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The Structure of Disease Information Provided by Mothers to Their Children with Congenital Heart Disease until School Age

Research Project

Project/Area Number 17K17490
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionNagoya City University

Principal Investigator

Endo Shinsaku  名古屋市立大学, 大学院看護学研究科, 講師 (60750883)

Project Period (FY) 2017-04-01 – 2021-03-31
Project Status Completed (Fiscal Year 2020)
Budget Amount *help
¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2020: ¥130,000 (Direct Cost: ¥100,000、Indirect Cost: ¥30,000)
Fiscal Year 2019: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2018: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2017: ¥130,000 (Direct Cost: ¥100,000、Indirect Cost: ¥30,000)
Keywords先天性心疾患 / 病気説明 / 母親 / 学童 / 社会適応能力 / 先天性疾患 / 学童期 / 小児看護
Outline of Final Research Achievements

The first study clarified the process of disease explanation by mothers for their children with congenital heart disease until school age, and the "understanding of the disease" and the " factors of information selection that increase and expand with child’s growth " in the process were considered to be the implementation criteria for disease explanation from mothers to their children.
In the second study, it was clarified that the criteria consisted of three factors: the first factor "mother's explanatory communication skills," the second factor "child's explanatory receptivity," and the third factor "child's explanatory access literacy"; that "child's explanatory receptivity" was related to child's "language skills" and "social life skills," and that "child's explanatory access literacy" was related to child's "language skills" and "daily life skills.

Academic Significance and Societal Importance of the Research Achievements

先天性心疾患をもつ子どもにとって、母親からの病気説明は重要な病気の情報源である。母親は子どもの学童期の成長にともなって病気説明に難しさを感じるようになり、思春期を迎えた子どもの病気理解は不十分な現状が報告されるが、病気説明の全体的な概念構造は明らかにされていなかった。
本研究では、子どもの学童期までの成長発達にともなったプロセスと、学童期の成長発達で重要な社会適応能力との関連を段階的に明らかにし、子どもの成長発達に配慮した支援方法を示唆した。これは子ども自身が病気理解を向上し、セルフケアや自我同一性確立など、病気を持ちながら成長・自立していく上で重要な要素を補う一助となると考える。

Report

(5 results)
  • 2020 Annual Research Report   Final Research Report ( PDF )
  • 2019 Research-status Report
  • 2018 Research-status Report
  • 2017 Research-status Report
  • Research Products

    (6 results)

All 2021 2020 2019 2018

All Journal Article (1 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (5 results)

  • [Journal Article] The process of disease information provided by mothers to their children with congenital heart disease until school age2019

    • Author(s)
      遠藤 晋作、上田 敏丈、堀田 法子
    • Journal Title

      Journal of Japanese Society of Child Health Nursing

      Volume: 28 Issue: 0 Pages: 274-283

    • DOI

      10.20625/jschn.28_274

    • NAID

      130007753815

    • ISSN
      1344-9923, 2423-8457
    • Related Report
      2019 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] 先天性心疾患をもつ学童の社会適応能力が母親による病気説明の実施基準に与える影響-医学的知識の説明に焦点を当てて-2021

    • Author(s)
      遠藤晋作,樋口倫代,堀田法子
    • Organizer
      第68回日本小児保健協会学術集会
    • Related Report
      2020 Annual Research Report
  • [Presentation] 先天性心疾患をもつ学童期前半の子どもに対する母親からの病気説明の実際―1事例を通したSCATによる検討―2020

    • Author(s)
      遠藤晋作,大賀満月,鈴木琴子,上田敏丈,堀田法子
    • Organizer
      第67回日本小児保健協会学術集会
    • Related Report
      2020 Annual Research Report
  • [Presentation] 母親が先天性心疾患児に説明をする病気関連情報の構成―SCATを用いた検討―2019

    • Author(s)
      遠藤晋作、上田敏丈、堀田法子
    • Organizer
      日本小児看護学会第29回学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] 先天性心疾患をもつ学童期までの子どもに対して母親が行う病気説明の構造―SCATを用いた1事例による検討―2018

    • Author(s)
      遠藤晋作,上田敏丈,堀田法子
    • Organizer
      日本小児看護学会第28回学術集会
    • Related Report
      2018 Research-status Report
  • [Presentation] 先天性心疾患をもつ学童期までの子どもに対して母親が行う病気説明の構造―SCATを用いた1事例による検討―2018

    • Author(s)
      遠藤晋作 上田敏丈 堀田法子
    • Organizer
      日本小児看護学会第28回学術集会
    • Related Report
      2017 Research-status Report

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Published: 2017-04-28   Modified: 2022-01-27  

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