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Development and feasibility study of a family empowerment program for caregivers who are rearing the children with disabilities at home.

Research Project

Project/Area Number 18H03093
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Review Section Basic Section 58070:Lifelong developmental nursing-related
Research InstitutionUniversity of Tsukuba

Principal Investigator

Wakimizu Rie  筑波大学, 医学医療系, 准教授 (70510121)

Co-Investigator(Kenkyū-buntansha) 松澤 明美  茨城キリスト教大学, 看護学部, 教授 (20382822)
佐藤 伊織  東京大学, 大学院医学系研究科(医学部), 講師 (20622252)
藤岡 寛  茨城県立医療大学, 保健医療学部, 教授 (90555327)
西垣 佳織  聖路加国際大学, 大学院看護学研究科, 准教授 (90637852)
鈴木 征吾  東京医科大学, 医学部, 助教 (10847825)
Project Period (FY) 2018-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥17,030,000 (Direct Cost: ¥13,100,000、Indirect Cost: ¥3,930,000)
Fiscal Year 2021: ¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2020: ¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2019: ¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Fiscal Year 2018: ¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Keywords家族エンパワメントプログラム / 家族支援 / ケアラー支援 / 障害児 / ピアサポート / プログラム開発 / 比較介入研究 / 家族ケア / 家族エンパワメント / オンラインプログラム介入 / プログラム介入効果 / 介入プログラム / 家族 / 介入効果測定 / 在宅 / 重症児 / 家族看護 / 障害を有する子ども / 在宅看護 / 家族ケアプログラム / 障害 / エンパワメント / コミュニティ / 養育 / 社会的繋がり / 家族介入 / 効果検証 / 社会資源 / 介護負担 / サービスシステム
Outline of Final Research Achievements

Based on the Family Empowerment Model identified in previous research projects, the program focused on approaches to "utilization of social resources," "sense of burden of caregiving," and multiple factors related to these factors, and was designed to enable participants to coordinate care focusing on "family (within)," "service system," and "community. The program incorporated exercises and role-plays, and involved several patient family associations as collaborators in the development of the program, which allowed for a variety of opinions to be expressed from the perspective of the patients involved.
After conducting a pre-test, we divided the patients into an intervention group and a wait-list-control group based on the CCT design, and verified the effectiveness of the Family Empowerment Program.

Academic Significance and Societal Importance of the Research Achievements

全国数線規模の実態調査の遂行により、家族エンパワメントを規定する背景として「社会資源の活用」をコントロールできるようになり、「介護負担感」を下げるよう取り組める家族が、家族エンパワメントが高いことが我々の研究班で実証された。本研究では家族エンパワメントを規定する上述2因子に効果的に介入するプログラム(全4回、オンライン)を開発・実装することで家族エンパワメントを高めることができるか、また、家族エンパワメントの3側面(「家族(内)」「サービスシステム」「コミュニティ」)のどこがどの時点でエンパワーされるのかを検証した。
基盤研究Aへの採択が決まっており、本プログラムの継続的な社会実装が期待される。

Report

(5 results)
  • 2021 Annual Research Report   Final Research Report ( PDF )
  • 2020 Annual Research Report
  • 2019 Annual Research Report
  • 2018 Annual Research Report
  • Research Products

    (22 results)

All 2022 2021 2020 2019 2018 Other

All Journal Article (8 results) (of which Peer Reviewed: 8 results,  Open Access: 3 results) Presentation (12 results) (of which Int'l Joint Research: 8 results) Remarks (2 results)

  • [Journal Article] Development of family empowerment programs for caregivers of children with disabilities at home: Interim report up to "implementation of pretesting"2022

    • Author(s)
      Rie Wakimizu, Hiroshi Fujioka, Kaori Nishigaki, Iori Sato, Naoko Iwata, Akemi Matsuzawa
    • Journal Title

      Journal of International Nursing Research

      Volume: 1 Issue: 1 Pages: e2021-0004-e2021-0004

    • DOI

      10.53044/jinr.2021-0004

    • NAID

      130008163533

    • ISSN
      2436-1348, 2436-3448
    • Year and Date
      2022-02-24
    • Related Report
      2021 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] 障害児の療育と家族支援 障害児を療育する家族のエンパワメント2021

    • Author(s)
      涌水理恵, 藤岡寛
    • Journal Title

      精神科

      Volume: 39(5) Pages: 611-619

    • Related Report
      2021 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Quality of Life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross-sectional study2020

    • Author(s)
      Rie Wakimizu, Hiroshi Fujioka, Kaori Nishigaki, Akemi Matsuzawa
    • Journal Title

      Nursing and Health Sciences

      Volume: 22 Issue: 4 Pages: 977-987

    • DOI

      10.1111/nhs.12755

    • NAID

      120007132705

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 学齢在宅重症心身障害児の主養育者とその配偶者それぞれのQOLとその関連要因2019

    • Author(s)
      藤岡寛、涌水理恵、西垣佳織, 松澤明美, 岸野美由紀
    • Journal Title

      日本重症心身障害学会誌

      Volume: 44(1) Pages: 169-176

    • NAID

      130008068373

    • Related Report
      2019 Annual Research Report 2018 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 在宅生活する学齢期の障がい児を育てる 母親の就労とその関連要因2019

    • Author(s)
      松澤明美、涌水理恵、藤岡寛、西垣佳織、佐藤奈保、岩田直子、岸野美由紀、山口慶子、佐々木実輝子
    • Journal Title

      小児保健研究

      Volume: 78(4) Pages: 334-342

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 在宅生活を送る重症心身障害児の養育者が抱く療育支援ニーズの実態2019

