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Self-Management of Epilepsy - How People manage their Disease and its consequences

Research Project

Project/Area Number 16K04146
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Social welfare and social work studies
Research InstitutionSaitama Prefectural University

Principal Investigator

Kawamura Chihiro  埼玉県立大学, 保健医療福祉学部, 准教授 (00290065)

Project Period (FY) 2016-04-01 – 2020-03-31
Project Status Completed (Fiscal Year 2019)
Budget Amount *help
¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2018: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2017: ¥260,000 (Direct Cost: ¥200,000、Indirect Cost: ¥60,000)
Fiscal Year 2016: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Keywordsてんかん / 患者 / 当事者 / セルフマネジメント / 治療 / ソーシャルワーク / リカバリ / 精神保健福祉
Outline of Final Research Achievements

Epilepsy is a common neurologic disorder. Self-management is one of the key issues for improving the health and quality of life of people with epilepsy (PWE). The current understanding is that the evidence-based epilepsy self-management programs are needed and many researchers have conducted epilepsy self-management researches in western countries. On the other hand, psychosocial researches on epilepsy are insufficient in quantity in Japan. The author has conducted a qualitative research project to collect basic information to establish practical epilepsy self-management programs in our country. 26 main themes accounted for the experiences of PWE.

Academic Significance and Societal Importance of the Research Achievements

てんかんのある人々自身による語りの分析を通して、どのように病に対処し生活をしているのかを描きだすことよって日常生活や社会生活において必要な支援を行う方法への示唆を得ることができる。てんかんの包括的ケアの構築と実践に対する貢献、とりわけ心理社会的側面からの支援への貢献という意義をもつ。学術的には、わが国ではまだ数少ない、てんかんの心理社会的側面の質的研究への貢献という意義がある。

Report

(5 results)
  • 2019 Annual Research Report   Final Research Report ( PDF )
  • 2018 Research-status Report
  • 2017 Research-status Report
  • 2016 Research-status Report
  • Research Products

    (5 results)

All 2019 2018 2017 2016

All Journal Article (2 results) (of which Peer Reviewed: 2 results,  Open Access: 1 results) Presentation (3 results) (of which Int'l Joint Research: 3 results)

  • [Journal Article] 当事者組織への参加がメンバーの生活にもたらす意義―てんかん発作のある人とその家族の語りから―2018

    • Author(s)
      河村ちひろ・木村真理子・立脇恵子
    • Journal Title

      保健医療福祉科学

      Volume: 7 Pages: 84-89

    • Related Report
      2017 Research-status Report
    • Peer Reviewed
  • [Journal Article] リカバリーの語り 米国精神障害者家族連合会(NAMI)で活動するスタッフ2017

    • Author(s)
      立脇恵子・木村真理子・河村ちひろ
    • Journal Title

      社会福祉

      Volume: 57 Pages: 147-155

    • Related Report
      2017 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] How People Manage their Epilepsy Treatment: Interviews from People with Epilepsy in Japan2019

    • Author(s)
      Chihiro Kawamura
    • Organizer
      Asia-Pacific Joint Regional Social Work Conference , India, Bangalore. 2019.9.19 Proceeding p135
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] How People Manage their Epilepsy Treatment: Interviews from People with Epilepsy in Japan2019

    • Author(s)
      Chihiro Kawamura
    • Organizer
      Asia-Pacific Joint Regional Social Work Conference - APSWC2019
    • Related Report
      2018 Research-status Report
    • Int'l Joint Research
  • [Presentation] Recovery Stories - Interviews from Recovery Groups : People with Epilepsy and their Families2016

    • Author(s)
      Kawamura C., Kimura M., Tatewaki K.
    • Organizer
      International Symposium: Issues and Prospects on Education, Practice and Research for Social Work in Global Society
    • Place of Presentation
      日本女子大学
    • Year and Date
      2016-10-09
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research

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Published: 2016-04-21   Modified: 2021-02-19  

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