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Towards a model for care and support for people with epilepsy and their families in rural Uganda

Research Project

Project/Area Number 18H03442
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Review Section Basic Section 80010:Area studies-related
Research InstitutionHiroshima University (2020-2022)
Kyoto University (2018-2019)

Principal Investigator

Nishi Makoto  広島大学, 人間社会科学研究科(総), 准教授 (10444473)

Co-Investigator(Kenkyū-buntansha) 波佐間 逸博  東洋大学, 社会学部, 教授 (20547997)
佐藤 靖明  大阪産業大学, デザイン工学部, 准教授 (30533616)
杉木 明子  慶應義塾大学, 法学部(三田), 教授 (40368478)
太田 至  京都大学, アフリカ地域研究資料センター, 名誉教授 (60191938)
坂井 紀公子  金沢星稜大学, 人文学部, 准教授 (70722023)
栗本 英世  大阪大学, 人間科学研究科, 教授 (10192569)
武井 弥生  上智大学, 総合人間科学部, 准教授 (40197257)
Project Period (FY) 2018-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2022)
Budget Amount *help
¥16,900,000 (Direct Cost: ¥13,000,000、Indirect Cost: ¥3,900,000)
Fiscal Year 2021: ¥3,380,000 (Direct Cost: ¥2,600,000、Indirect Cost: ¥780,000)
Fiscal Year 2020: ¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2019: ¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2018: ¥4,940,000 (Direct Cost: ¥3,800,000、Indirect Cost: ¥1,140,000)
Keywordsてんかん / 生活環境 / 医療資源 / ケア / 限られた医療資源 / ケアの生態学 / うなづき症候群 / オンコセルカ関連てんかん / 地域に根ざしたリハビリテーション / アチョリ
Outline of Final Research Achievements

In order to identify the knowledge and resources to maintain the quality of life of epileptic patients and their families in rural Uganda, we proposed an interdisciplinary research framework that spans social and health studies. We studied the problems of living with epilepsy in the context of the local communities and examined ways to provide sustainable support in rural Africa, where medical resources are limited. A method to identify the care burden of families with epilepsy and its impact on their livelihood activities has been developed in this project. Remodeling existing tools for supporting people with epilepsy and their families to fit the context of rural northern Uganda has also been a central aspect of the project activities.

Academic Significance and Societal Importance of the Research Achievements

てんかん患者およびその家族の生活の質の向上を目的とした既存の支援手法は、いずれも欧米や日本などの産業化社会における生活文化と医療福祉制度を前提としたものである。これに対して本研究では、ウガンダ農村で暮らす患者とその家族の生活環境および生業活動を踏まえた支援の方法について検討した。この研究は、医療資源の限られたアフリカ農村において、てんかんなどの脳神経疾患を抱える患者とその家族の生活の質の向上に寄与するものである。

Report

(5 results)
  • 2022 Final Research Report ( PDF )
  • 2021 Annual Research Report
  • 2020 Annual Research Report
  • 2019 Annual Research Report
  • 2018 Annual Research Report
  • Research Products

    (32 results)

All 2022 2021 2020 2019 2018 Other

All Journal Article (11 results) (of which Int'l Joint Research: 2 results,  Peer Reviewed: 6 results,  Open Access: 8 results) Presentation (11 results) (of which Int'l Joint Research: 4 results,  Invited: 3 results) Book (8 results) Remarks (1 results) Funded Workshop (1 results)

  • [Journal Article] 豆は縁の下の力持ち : 東アフリカのフィールドから2022

    • Author(s)
      坂井紀公子
    • Journal Title

      vesta 食文化誌

      Volume: 125 Pages: 39-42

    • Related Report
      2021 Annual Research Report
  • [Journal Article] Citizenship, Resistance and Animals: Karamoja Region Pastoralists' Resilience against State Violence in Uganda2021

