579
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionSt. Luke's International University

Principal Investigator

NAGAMATSU Yasuko  聖路加国際大学, 大学院看護学研究科, 准教授 (80286707)

Co-Investigator(Kenkyū-buntansha) 本城 由美 (佐居由美)  聖路加国際大学, 大学院看護学研究科, 准教授 (10297070)
松田 毅  神戸大学, 人文学研究科, 教授 (70222304)
Project Period (FY) 2016-04-01 – 2020-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥12,610,000 (Direct Cost: ¥9,700,000、Indirect Cost: ¥2,910,000)
Fiscal Year 2019: ¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000)
Fiscal Year 2018: ¥4,030,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥930,000)
Fiscal Year 2017: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2016: ¥2,730,000 (Direct Cost: ¥2,100,000、Indirect Cost: ¥630,000)
Keywordsアスベスト / 石綿 / 中皮腫 / QOL / グリーフ / 緩和ケア / 家族 / 悪性腫瘍 / 看護 / 死 / 遺族 / ケアガイド / 教育 / ガイドライン / ケア / 複雑性悲嘆」 / 良い死 / ケアガイドライン / がん / 複雑性悲嘆 / がん看護学 / 胸膜中皮腫
Outline of Final Research Achievements

Survey on the bereaved family members of the malignant pleural mesothelioma (MPM) showed that the Quality of Life (QOL) of the MPM patients were significantly lower than those of the cancer patients. The QOL in MPM was related to the dissatisfaction of care when the patient became critical, received surgery, female bereaved family, and the patient died sooner than expected. The quality of end-of-life in MPM was significantly poorer than those of the cancer. The rate of possible complicated grief was higher in MPM than cancer. The bereaved family members who were not satisfied the care when the patients became critical and angrier against asbestos, and felt that patient died sooner than expected had higher risk of complicated grief. The result of the survey indicated the fragmented care impaired the QOL of patients as well as family members. To provide the comprehensive care for MPM patients and their family members, MPM comprehensive ABC care guide was developed.

Academic Significance and Societal Importance of the Research Achievements

アスベストで起こる悪性疾患である胸膜中皮腫患者は、ターミナル期の症状コントロールが十分に出来ておらず、遺族は患者の死後も長く悲しみにくれる。これは、中皮腫患者と家族が十分なケアを受けられていないことが関連していたので、看護師が中心となって、様々な専門職や患者・家族支援団体と協力して、途切れなくケアを提供するための「看護師向けABCケアガイド」を開発した。

Report

(5 results)
  • 2021 Final Research Report ( PDF )
  • 2019 Annual Research Report
  • 2018 Annual Research Report
  • 2017 Annual Research Report
  • 2016 Annual Research Report
  • Research Products

    (7 results)

All 2022 2018 Other

All Int'l Joint Research (1 results) Journal Article (1 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (2 results) Book (2 results) Remarks (1 results)

  • [Int'l Joint Research] Asbestos Diseases Research Institute(オーストラリア)

    • Related Report
      2019 Annual Research Report
  • [Journal Article] Bereaved Family Members’ Perspectives of Good Death and Quality of End-of-Life Care for Malignant Pleural Mesothelioma Patients: A Cross-Sectional Study2022

    • Author(s)
      Nagamatsu Yasuko、Sakyo Yumi、Barroga Edward、Koni Riwa、Natori Yuji、Miyashita Mitsunori
    • Journal Title

      Journal of Clinical Medicine

      Volume: 11 Issue: 9 Pages: 2541-2541

    • DOI

      10.3390/jcm11092541

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed / Open Access
  • [Presentation] 胸膜中皮腫患者の遺族からみた、終末期の患者のQOL2018

    • Author(s)
      長松康子
    • Organizer
      第9回JMIG研究会
    • Related Report
      2018 Annual Research Report
  • [Presentation] 患者遺族が受けた医師・看護師からの不快な言動~アスベスト関連疾患患者遺族へのアンケート結果から~2018

    • Author(s)
      佐居由美、長松康子
    • Organizer
      第23回 聖路加看護学会学術大会
    • Related Report
      2018 Annual Research Report
  • [Book] 胸膜中皮腫ナースのための包括ABCケアガイド2022

    • Author(s)
      長松康子
    • Total Pages
      38
    • Publisher
      (株)イーフォー
    • Related Report
      2019 Annual Research Report
  • [Book] Patient care and support in ”Elimination of Asbestos-Related Diseases (ARDs) E-toolkit”2022

    • Author(s)
      Sarah Yasuko Nagamatsu
    • Publisher
      ADRI
    • Related Report
      2019 Annual Research Report
  • [Remarks] 看護師のための中皮腫情報サイト

    • URL

      http://www.meso-n.jp/

    • Related Report
      2019 Annual Research Report

URL: 

Published: 2016-04-21   Modified: 2023-01-30  

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