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Creation of tools to promote the effective use of respite care for children with severe motor and intellectual disabilities at home and verification of their effectiveness

Research Project

Project/Area Number 17K17489
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionSt. Luke's International University

Principal Investigator

NISHIGAKI Kaori  聖路加国際大学, 大学院看護学研究科, 准教授 (90637852)

Project Period (FY) 2017-04-01 – 2021-03-31
Project Status Completed (Fiscal Year 2020)
Budget Amount *help
¥4,030,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥930,000)
Fiscal Year 2019: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2018: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2017: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywords小児看護 / 家族看護 / 重症心身障害児 / レスパイトケア / 家族 / 看護学
Outline of Final Research Achievements

The following was conducted with the aim of examining nursing care for the effective use of respite care for children with severe motor and intellectual  disabilities by their families.
First, we developed the Japanese version of The impact on family scale, which measures the impact of raising children with severe motor and intellectual disabilities on the family. This scale enables us to measure the impact of caring for a child with health problems on the family and the impact of caring for the child on the family.
Next, we created a leaflet to promote the use of respite care. Through a detailed review of the literature, we organized and described the results of previous studies, and made the contents suitable for use in each family's situation. Through hearing with experts, we conducted a preliminary verification of the effectiveness of the leaflet.

Academic Significance and Societal Importance of the Research Achievements

重症心身障害児の養育による家族への影響をThe impact on family scale日本語版で的確に測定が可能となった。その結果、重症心身障害児の家族特有のケアニーズに基づいた効果的なケア提供をさらに充実させることが可能となった。
またレスパイトケア活用を促すリーフレットは、各家族の状況に応じたケアを考えるために、臨床現場で活用可能なツールである。リーフレットを用いることで、レスパイトケアの活用が促進され、在宅療養を家族が過度な負担を抱えることなく継続できる状況を整えることにつながることが期待される。

Report

(5 results)
  • 2020 Annual Research Report   Final Research Report ( PDF )
  • 2019 Research-status Report
  • 2018 Research-status Report
  • 2017 Research-status Report
  • Research Products

    (7 results)

All 2021 2020

All Journal Article (2 results) Presentation (5 results) (of which Int'l Joint Research: 1 results)

  • [Journal Article] 在宅重症心身障害児家族のレスパイトケア利用に関する意思決定支援2020

    • Author(s)
      西垣佳織
    • Journal Title

      第67回日本小児保健協会学術集会抄録集

      Volume: 79 Pages: 202-202

    • Related Report
      2020 Annual Research Report
  • [Journal Article] Impact on Family Scale日本語版の開発2020

    • Author(s)
      西垣佳織, 福冨理佳, 小林京子
    • Journal Title

      第25回聖路加看護学会学術大会 抄録

      Volume: 25 Pages: 38-38

    • Related Report
      2020 Annual Research Report
  • [Presentation] The effects of respite care for severely disabled children at home: a systematic review2021

    • Author(s)
      Nishigaki K, Suzuki S, Ota E.
    • Organizer
      15th International Family Nursing Conference
    • Related Report
      2020 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 市民対象学習会参加者の育児ストレスおよびQoLの実態報告2021

    • Author(s)
      西垣佳織, 福富理佳, 賀数勝太, 小林京子
    • Organizer
      日本小児看護学会 第31回学術集会
    • Related Report
      2020 Annual Research Report
  • [Presentation] 在宅重症心身障害児家族のレスパイトケア利用に関する意思決定支援2020

    • Author(s)
      西垣佳織
    • Organizer
      日本小児保健協会学術集会
    • Related Report
      2020 Annual Research Report
  • [Presentation] 在宅重症心身障害児を対象とした レスパイトケア効果の検証 :系統的レビュープロトコル2020

    • Author(s)
      西垣佳織, 鈴木征吾, 大田えりか
    • Organizer
      第40回日本看護科学会
    • Related Report
      2020 Annual Research Report
  • [Presentation] 在宅重症心身障害児家族のレスパイトケア利用に関する意思決定支援2020

    • Author(s)
      西垣 佳織
    • Organizer
      第67回日本小児保健協会学術集会
    • Related Report
      2019 Research-status Report

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Published: 2017-04-28   Modified: 2022-01-27  

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