A model of end-of-life home care using the pamphlet for families with terminally ill patients at home

• Project/Area Number: 17K12527
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Community health nursing
• Research Institution: Saga University
• Principal Investigator: Kumagai Yuki 佐賀大学, 医学部, 准教授 (10382433)
• Co-Investigator(Kenkyū-buntansha): 室屋 和子 佐賀大学, 医学部, 准教授 (50299640) ; 田渕 康子 佐賀大学, 医学部, 教授 (90382431)
• Project Period (FY): 2017-04-01 – 2023-03-31
• Project Status: Completed (Fiscal Year 2022)
• Budget Amount: ¥2,860,000 (Direct Cost: ¥2,200,000、Indirect Cost: ¥660,000); Fiscal Year 2019: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000); Fiscal Year 2018: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000); Fiscal Year 2017: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
• Keywords: 看取りのパンフレット / 在宅ケア / 生活の質

Outline of Final Research Achievements

In this study, we aimed to clarify the effective use of pamphlets for families with terminally ill patients at home, including evaluation by interview. However, due to the COVID-19 pandemic preventative measures, it was difficult to conduct interviews. Therefore, a model of end-of-life home care using the pamphlet was developed based on a nationwide questionnaire survey of home-visit nursing administrators. This model is cyclical as the utility and efficacy of end-of-life care pamphlets for home care are determined by the patient, family, organizational factors, and whether the outcome of using the pamphlets is positive or negative for the family and home-visit nurses.

Academic Significance and Societal Importance of the Research Achievements

看取りのパンフレットの有用性はこれまでの研究で認められているものの，看取りのパンフレットを使用した終末期在宅ケアモデルは開発されていない。さらに，がん患者の家族と非がん患者の家族に対する看取りのパンフレットの使用状況も明らかにされていない。本研究で作成した「看取りのパンフレットを用いた終末期在宅ケアモデル」は，家族と医療従事者に対する肯定的なアウトカムを得るための方略を具体的に示す重要な知見となりうる。

Research Products

• [Journal Article] 終末期在宅療養を支える看取りのパンフレット使用の実態 がん患者の家族と非がん患者の家族について (2021)
  • Author(s): 熊谷有記、田渕康子、室屋和子
  • Journal Title: Palliative Care Research Volume: 16 Pages: 139-145
  • NAID: 130008036769
  • Peer Reviewed
• [Presentation] Current status of educational pamphlets for families of terminally ill patients at home (2020)
  • Author(s): Kumagai Yuki, Tabuchi Yasuko, Muroya Kazuko
  • Organizer: The 6th International Nursing Research Conference of world academy of nursing science
  • Int'l Joint Research
• [Presentation] Utilization rate of and important considerations related to pamphlets for families of terminally ill patients at home (2019)
  • Author(s): Kumagai Y, Tabuchi Y, Muroya K
  • Organizer: 22nd East Asian Forum of Nursing Scholars (EAFONS) 2019
  • Int'l Joint Research