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Development of digital tools to support health management of childhood cancer survivors

Research Project

Project/Area Number 17K19807
Research Category

Grant-in-Aid for Challenging Research (Exploratory)

Allocation TypeMulti-year Fund
Research Field Society medicine, Nursing, and related fields
Research InstitutionMie University

Principal Investigator

Hori Hiroki  三重大学, 医学系研究科, 教授 (40252366)

Co-Investigator(Kenkyū-buntansha) 豊田 秀実  三重大学, 医学系研究科, 准教授 (60525327)
Project Period (FY) 2017-06-30 – 2020-03-31
Project Status Completed (Fiscal Year 2019)
Budget Amount *help
¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2018: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2017: ¥3,250,000 (Direct Cost: ¥2,500,000、Indirect Cost: ¥750,000)
Keywords小児がん / がん告知 / 小児がん経験者 / 晩期合併症 / 長期フォローアップ / 健康管理意識 / 患者教育 / 教育用ゲーム / 病名告知 / デジタルツール
Outline of Final Research Achievements

This study revealed the challenging tasks in long-term follow-up for childhood cancer survivors and proposed the remedial measures. The practice of cancer disclosure to children steadily increased for the last 20 years in Japanese institutions, but the performing rate for younger children remained low. The gap on hope for truth-telling between parents and children was not changed for 20 years. Cancer education for the society should be enhanced to improve this situation. The major pediatric cancer centers in Japan take care of approximately 300 patients per year averagely and regard the transition to adult clinics and information provision as issues to be work on. This study also produce a novel educational program for the patients using game tools. The program was proved to be effective for increases in their health management awareness and knowledges on late effects.

Academic Significance and Societal Importance of the Research Achievements

本研究では、日本における子どもを対象にしたがん告知について、その実施率と社会意識の歴史的変遷を明らかにすることで、小児がん患児の診療と長期フォローアップにおける課題を抽出し、解決策を提言した。特に、本邦も批准している子どもの権利条約に基づく子どもの権利の尊重に関する課題を明らかにし、改善に向けての方向性を提示した。さらに、新しい患者教育の方策として、教育用ゲームツールを開発し、その有効性の確認と今後の活用方法の提言を行った。この研究成果を用いて、小児がん経験者への患者教育の充実を図ることができると考える。

Report

(4 results)
  • 2019 Annual Research Report   Final Research Report ( PDF )
  • 2018 Research-status Report
  • 2017 Research-status Report
  • Research Products

    (4 results)

All 2020 2018

All Presentation (4 results) (of which Int'l Joint Research: 1 results,  Invited: 1 results)

  • [Presentation] 小児がん患児への病名告知に対する子どもと親との認識の隔たり;過去 20年間の変化2020

    • Author(s)
      松井帆波, 矢野加那子, 太田あす香, 舛本大輔, 冨中美幸, 奥村陽介, 岡村 聡, 栗原康輔,堀 浩樹.
    • Organizer
      第123回日本小児科学会学術集会
    • Related Report
      2019 Annual Research Report
  • [Presentation] 本邦における小児がん患児への病名告知の変化2020

    • Author(s)
      太田あす香, 松井帆波, 矢野加那子, 舛本大輔, 冨中美幸, 奥村陽介, 岡村 聡, 栗原康輔,堀 浩樹.
    • Organizer
      第123回日本小児科学会学術集会
    • Related Report
      2019 Annual Research Report
  • [Presentation] 子どもの病気に関する知識と病気の説明に対する希望2020

    • Author(s)
      矢野加那子, 松井帆波, 太田あす香, 舛本大輔, 冨中美幸, 奥村陽介, 岡村 聡, 栗原康輔,堀 浩樹.
    • Organizer
      第123回日本小児科学会学術集会
    • Related Report
      2019 Annual Research Report
  • [Presentation] Changes in the practice of truth-telling to cancer children and the social awareness in Japan over the last 20 years.2018

    • Author(s)
      Hiroki Hori
    • Organizer
      第50回国際小児がん学会(50th SIOP)
    • Related Report
      2018 Research-status Report
    • Int'l Joint Research / Invited

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Published: 2017-07-21   Modified: 2021-02-19  

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