| Project/Area Number |
18300302
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| Research Category |
Grant-in-Aid for Scientific Research (B)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
Sociology/History of science and technology
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| Research Institution | Ritsumeikan University |
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Principal Investigator |
MATSUBARA Yoko Ritsumeikan University, 大学院・先端総合学術研究科, 教授 (80303006)
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| Co-Investigator(Kenkyū-buntansha) |
KOIZUMI Yoshiyuki 立命館大学, 大学院・先端総合学術研究科, 教授 (10225352)
TATEIWA Shin'ya 立命館大学, 大学院・先端総合学術研究科, 教授 (30222110)
SATO Tasuya 立命館大学, 文学部, 教授 (90215806)
MUTO Kaori 東京大学, 医科学研究所, 准教授 (50345766)
MIZUKI Shodo 立命館大学, 衣笠総合研究機構, 研究員
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| Research Collaborator |
KAWAGUCHI Yumiko 日本ALS協会, 理事
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| Project Period (FY) |
2006 – 2008
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| Project Status |
Completed (Fiscal Year 2008)
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| Budget Amount *help |
¥13,250,000 (Direct Cost: ¥11,000,000、Indirect Cost: ¥2,250,000)
Fiscal Year 2008: ¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2007: ¥4,940,000 (Direct Cost: ¥3,800,000、Indirect Cost: ¥1,140,000)
Fiscal Year 2006: ¥3,500,000 (Direct Cost: ¥3,500,000)
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| Keywords | 患者 / 科学コミュニケーション / 生命倫理 / アシスティブ・テクノロジー / ピア・サポート / 学科コミョニケーション / 現場知 / 障害者 / 稀少疾患 / インターネット / 患者アドボカシー / 支援 / 先端医療 / 分配的正義 / 研究開発 |
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| Research Abstract |
With the aim of developing a social system model that will lead to the establishment of a renewed relationship between science and technology and patients, basic research was conducted jointly with intractable neurological disease patients and their families. Research concerning the use of ICTs by ALS patients with communicative disorders confirmed that patients? local knowledge of such technology helps to improve QOL and contributes to the advancement of engineering and bioethics education. In order to explore the possibilities of patient-led science and technology culture, a multi-faceted approach was used to study QOL concepts, disease-related suffering, and patient support.
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