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Creation, implementation and evaluation of a "life skills" support program for chronically ill pediatric patients

Research Project

Project/Area Number 16K12159
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionAichi Prefectural University

Principal Investigator

Kumita Akemi  愛知県立大学, 看護学部, 講師 (80716738)

Co-Investigator(Kenkyū-buntansha) 服部 淳子  愛知県立大学, 看護学部, 教授 (70233377)
山田 浩雅  愛知県立大学, 看護学部, 准教授 (60285236)
北川 好郎  愛知医科大学, 医学部, 講師 (00440719)
Project Period (FY) 2016-04-01 – 2023-03-31
Project Status Completed (Fiscal Year 2022)
Budget Amount *help
¥3,250,000 (Direct Cost: ¥2,500,000、Indirect Cost: ¥750,000)
Fiscal Year 2019: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2018: ¥130,000 (Direct Cost: ¥100,000、Indirect Cost: ¥30,000)
Fiscal Year 2017: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2016: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Keywords生活力 / 思春期(成人移行期) / 難病支援 / 炎症性腸疾患 / 支援ツール / 小児炎症性腸疾患 / 成人移行期(思春期) / 育成ツール / 難病 / 自己評価 / 慢性疾患患者 / 成人移行期 / 炎症性腸疾患患者 / 小児慢性疾患患者 / 自立 / 自己管理 / 食事管理 / 思春期 / ソーシャルスキル / 家族支援 / 体験学習型シナリオ / 成人移行期支援 / 看護学 / 小児慢性疾患 / 支援プログラム
Outline of Final Research Achievements

The number of patients with pediatric chronic diseases is on the increase, and it is said that "it is important to provide support that leads to improvement of the patient's quality of life from the long-term perspective of the child's future and his/her life (Yoda, 2012). Especially in adolescence, it is important to help patients "become independent in their own way.
In this study, we conducted two basic studies on "life skills" support for "adolescent" patients with inflammatory bowel disease, which could be expected to be utilized by professionals. one was a survey in which supporters of adult and adolescent patients with inflammatory bowel disease were interviewed about "life skills. The second was an investigation into the creation of a "Happifull Notebook," a tool to support "life skills.

Academic Significance and Societal Importance of the Research Achievements

炎症性腸疾患を持つ患者の思春期の「生活力」の支援において、実際に周囲の人々や成人患者にインタビュー調査をした上で、支援プログラムのひとつとしてツール(豊かに生活するノートHappifullノート)を作成した。炎症性腸疾患患者が、まず、自分の良い面に気づき、それをのばしながら、炎症性腸疾患を持つ自分にも関心を持ち、療養法や工夫、医師への質問や将来を考えることで、より「生活力」をアップさせることが期待できる。難病である炎症性腸疾患患者への支援への実践への具体的な関わり方への示唆ともなり、今後の実践内容の工夫に使用できると考える。

Report

(8 results)
  • 2022 Annual Research Report   Final Research Report ( PDF )
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • 2017 Research-status Report
  • 2016 Research-status Report
  • Research Products

    (5 results)

All 2022 2020 2017 2016

All Journal Article (2 results) (of which Peer Reviewed: 2 results,  Open Access: 2 results) Presentation (3 results)

  • [Journal Article] Tools to support life skills for patients with inflammatory bowel disease in adult transition; “Notes on living affluently” creation2022

    • Author(s)
      汲田 明美、服部 淳子、山田 浩雅
    • Journal Title

      愛知県立大学看護学部紀要

      Volume: 28 Pages: 119-128

    • DOI

      10.15088/00005005

    • URL

      https://aichi-pu.repo.nii.ac.jp/records/5069

    • Year and Date
      2022-12-14
    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] The life skills of adolescent inflammatory bowel disease patients as reported by adult inflammatory bowel disease patients and supporters2020

    • Author(s)
      汲田明美,服部淳子,山田浩雅
    • Journal Title

      愛知県立大学看護学部紀要

      Volume: 26 Pages: 103-111

    • DOI

      10.15088/00004379

    • NAID

      120007003740

    • URL

      https://aichi-pu.repo.nii.ac.jp/records/4438

    • Year and Date
      2020-12-16
    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] The vitality of pediatric IBD patients-Findings from an interview of adult patients and people involved with children with IBD2017

    • Author(s)
      汲田明美,服部淳子
    • Organizer
      The 20th EAFONS (East Asian Forum of Nursing Scholars )
    • Place of Presentation
      Hong Kong
    • Year and Date
      2017-03-09
    • Related Report
      2016 Research-status Report
  • [Presentation] 小児炎症性腸疾患(IBD)患者の「生活力」を育む成人移行期の支援について―家族、成人患者、教諭、医療者への面接調査の結果から―2017

    • Author(s)
      汲田明美,服部淳子,山田浩雅,田尻仁
    • Organizer
      第17回日本小児IBD研究会
    • Place of Presentation
      ブリーゼプラザ 小ホール7F 大阪府 大阪市
    • Related Report
      2016 Research-status Report
  • [Presentation] 小児炎症性腸疾患患者の「生活力」に関する調査-医療者、家族、学校教諭と成人した小児発症炎症性腸疾患患者へのインタビュー調査より-2016

    • Author(s)
      汲田明美,服部淳子
    • Organizer
      日本小児看護学会第26回学術集会
    • Place of Presentation
      別府国際コンベンションセンター ビーコンプラザ.大分県.別府市.
    • Year and Date
      2016-07-23
    • Related Report
      2016 Research-status Report

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Published: 2016-04-21   Modified: 2024-01-30  

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