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Career development model and employment support tool for patients with congenital heart disease

Research Project

Project/Area Number 17K04460
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical psychology
Research InstitutionToyo University

Principal Investigator

Enomoto Junko  東洋大学, 文学部, 教授 (50408952)

Project Period (FY) 2017-04-01 – 2023-03-31
Project Status Completed (Fiscal Year 2022)
Budget Amount *help
¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2020: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2019: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2018: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2017: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Keywords先天性心疾患 / 社会的自立 / キャリア発達 / 就労支援 / 臨床心理学 / 健康心理学
Outline of Final Research Achievements

Thanks to advances in medical techniques, many patients with congenital heart disease (CHD) can reach adulthood, and a smooth transition from childhood to adulthood has become a challenge. This study aimed to examine the characteristics of social independence and career development in patients with CHD and ultimately to develop employment support tools for patients.
As for the patients' employment situation, there was a high unemployment rate for both men and women. In addition, the developmental process leading up to adulthood was found to have difficulties in forming identity, and the developmental process differed depending on how patients made meaning of their experiences. Based on these findings, a booklet (employment support tool) was developed to help patients independently think about their disease and employment and access information on available employment support.

Academic Significance and Societal Importance of the Research Achievements

医療の飛躍的な進歩によって慢性疾患患者は成人期に達することが可能となり、患者を支える領域は医学的治療だけでは適わず、患者の将来的な社会参加を前提とした全人的ケアが求められている。本研究においては、心理学の知見を用いて患者の就業の実態と背景、および患者が成人期になるまでの発達プロセスと課題を具体的に提示するできた。これは医療分野、および心理学分野の学術的貢献に繋がることのみならず、社会生活を送っていく患者にとっても非常に有益な成果であったと考える。さらに本研究においては、就労支援ツールを作成したことによって研究成果を直接患者に還元できる。その点においても社会的に意義ある研究であったと考える。

Report

(7 results)
  • 2022 Annual Research Report   Final Research Report ( PDF )
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • 2017 Research-status Report
  • Research Products

    (31 results)

All 2022 2021 2020 2019 2018 2017

All Journal Article (18 results) (of which Int'l Joint Research: 15 results,  Peer Reviewed: 18 results,  Open Access: 10 results) Presentation (11 results) (of which Int'l Joint Research: 3 results,  Invited: 6 results) Book (2 results)

  • [Journal Article] Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.2022

    • Author(s)
      Van Bulck, L., Kovacs, A.H., Goossens, E., Luyckx. K., Zaidi, A.,...Moons P.
    • Journal Title

      International Journal of Cardiology

      Volume: 363 Pages: 30-39

    • DOI

      10.1016/j.ijcard.2022.06.064

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.2022

    • Author(s)
      Lu, C.W., Wang, J.K., Yang, H.L., Kovacs AH, Luyckx K.,...Moons, P.
    • Journal Title

      Journal of the American Heart Association

      Volume: 11 Issue: 9 Pages: 1-10

    • DOI

      10.1161/jaha.121.024993

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.2022

    • Author(s)
      Moons, P., Luyckx, K., Thomet, C., Budts, W., Enomoto, J.,...Kovacs AH.
    • Journal Title

      European Journal of Cardiovascular Nursing

      Volume: Online ahead of print Issue: 4 Pages: 1-6

    • DOI

      10.1093/eurjcn/zvac057

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS)2021

    • Author(s)
      Moons, P., Luyckx, K., Thomet, C.,Budts, W., Enomoto, J., et al.
    • Journal Title

      The American Journal of Cardiology

      Volume: 145 Pages: 135-142

    • DOI

      10.1016/j.amjcard.2020.12.088

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study2021

    • Author(s)
      Casteigt, B., Samuel, M., Laplante, L., Shohoudi, A., Apers S., et al.
    • Journal Title

      Heart Rhythm

      Volume: 18 Issue: 5 Pages: 793-800

    • DOI

      10.1016/j.hrthm.2020.09.012

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Health behaviours reported by adults with congenital heart disease across 15 countries.2020