    • Author(s)
      Hazama Itsuhiro
    • Journal Title

      Nomadic Peoples

      Volume: 25 Issue: 2 Pages: 312-328

    • DOI

      10.3197/np.2021.250207

    • Related Report
      2020 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda2020

    • Author(s)
      Latio Lugala Samson Yoane、Nam Nguyen Hai、Shah Jaffer、Smith Chris、Sakai Kikuko、Stonewall Shaban Kato、Idro Richard、Makoto Nishi、Huy Nguyen Tien、Hamano Shinjiro、Moji Kazuhiko
    • Journal Title

      PLOS ONE

      Volume: 15 Issue: 9 Pages: e0238643-e0238643

    • DOI

      10.1371/journal.pone.0238643

    • NAID

      120006988497

    • Related Report
      2020 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] オンコセルカ関連てんかんの究明2020

    • Author(s)
      西真如
    • Journal Title

      Medical Science Digest

      Volume: 46 Pages: 32-35

    • Related Report
      2019 Annual Research Report
  • [Journal Article] レジリエントなアフリカ遊牧社会のマイクロ・エスノグラフィー2020

    • Author(s)
      波佐間逸博
    • Journal Title

      多文化社会研究

      Volume: 6 Pages: 339-372

    • Related Report
      2019 Annual Research Report
    • Open Access
  • [Journal Article] 序:アフリカのレジリエンス:現代社会の困難を克服する創造性とフィールドワーク主義2020

    • Author(s)
      波佐間逸博
    • Journal Title

      多文化社会研究

      Volume: 6 Pages: 291-293

    • Related Report
      2019 Annual Research Report
    • Open Access
  • [Journal Article] Stigma and epilepsy in onchocerciasis-endemic regions in Africa: a review and recommendations from the onchocerciasis-associated epilepsy working group2019

    • Author(s)
      O’Neill Sarah、Irani Julia、Siewe Fodjo Joseph Nelson、Nono Denis、Abbo Catherine、Sato Yasuaki、Mugarura Augustine、Dolo Housseini、Ronse Maya、Njamnshi Alfred K.、Colebunders Robert
    • Journal Title

      Infectious Diseases of Poverty

      Volume: 8 Issue: 1 Pages: 1-11

    • DOI

      10.1186/s40249-019-0544-6

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Rules and Negotiations: Livestock Ownership among the Turkana in Northwestern Kenya2019

    • Author(s)
      Itaru Ohta
    • Journal Title

      African Study Monographs

      Volume: 40 Issue: 2-3 Pages: 109-131

    • DOI

      10.14989/244853

    • NAID

      120006769202

    • ISSN
      0285-1601
    • Related Report
      2019 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] 北部ウガンダ紛争の終焉と平和構築ー現状と今後の課題2019

    • Author(s)
      杉木明子
    • Journal Title

      社会科学研究年報

      Volume: 49 Pages: 209-222

    • NAID

      120007161406

    • Related Report
      2019 Annual Research Report
    • Open Access
  • [Journal Article] Naturalography of Co-Existence among East African Pastoral Societies: An Introductory Overview of Japanese Scholarship2019

    • Author(s)
      SAGAWA, Toru; HAZAMA, Itsuhiro
    • Journal Title

      African Study Monographs

      Volume: 40 (2-3) Pages: 45-75

    • NAID

      120006769199

    • Related Report
      2019 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Resistance and Citizenship Practices among Pastoralists in Northeastern Uganda2018

    • Author(s)
      波佐間 逸博
    • Journal Title

      Japanese Journal of Cultural Anthropology

      Volume: 83 Issue: 2 Pages: 256-273

    • DOI

      10.14890/jjcanth.83.2_256

    • NAID

      130007603648

    • ISSN
      1349-0648, 2424-0516
    • Related Report
      2018 Annual Research Report
    • Peer Reviewed / Open Access
  • [Presentation] ウガンダ北部のうなづき症候群 : 紛争後の環境で起きたてんかん性脳症の流行(シンポジウム コロナの時代に、アフリカの顧みられない熱帯病を顧みる)2022

