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Development and practice of information sharing guidelines with siblings of children with cancer

Research Project

Project/Area Number 16K12142
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionOsaka University

Principal Investigator

Niinomi Kazuteru  大阪大学, 医学系研究科, 講師 (90547564)

Project Period (FY) 2016-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2018: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2017: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2016: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Keywordsきょうだい / 小児がん / 自分らしさ / 自尊心 / 成長発達 / 情報共有指針 / 自分らしい生活 / 情報共有プログラム / 看護学
Outline of Final Research Achievements

The primary aim of present study was to describe what siblings of children with cancer are experiencing at home, school, or medical settings and what they want to be shared about cancer-related information qualitatively. Further aim was to survey siblings' self-esteem, emotional and behavioral problems, and quality of life quantitatively. Both studies were investigated at the same time and through perspectives of both siblings and their parents.
Due to unexpected ethics review procedures, the time to start the study has been delayed, however, the number of surveys has been steadily done with the cooperation of participants.
In addition, we have been start writing the retrospectively analyzed effect of continuing periodic workshops on spending time with siblings over half a decade after presented at both national and international conferences.

Academic Significance and Societal Importance of the Research Achievements

これまでに、その時期を通過した後に青年成人期に達した方の振り返り記憶を調査した研究はあるが、積極的な治療期の渦中にある子どものきょうだいの経験や心身の状態を記述あるは調査分析した研究は非常に少ない。また、保護者の認識を通した調査だけでなく、保護者からみたきょうだいの様子も調査しつつ、きょうだい本人に調査した研究も非常に少ない。そのため、本研究は取り組み成果を出していくことに意義があると考えられる。

Report

(4 results)
  • 2018 Annual Research Report   Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • Research Products

    (9 results)

All 2018 2017 2016

All Journal Article (1 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (6 results) (of which Int'l Joint Research: 1 results,  Invited: 1 results) Book (2 results)

  • [Journal Article] Related variables of behavioral and emotional problems and personal growth of hospitalized children's siblings: Mothers' and other main caregivers' perspectives2018

    • Author(s)
      Kazuteru Niiinomi, Minae Fukui
    • Journal Title

      INQUIRY

      Volume: 55 Pages: 1-10

    • DOI

      10.1177/0046958018787054

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed / Open Access
  • [Presentation] 入院している子供のきょうだい支援: 「きょうだいの会」活動報告2018

    • Author(s)
      金子太郎, 佐々木美和, 牧田夏美, 萩原沙織, 野田弘実, 新家一輝, 浅野みどり, 奈良間美保, 高橋義行
    • Organizer
      第16回日本小児がん看護学会学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] 小児がんと診断された児のきょうだいへ病状説明を行った事例検討2018

    • Author(s)
      滝良梨子, 佐々木美和, 野田弘実, 西尾信博, 高橋義行, 新家一輝
    • Organizer
      第16回日本小児がん看護学会学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] 入院中の子どものきょうだいについて母親が尽力し工夫していること2018

    • Author(s)
      廣瀬あやめ, 新家一輝, 福井美苗, 菊池良太, 山崎あけみ
    • Organizer
      日本小児看護学会第28回学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] The effect of continuing periodic workshops and spending time with siblings of children with life-threatening illness2018

    • Author(s)
      Kazuteru Niinomi, Miwa Sasaki, Natsumi Makita, Saori Hagiwara, Tarou Kaneko, Hiromi Noda, Midori Asano, Miho Narama, Yoshiyuki Takahashi
    • Organizer
      42nd Annual Association of Pediatric Hematology/Oncology Nurses Conference and Exhibit
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 小児緩和ケアにおけるきょうだい支援2018

    • Author(s)
      新家一輝
    • Organizer
      第4回北大阪でCLASSミーティング
    • Related Report
      2018 Annual Research Report
    • Invited
  • [Presentation] 入院している子どものきょうだい支援:きょうだいの会実施報告2017

    • Author(s)
      金子太郎, 佐々木美和, 牧田夏美, 萩原沙織, 野田弘実, 新家一輝, 浅野みどり, 奈良間美保, 高橋義行
    • Organizer
      第17回中部小児がんトータルケア研究会
    • Related Report
      2017 Research-status Report
  • [Book] 小児がんの子どものきょうだいたち2017

    • Author(s)
      公益財団法人がんの子どもを守る会
    • Total Pages
      24
    • Publisher
      公益財団法人がんの子どもを守る会
    • Related Report
      2016 Research-status Report
  • [Book] シブリングサポーター研修ワークショップテキスト2016

    • Author(s)
      NPO法人しぶたね, 有馬靖子, 新家一輝
    • Total Pages
      46
    • Publisher
      NPO法人しぶたね
    • Related Report
      2016 Research-status Report

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Published: 2016-04-21   Modified: 2020-03-30  

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