Development of Resident-Participation Nursing Guidelines for Peace of Mind in One's Final Resting Place at the End Stages of Life

Research Project

Project/Area Number	16K12073
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Multi-year Fund
Section	一般
Research Field	Clinical nursing
Research Institution	Meio University
Principal Investigator	Hiroyuki iha 名桜大学, 健康科学部, 准教授 (40712550)
Co-Investigator(Kenkyū-buntansha)	大城凌子名桜大学, 健康科学部, 教授 (80461672) 永田美和子名桜大学, 健康科学部, 教授 (50369344) 鶴巻陽子名桜大学, 健康科学部, 准教授 (80710128)
Project Period (FY)	2016-04-01 – 2020-03-31
Project Status	Completed (Fiscal Year 2019)
Budget Amount *help	¥4,550,000 (Direct Cost: ¥3,500,000、Indirect Cost: ¥1,050,000) Fiscal Year 2018: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000) Fiscal Year 2017: ¥2,990,000 (Direct Cost: ¥2,300,000、Indirect Cost: ¥690,000) Fiscal Year 2016: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Keywords	ハンセン病療養所 / 入所者の看取り / 看取りガイドライン / ライフサポート / ハンセン病 / ガイドライン構築 / 看取り / 高齢化 / 看取り看護 / 入所者の高齢化 / 入所者参画型 / ガイドライン
Outline of Final Research Achievements	This study consisted of surveys conducted as initial steps for the development of deathbed nursing guidelines to be used at leprosariums.For survey 1, a questionnaire was distributed to 769 nurses at 10 different facilities who gave their consent to participate in the study.For survey 2, a semi-structured interview of 10 nurses selected from the 10 facilities was conducted concerning deathbed nursing current conditions and challenges, as well as their feelings about this nursing.For survey 3, a semi-structured interview of 8 residents selected from the 10 facilities was conducted concerning their life history and feelings about deathbed nursing.The results of these surveys suggested that there is an urgent need for staff education programs covering facility maintenance for deathbed nursing, practical application of living will forms, operation methods for life support, cooperation with other occupations, as well as for the development of a deathbed nursing practice manual.
Academic Significance and Societal Importance of the Research Achievements	全国ハンセン病療養所13施設の入所者の平均年齢が85歳を超え、看取り看護のあり方が喫緊の重要課題になっている現在、入所者の看取り看護におけるガイドラインは未だ構築されていないのが実情である。ハンセン病療養所において看取りに関する研究が着目されなかった理由として、「らい予防法」により入所者に関する情報の発信が困難であったことや、入所者自身が自分の死を公にしたくなかったこと等が考えられる。しかし、入所者の平均年齢が85歳を超え、厚生労働省により終生の在園保障がなされたことから、今後、ハンセン病療養施設における看取り看護のガイドラインが重要視されていくものと考える。