    • Author(s)
      桒原雛子、山口慶子、涌水 理恵
    • Journal Title

      日本重症心身障害学会雑誌

      Volume: 44(3) Pages: 519-527

    • NAID

      130008164702

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 在宅重症心身障害児の家族エンパワメントに関する実証的モデルの構築2018

    • Author(s)
      涌水理恵、藤岡寛、西垣佳織、松澤明美、岩田直子、岸野美由紀、山口慶子、佐々木実輝子
    • Journal Title

      小児保健研究

      Volume: 77(5) Pages: 423-432

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Family empowerment and associated factors in Japanese families raising a child with severe motor and intellectual disabilities2018

    • Author(s)
      Wakimizu Rie、Fujioka Hiroshi、Nishigaki Kaori、Matsuzawa Akemi
    • Journal Title

      International Journal of Nursing Sciences

      Volume: 5 Issue: 4 Pages: 370-376

    • DOI

      10.1016/j.ijnss.2018.09.006

    • NAID

      120007128487

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed / Open Access
  • [Presentation] Regional Comparison of Family Empowerment in Japan.2020

    • Author(s)
      Hinako Kuwahara, Hiroshi Fujioka, Kaori Nishigaki, Akemi Matsuzawa,Rie Wakimizu
    • Organizer
      The 23rd East Asian Forum of Nursing Scholars
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Burden and available support for primary caregivers of children with severe motor and intellectual disabilities in Japan:A Regional comparative analysis.2020

    • Author(s)
      Ayumi Goto, Hiroshi Fujioka, Kaori Nishigaki, Akemi Matsuzawa, Rie Wakimizu
    • Organizer
      The 23rd East Asian Forum of Nursing Scholars
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Utilization of Social Capital by families with Severely Disabled Children:Results from a National Survey in Japan.2020

    • Author(s)
      Satoe Iki., Hiroshi Fujioka, Kaori Nishigaki, Akemi Matsuzawa, Rie Wakimizu
    • Organizer
      The 23rd East Asian Forum of Nursing Scholars
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 交流集会:在宅で重症児を養育する家族へのエンパワメントプログラムの開発報告と全国展開に向けた検討2020

    • Author(s)
      涌水理恵、藤岡寛、西垣佳織、松澤明美、佐藤伊織、市川睦、海野潔美、後藤あゆみ、壹岐聡恵
    • Organizer
      日本家族看護学会 第27回学術集会
    • Related Report
      2019 Annual Research Report
  • [Presentation] Employment status and health-related quality of life in single and married mothers caring for school-aged children with disabilities in Japan2020

    • Author(s)
      Akemi Matsuzawa, Rie Wakimizu, Kaori Nishigaki, Hiroshi Fujioka, Naho Sato, Naoko Iwata, Miyuki Kishino, Keiko Yamaguchi, Mikiko Sasaki
    • Organizer
      The 6th International Research Conference of World Academy of Nursing Science
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 交流集会「障害児のきょうだいへの支援 ―知見の統合をはかり、具体的方略を探る―」2019

    • Author(s)
      藤岡寛、涌水理恵、佐藤伊織、海野潔美、柿﨑靖子、宮本まり子、西垣佳織、松澤明美、後藤あゆみ、壹岐聡恵
    • Organizer
      日本家族看護学会第26回学術集会
    • Related Report
      2019 Annual Research Report
  • [Presentation] Family Empowerment of families raising children with severe motor and intellectual disabilities in special schools for physically handicapped children in Japan.2019

    • Author(s)
      Rie Wakimizu, Keiko Yamaguchi, Hiroshi Fujioka, Kaori Nishigaki, Akemi Matsuzawa, Naoko Iwata, Miyuki Kishino.
    • Organizer
      The East Asian Forum of Nursing Scholars
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Support Needs of Primary Caregivers and Their Spouses in Caring for Children with Severe Motor and Intellectual Disabilities (SMID).2019

    • Author(s)
      Hinako Kuwahara, Keiko Yamaguchi, Rie Wakimizu.
    • Organizer
      The East Asian Forum of Nursing Scholars
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 在宅重症心身障害児家族の家族エンパワメントの関連要因 学童期と思春期に焦点を当てて2018

    • Author(s)
      山口慶子、涌水理恵、藤岡寛、西垣佳織、佐藤奈保、松澤明美、岩田直子、岸野美由紀、山口慶子、佐々木実輝子
    • Organizer
      日本小児看護学会第28回学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] 障がい児を養育する家族全体への看護支援: 各家族員へのアプローチ.2018

    • Author(s)
      藤岡寛、海野潔美、市川睦、涌水理恵、岸野美由紀、西垣佳織、松澤明美、岸野美由紀、山口慶子、齋藤沙織、秋本和宏
    • Organizer
      日本小児看護学会第28回学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] Family Function perceived by Primary Caregivers raising a Child with Severe Motor and Intellectual Disabilities at home in Japan.2018

    • Author(s)
      Keiko Yamaguchi, Rie Wakimizu, Hinako Kuwahara.
    • Organizer
      Tsukuba global science week 2018
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Presentation] The Effects of Siblings of children with severe motor and intellectual disabilities on Family Empowerment Factors.2018

    • Author(s)
      Hinako Kuwahara, Rie Wakimizu, Keiko Yamaguchi.
    • Organizer
      Tsukuba global science week 2018
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Remarks]

    • URL

      https://shouni-kazoku.jp/

    • Related Report
      2021 Annual Research Report
  • [Remarks] https://shouni-kazoku.jp/

    • Related Report
      2019 Annual Research Report

URL: 

Published: 2018-04-23   Modified: 2023-01-30  

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