    • Author(s)
      西真如
    • Organizer
      日本アフリカ学会第59回学術大会
    • Related Report
      2021 Annual Research Report
    • Invited
  • [Presentation] 多言語状況下にあるアフリカ諸国の『英語化』について:東アフリカ・ウガンダ共和国の事例を中心に2021

    • Author(s)
      坂井紀公子
    • Organizer
      大学英語教育学会言語政策研究会年次特別研究会
    • Related Report
      2021 Annual Research Report
  • [Presentation] Citizenship Practice in the Resilience2020

    • Author(s)
      HAZAMA, Itsuhiro
    • Organizer
      International Workshop Thinking Resilience and Development from the “Exceptional” Africa
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Nodding syndrome in northern Uganda: An ecology of care approach2019

    • Author(s)
      Nishi, Makoto, Kiluko Sakai, Yasuaki Sato, Stonewall Kato and Kazuhiko Moji
    • Organizer
      4th African Epilepsy Congress, Entebbe, Uganda
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Citizenship Practices in the Resistance2019

    • Author(s)
      HAZAMA, Itsuhiro
    • Organizer
      IUAES 2019 Inter-Congress
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Appearance of Alterity: Citizenship Practices in the Resistance of Northeastern Ugandan Pastoralists2019

    • Author(s)
      HAZAMA, Itsuhiro
    • Organizer
      International Workshop Resonation of Alterity: Way of Coexistence in Pastoral Society in East Africa
    • Related Report
      2019 Annual Research Report
    • Invited
  • [Presentation] The Household Burden of Onchocerciasis-Associated Epilepsy in Rural Africa2019

    • Author(s)
      Nishi, Makoto
    • Organizer
      First Workshop on Research Cooperation of Humanities and Science for Implementing Global Welfare, Airlangga University Institute of Tropical Diseases, Surabaya, Indonesia, January 8-9, 2019.
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research / Invited
  • [Presentation] An ecology-of-care approach to onchocerciasis-associated epilepsy in Northern Uganda2019

    • Author(s)
      Nishi, Makoto
    • Organizer
      The 3rd Trans-disciplinary Meeting for Nodding Syndrome in East Africa, Kyoto University, Kyoto, Japan, February 27-28, 2019.
    • Related Report
      2018 Annual Research Report
  • [Presentation] Uganda-Japan Nodding Syndrome Network2019

    • Author(s)
      Sato, Yasuaki
    • Organizer
      The 3rd Trans-disciplinary Meeting for Nodding Syndrome in East Africa, Kyoto University, Kyoto, Japan, February 27-28, 2019.
    • Related Report
      2018 Annual Research Report
  • [Presentation] Activities of the community based-organization of families affected by nodding syndrome in a village in Gulu district2019

    • Author(s)
      Sakai, Kikuko
    • Organizer
      The 3rd Trans-disciplinary Meeting for Nodding Syndrome in East Africa, Kyoto University, Kyoto, Japan, February 27-28, 2019.
    • Related Report
      2018 Annual Research Report
  • [Presentation] A Household Survey of a Northern Uganda Community with Onchocerciasis-Associated Epilepsy / Nodding Syndrome (OAE/NS)2018

    • Author(s)
      坂井 紀公子
    • Organizer
      第59回日本熱帯医学会大会、長崎大学、2018年11月9-11日
    • Related Report
      2018 Annual Research Report
  • [Book] African Potentials: Bricolage, Incompleteness and Lifeness2022

    • Author(s)
      Misa Hirano-Nomoto, Husein Inusah, Edward Kirumira, Eisei Kurimoto, Matsuda Motoji, Kennedy Mkutu, Elizabeth Ndunda, Michael Neocosmos, Fransis Nyamnjoh, Yaw Ofosu-kusi, Itaru Ohta et al.
    • Total Pages
      319
    • Publisher
      Bamanda: Langaa RPCIG
    • ISBN
      9789956552306
    • Related Report
      2021 Annual Research Report
  • [Book] アフリカ潜在力が世界を変える2022