    • Author(s)
      Holbein, C. E., Peugh, J., Veldtman, G. R., Apers, S., et al.
    • Journal Title

      European Journal of Preventive Cardiology

      Volume: 27 Issue: 10 Pages: 1077-1087

    • DOI

      10.1177/2047487319876231

    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: An international study.2020

    • Author(s)
      Levesque, V., Laplante, L., Shohoudi, A., et al.
    • Journal Title

      Heart Rhythm

      Volume: 17 Issue: 5 Pages: 768-776

    • DOI

      10.1016/j.hrthm.2019.11.026

    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.2020

    • Author(s)
      Van Bulck, L., Goossens, E., Luyckx K., et al.
    • Journal Title

      BMC Health Services Research

      Volume: 20 Issue: 1 Pages: 496-496

    • DOI

      10.1186/s12913-020-05361-9

    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Employment status and contributing factors among adults with congenital heart disease in Japan2020

    • Author(s)
      Enomoto J, Mizuno Y, Okajima Y, Kawasoe Y, Morishima H, Tateno S.
    • Journal Title

      Pediatrics International

      Volume: 62 Issue: 3 Pages: 390-398

    • DOI

      10.1111/ped.14152

    • Related Report
      2019 Research-status Report
    • Peer Reviewed
  • [Journal Article] Employment Status and Contributing Factors for Adults with Congenital Heart Disease2019

    • Author(s)
      榎本淳子・水野芳子・岡嶋良知他
    • Journal Title

      Pediatric Cardiology and Cardiac Surgery

      Volume: 35 Issue: 1 Pages: 18-26

    • DOI

      10.9794/jspccs.35.18

    • NAID

      130007625197

    • ISSN
      0911-1794, 2187-2988
    • Year and Date
      2019-03-01
    • Related Report
      2018 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] Education as important predictor for successful employment in adults with congenital heart disease worldwide.2019

    • Author(s)
      Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P., et al.
    • Journal Title

      Congenital Heart Disease

      Volume: 14 Issue: 3 Pages: 362-371

    • DOI

      10.1111/chd.12747

    • Related Report
      2019 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Perceived health mediates effects of physical activity on quality of life in patients with a Fontan circulation2019

    • Author(s)
      Holbein, C. E., Veldtman, G. R., Moons, P., Kovacs, AH., Luyckx, K., et al.
    • Journal Title

      American Journal of Cardiology

      Volume: 124 Issue: 1 Pages: 144-150

    • DOI

      10.1016/j.amjcard.2019.03.039

    • Related Report
      2019 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe2019

    • Author(s)
      Moons P., Luyckx K., & Dezutter J., et al.
    • Journal Title

      International Journal of Cardiology

      Volume: 274 Pages: 93-99

    • Related Report
      2018 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Physical activity-related drivers of perceived health status in adults with congenital heart disease. American Journal of Cardiology2018

    • Author(s)
      Ko, J. M., White, K. S., Kovacs, A. H., & Tecson, K. M., et al.
    • Journal Title

      American Journal of Cardiology

      Volume: 122 Pages: 1437-1442

    • Related Report
      2018 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation2018

    • Author(s)
      Holbein, C.E., Fogleman, N.D., Hommel, K., & Apers, S., et al.
    • Journal Title

      Congenital Heart Disease

      Volume: 13 Issue: 3 Pages: 392-400

    • DOI

      10.1111/chd.12583

    • Related Report
      2018 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Geographical variation and predictors of physical activity level in adults with congenital heart disease2018

    • Author(s)
      Larsson L., Johansson B., & Sandberg C., et al.
    • Journal Title

      International journal of cardiology. Heart & vasculature

      Volume: 22 Pages: 20-25

    • Related Report
      2018 Research-status Report
    • Peer Reviewed
  • [Journal Article] Illness perceptions in adult congenital heart disease: A multi-center international study.2017

    • Author(s)
      Rassar, J., Apers, S., & Kovacs, A. H., et al.
    • Journal Title

