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Health care decision-making among children who first experienced cancer at primary school age

Research Project

Project/Area Number 18K02487
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 09030:Childhood and nursery/pre-school education-related
Research InstitutionSapporo Medical University

Principal Investigator

Michinobu Ryoko  札幌医科大学, 医療人育成センター, 准教授 (70336410)

Project Period (FY) 2018-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Fiscal Year 2020: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2019: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2018: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Keywords小児がん / 小児がん医療 / 協働意思決定 / 子ども / いのち / 医療福祉学 / 医療人類学 / エスノグラフィ / 意思決定 / ヘルス・インタビュー / 小児医療 / インタビュー / ヘルスケア / 相対的自己 / 参与観察 / 応用人類学
Outline of Final Research Achievements

The children’s wills for their cancer therapy went through the following three processes: being accustomed to the hospital environment, making friends with those who have the same illness or other illnesses, and sharing promises with physicians and nurses for the treatment goals. We found that shared decision-making in pediatric oncology is a form of clinical communication where children can participate more effectively in cancer therapy. We also found that communication related to decision-making between children and physicians/nurses was based on a broader human relationship in the hospital and even after discharge.

Academic Significance and Societal Importance of the Research Achievements

小児がんの協働意思決定の議論において、国際社会では、医療者や親が考える子どもの存在や権利を擁護する立場からの論考が多い。そこには自律的で明確な自己決定権をもつ「個人」として子どもをとらえる西洋社会の思想がある。本研究では、子どもと周囲の人びととの関係性に光をあてたことにより、子どもの存在の意味が社会や文化によって異なり、協働意思決定のアプローチも日本に特有の様相を見せることを明らかにした。

Report

(5 results)
  • 2021 Annual Research Report   Final Research Report ( PDF )
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (17 results)

All 2022 2021 2020 2019 Other

All Journal Article (4 results) (of which Int'l Joint Research: 1 results,  Peer Reviewed: 2 results,  Open Access: 1 results) Presentation (7 results) (of which Int'l Joint Research: 5 results) Book (4 results) Remarks (2 results)

  • [Journal Article] Children’s decision making in cancer therapy: A long‐term observational study2021

    • Author(s)
      Michinobu Ryoko、Yamamoto Masaki、Hori Tsukasa、Mikami Takahiro、Igarashi Keita、Iesato Kotoe、Takebayashi Akira、Tsugawa Takeshi、Kawasaki Yukihiko、Tsutsumi Hiroyuki
    • Journal Title

      Pediatrics International

      Volume: 64 Issue: 1 Pages: 1-10

    • DOI

      10.1111/ped.14700

    • Related Report
      2021 Annual Research Report 2020 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] 治療があり、意思が生まれる――小児がん医療の意思決定2021

    • Author(s)
      道信良子, 五十嵐敬太, 家里琴絵, 竹林晃, 三上孝洋, 酒井好幸, 山本雅樹
    • Journal Title

      地域ケアリング

      Volume: 23(4) Pages: 46-48

    • NAID

      40022573823

    • Related Report
      2021 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 治療があり、意思が生まれるーー小児がん医療の意思決定2021

    • Author(s)
      道信 良子 五十嵐 敬太 家里 琴絵 竹林 晃 三上 孝洋 酒井 好幸 山本 雅樹
    • Journal Title

      地域ケアリング

      Volume: 23(4) Pages: 46-48

    • NAID

      40022573823

    • Related Report
      2020 Research-status Report
  • [Journal Article] 日本の医学教育にグローバルな視野をもつ人類学の研究知見を導入する2019

    • Author(s)
      3.道信良子
    • Journal Title

      コンタクト・ゾーン = Contact zone 京都大学大学院人間・環境学研究科

      Volume: 11 Pages: 334-353

    • NAID

      120006719372

    • Related Report
      2019 Research-status Report
    • Open Access
  • [Presentation] A shared promise: Children’s participation in medical care decisions in a pediatric cancer ward in Japan2021

    • Author(s)
      Michinobu R, Hori T, Yamamoto M Igarashi K, Iesato K, Takebayashi A, Tsutsumi H, Kawasaki Y
    • Organizer
      IPOS 2020 (International Psycho-Oncology Society) 22nd Congress
    • Related Report
      2021 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Examining the long-lasting relationships among parents and their sense of solidarity in shared decision-making concerning pediatric cancer treatment for their children.2021

    • Author(s)
      Michinobu R, Igarashi K, Iesato K, Takebayashi A, Mikami T, Sakai Y, Hori T, Tsutsumi H, Yamamoto M
    • Organizer
      The Society for Applied Anthropology 80th Annual Meeting
    • Related Report
      2021 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Examining the long-lasting relationships among parents and their sense of solidarity in shared decision-making concerning pediatric cancer treatment for their children2021

    • Author(s)
      Michinobu R, Igarashi K, Iesato K, Takebayashi A, Mikami T, Sakai Y, Hori T, Tsutsumi H. Yamamoto M
    • Organizer
      2021 Annual Meeting of the Society for Applied Anthropology
    • Related Report
      2020 Research-status Report
    • Int'l Joint Research
  • [Presentation] Camaraderie in Liminality: Intersectional Approach to Promoting Shared Decision-making in Children’s Oncology2020

    • Author(s)
      Michinobu R, Hori T, Yamamoto M, Igarashi K, Iesato K, Takebayashi A, Tsutsumi H, Kawasaki Y.
    • Organizer
      The Society for Applied Anthropology 80th Annual Meeting
    • Related Report
      2019 Research-status Report
    • Int'l Joint Research
  • [Presentation] 子どもの信頼に応えるー小児がん医療の協働意思決定2019

    • Author(s)
      道信良子, 竹林晃, 家里琴絵, 五十嵐敬太, 山本雅樹, 堀司, 堤裕幸
    • Organizer
      第122回日本小児科学会学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] エスノ/フォトグラフィック・フィクション2019

    • Author(s)
      道信良子
    • Organizer
      日本文化人類学会第53回研究大会
    • Related Report
      2019 Research-status Report
  • [Presentation] Relational sense of self: Children’s shared decision-making in cancer wards2019

    • Author(s)
      MICHINOBU, Ryoko
    • Organizer
      the 79th Annual Meeting of the Society for Applied Anthropology
    • Related Report
      2018 Research-status Report
    • Int'l Joint Research
  • [Book] 「保健医療行動: 文化的背景」『講義と演習で学ぶ保健医療行動科学』第二版2022

    • Author(s)
      道信良子
    • Publisher
      日本保健医療行動科学会
    • Related Report
      2021 Annual Research Report
  • [Book] 「さまざまな、子どものいのち、そして地域共生社会」『健康生活科学』2022

    • Author(s)
      道信良子
    • Publisher
      福井県立大学
    • Related Report
      2021 Annual Research Report
  • [Book] 「健康と医療」系統看護学講座 『文化人類学』 第4版 (波平恵美子編)2021

    • Author(s)
      道信良子
    • Publisher
      医学書院
    • Related Report
      2021 Annual Research Report
  • [Book] ヘルス・エスノグラフィ2020

    • Author(s)
      道信 良子
    • Total Pages
      305
    • Publisher
      医学書院
    • ISBN
      9784260042550
    • Related Report
      2020 Research-status Report
  • [Remarks] 道信良子 研究実績

    • URL

      http://michinor.com/results.html

    • Related Report
      2021 Annual Research Report
  • [Remarks] Results 研究実績

    • URL

      http://michinor.com/results.html

    • Related Report
      2018 Research-status Report

URL: 

Published: 2018-04-23   Modified: 2023-01-30  

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