    • Author(s)
      松田 素二、フランシス・B・ニャムンジョ、太田 至
    • Total Pages
      462
    • Publisher
      京都大学学術出版会
    • ISBN
      9784814004447
    • Related Report
      2021 Annual Research Report
  • [Book] Development and Subsistence in Globalising Africa: Beyond the Dichotomy2021

    • Author(s)
      Simbarashe Gurukume, Godfrey Hampwaye, Masaya Hara, Mayu Hayakawa, Kazuyo Ideue, Hitomi Kirikoshi, Motoji Matsuda, Garikai Membele, Atsuko Munemura, Linda Namakando, Itaru Ohta et al.
    • Total Pages
      409
    • Publisher
      Bamanda: Langaa RPCIG
    • ISBN
      9789956551576
    • Related Report
      2021 Annual Research Report
  • [Book] 交渉に生を賭ける2021

    • Author(s)
      太田 至
    • Total Pages
      306
    • Publisher
      京都大学学術出版会
    • ISBN
      9784814003167
    • Related Report
      2020 Annual Research Report
  • [Book] 雑草たちの奇妙な声:現場ってなんだ?!2021

    • Author(s)
      磯部卓三、川西史子、林泰子、大野哲也、古村学、川西建登、ベナード・オプド、グラディス・マレシ、エラム・エディンガ、モニウィル・アンビチェ、彌重桃子、田原範子、梅屋潔、坂井紀公子他
    • Total Pages
      464
    • Publisher
      風響社
    • ISBN
      9784894892958
    • Related Report
      2020 Annual Research Report
  • [Book] Citizenship in Motion: South African and Japanese Scholars in Conversation2019

    • Author(s)
      Itsuhiro Hazama, Kiyoshi Umeya, Francis B. Nyamnjoh, Anye-Nkwenti Nyamnjoh, Claire-Anne Lester, Ayanda Manqoyi, Tamara Enomoto, Toshiki Tsuchitori, Noriko Tahara, Gaku Moriguchi, Olivia Joanes, Kongo Minga Mbweck, Zuziwe Nokwanda Msomi, Msakha Mona, Marlon Swai, Harry Garuba
    • Total Pages
      442
    • Publisher
      Langaa RPCIG
    • ISBN
      9789956550685
    • Related Report
      2019 Annual Research Report
  • [Book] 遊牧の思想―人類学がみる激動のアフリカ2019

    • Author(s)
      北村光二、内藤直樹、太田至、曽我亨、杉山祐子、湖中真哉、波佐間逸博、河合香吏、佐川徹、川口博子、目黒紀夫、中村香子、孫暁剛、泉直亮、楠和樹
    • Total Pages
      376
    • Publisher
      昭和堂
    • ISBN
      9784812218242
    • Related Report
      2018 Annual Research Report
  • [Book] シリーズ人間科学2 助ける2019

    • Author(s)
      檜垣立哉、栗本英世、稲場圭信、山中浩司、髙田一宏、杉田映理、篠原一光、山田一憲、井村修、村上靖彦、渥美公秀
    • Total Pages
      272
    • Publisher
      大阪大学出版会
    • ISBN
      9784872596199
    • Related Report
      2018 Annual Research Report
  • [Remarks] ウガンダ農村で生活するてんかん患者とその家族のための包括的ケアのモデル構築

    • URL

      https://www.uj-noddingsyndrome.org/

    • Related Report
      2018 Annual Research Report
  • [Funded Workshop] The 3rd Trans-disciplinary Meeting for Nodding Syndrome in East Africa, Kyoto University, Kyoto, Japan, February 27-28, 2019.2019

    • Related Report
      2018 Annual Research Report

URL: 

Published: 2018-04-23   Modified: 2024-01-30  

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