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Study of a model to support children's life at home focusing on their self-care ability

Research Project

Project/Area Number 17K12380
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionKansai Medical University

Principal Investigator

HARA Akemi  関西医科大学, 看護学部, 講師 (70613800)

Co-Investigator(Kenkyū-buntansha) 河俣 あゆみ  兵庫県立大学, 看護学部, 准教授 (40743224)
Project Period (FY) 2017-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥3,900,000 (Direct Cost: ¥3,000,000、Indirect Cost: ¥900,000)
Fiscal Year 2019: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2018: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2017: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywordsこども / 医療的ケア / 在宅支援 / セルフケア / 家族 / 看護実践 / 在宅生活 / 生活支援プログラム / 看護学 / こどもの在宅支援
Outline of Final Research Achievements

The purpose of this study was to explore with families and nurses the support necessary for children who need medical care to live at home, focusing on the children's lives, and to develop a support program.
The actual situation and issues of hospital discharge support were examined through interviews with the families and nurses of the children, and a draft model for home support was created by reconsidering the interview survey and practical hospital discharge support regarding life after discharge and hospital discharge from the early stage of NICU hospitalization.
The draft of the home support model was divided into five periods from the early stage of NICU admission to the start of life at home, and the necessary self-care for the child in each period was examined, and what the nursing staff and other supporters should do to support the child in each period.

Academic Significance and Societal Importance of the Research Achievements

近年の周産期・小児医療の診断・治療や新生児へのエビデンスに基づいた看護実践により、重症新生児の致命率は向上する一方で、疾患や障がいにともなう医療的ケアを必要とするこどもも増加した。さらに、NICUでの長期入院が社会問題となり、在宅移行に向けた退院調整や退院支援の重要性が高まっている。
医療的ケアを必要とするこどもの生活は、生命に直結するケアの継続が必要であるため、母親を中心とした家族の育児負担は大きい。こども自身のセルフケアに着目した支援を具体的に提示することで、こどもの成長発達を可視化し看護師などの支援者と共に目標を級友することができると考えている。

Report

(6 results)
  • 2021 Annual Research Report   Final Research Report ( PDF )
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • 2017 Research-status Report
  • Research Products

    (2 results)

All 2019

All Presentation (2 results)

  • [Presentation] 医療的ケアを必要とするこどもの養育者が体験したこどもの在宅支援とその課題の検討2019

    • Author(s)
      原朱美、河俣あゆみ、加藤令子、片田範子
    • Organizer
      日本小児看護学会 第29回学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] 看護師のこどもを主体とした在宅移行支援2019

    • Author(s)
      河俣あゆみ、原朱美、加藤令子、片田範子
    • Organizer
      日本小児看護学会 第29回学術集
    • Related Report
      2019 Research-status Report

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Published: 2017-04-28   Modified: 2023-01-30  

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