      International Journal of cardiology

      Volume: 224 Pages: 130-138

    • DOI

      10.1016/j.ijcard.2017.06.072

    • Related Report
      2017 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.2017

    • Author(s)
      Fogleman, N.D., Apers, S., & Moons, P., et al.
    • Journal Title

      American Heart Journal

      Volume: 193 Pages: 55-62

    • DOI

      10.1016/j.ahj.2017.07.019

    • Related Report
      2017 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Presentation] 先天性心疾患患者の幼児期から成人期に至る発達プロセス:複線径路等至性モデルを用いて2022

    • Author(s)
      榎本淳子
    • Organizer
      第58回日本小児循環器学会総会・学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] From childhood to adulthood: the relationship between CHD patients and their parents2021

    • Author(s)
      Junko Enomoto
    • Organizer
      The 8th Congress of the Asia-Pacific Pediatric Cardiac Society
    • Related Report
      2021 Research-status Report
    • Int'l Joint Research / Invited
  • [Presentation] 社会的文脈からみた子どもの発達2021

    • Author(s)
      榎本淳子
    • Organizer
      第57回日本小児循環器学会総会・学術集会
    • Related Report
      2021 Research-status Report
    • Invited
  • [Presentation] 成人先天性心疾患患者のQuality of lifeとメンタルヘルス2020

    • Author(s)
      榎本淳子
    • Organizer
      第22回日本成人先天性心疾患学会総会・学術集会
    • Related Report
      2019 Research-status Report
    • Invited
  • [Presentation] 大人になった先天性心疾患患者への心理学的アプローチ2019

    • Author(s)
      榎本淳子
    • Organizer
      第21回成人先天性心疾患学会総会学術集会 市民公開講座
    • Related Report
      2018 Research-status Report
    • Invited
  • [Presentation] 教育講座:ACHD診療に重要な心理の問題2019

    • Author(s)
      榎本淳子
    • Organizer
      第21回成人先天性心疾患学会総会学術集会
    • Related Report
      2018 Research-status Report
    • Invited
  • [Presentation] 成人先天性心疾患患者の就業状況とその背景要因2018

    • Author(s)
      榎本淳子
    • Organizer
      第54回日本小児循環器学会総会・学術集会
    • Related Report
      2018 Research-status Report
  • [Presentation] 成人期への移行―発達の視点から―2018

    • Author(s)
      榎本淳子
    • Organizer
      第56回全国大学保健管理研究集会
    • Related Report
      2018 Research-status Report
    • Invited
  • [Presentation] 国の社会資源が成人先天性心疾患患者の不安・うつに及ぼす影響 ― 国際調査の結果から ―2017

    • Author(s)
      榎本淳子
    • Organizer
      第53回日本小児循環器学会総会・学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] The impact of heart disease functional status on the life of adult patients with congenital heart disease.2017

    • Author(s)
      Enomoto, J., Mizuno, Y.
    • Organizer
      7th World Congress of Pediatric Cardiology and Cardiac Surgery
    • Related Report
      2017 Research-status Report
    • Int'l Joint Research
  • [Presentation] Employment status and psychosocial issues among adults with congenital heart disease in Japan.2017

    • Author(s)
      Enomoto, J., Mizuno, Y.
    • Organizer
      Psychosocial Working Group of the Association for European Paediatric and Congenital Cardiology
    • Related Report
      2017 Research-status Report
    • Int'l Joint Research
  • [Book] エビデンスベースの教育心理学-心身の発達と学習の過程2020

    • Author(s)
      榎本淳子・藤澤文
    • Total Pages
      210
    • Publisher
      ナカニシや出版
    • ISBN
      9784779514777
    • Related Report
      2020 Research-status Report
  • [Book] 必携:生徒指導と教育相談2018

    • Author(s)
      渡辺弥生・西山久子(編著)
    • Total Pages
      190
    • Publisher
      北樹出版
    • ISBN
      9784779305726
    • Related Report
      2018 Research-status Report

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Published: 2017-04-28   Modified: 2024-01-30  

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