| Project/Area Number |
16K16630
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| Research Category |
Grant-in-Aid for Young Scientists (B)
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| Allocation Type | Multi-year Fund |
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| Research Field |
Childhood science (childhood environment science)
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| Research Institution | Teikyo University |
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Principal Investigator |
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| Project Period (FY) |
2016-04-01 – 2019-03-31
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| Project Status |
Completed (Fiscal Year 2018)
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| Budget Amount *help |
¥3,900,000 (Direct Cost: ¥3,000,000、Indirect Cost: ¥900,000)
Fiscal Year 2018: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2017: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2016: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
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| Keywords | 小児 / 告知同意 / 同意能力 / インフォームドコンセント / 小児慢性特定疾病 / 悪性新生物 / 理解力 / 判断能力 / 患者教育 / 構造化面接 / 質問紙法 / 移行医療 / 移行期医療 / 人権 / 医療の質 / 患者の評価 |
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| Outline of Final Research Achievements |
An investigation has been done on information providence (such as explanation) about specific chronic pediatric diseases (malignant neoplasm) to children patients, the main causes and influence on understanding, satisfaction of them, which shown that special assistance has to be given in the cases of complication and language handicap. Age is also proved as not a key factor regarding the feeling and extent of understanding when physician in charge or guardians (such as parents) explain the diseases and treatment. Future analysis could focus on the specification of characteristics of the targets to provide assistance so as to increase understanding and satisfaction.
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| Academic Significance and Societal Importance of the Research Achievements |
小児慢性特定疾病（悪性新生物）の診断を受けた小児に対する情報提供（説明等）に関する現状を明らかにするとともに、提供された情報（説明等）に対する患児の理解と満足度に影響を及ぼし得る要因（併存疾患、年齢、言語に関するハンディキャップ等）について検討を行うことで、小児医療サービスの基本理念であるChild Centerd Care（子ども中心のケア）のさらなる充実と、移行期医療に関する問題の改善に資することができると考えられる。
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