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Development of home-based care for ALS-FTD

Research Project

Project/Area Number 18K10304
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 58060:Clinical nursing-related
Research InstitutionGunma University

Principal Investigator

Ushikubo Mitsuko  群馬大学, 大学院保健学研究科, 教授 (90213412)

Project Period (FY) 2018-04-01 – 2023-03-31
Project Status Completed (Fiscal Year 2022)
Budget Amount *help
¥3,900,000 (Direct Cost: ¥3,000,000、Indirect Cost: ¥900,000)
Fiscal Year 2021: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2020: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2019: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2018: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Keywords筋萎縮性側索硬化症 / 認知機能障害 / 併存 / ケア / 多疾患併存 / マルチモビディティ / がん / 看護支援 / 難病 / 認知障害 / 併存疾患 / 困難 / ALS / 複合疾患 / 在宅ケア
Outline of Final Research Achievements

The number of people with comorbidities is increasing due to aging and long-term treatment. Although amyotrophic lateral sclerosis (ALS) has been said to have no cognitive dysfunction, the number of ALS patients with cognitive dysfunction is increasing. The purpose of this study was to develop a new ALS care that integrates knowledge and care methods of dementia care. Questionnaire survey, FGI, and literature review were conducted. The following five points of measures were derived in the care of ALS patients with cognitive dysfunction: ①Assessment of cognitive impairment in ALS、②How to provide care for the patient's preoccupations in daily life、③Communication methods for both language and cognitive impairment, ④Methods to support decision making, ⑤Cooperation between the hospital and the community in all of the above. ALS care guidelines and care manuals should be developed that incorporate all of the above.

Academic Significance and Societal Importance of the Research Achievements

単一の疾患を中心に組織化されている医療システムにおいて多疾患併存は大きな課題となっている。筋萎縮性側索硬化症(ALS)の中には、認知機能障害を抱える療養者が増加傾向にある。特に、ALSは病状進行に伴い、多くの意思決定が求められるため、認知機能の障害は支援上の重要課題である。ALSはこれまで認知機能障害は問題ないとされてきたため、看護人材の理解を促し、認知症のケアを融合した新たなALSケア方法の開発が求められる。ALSは複雑多様なケア課題を抱えるうえ、さらに認知機能障害を伴う場合には、ケアの受け手とケア提供者の負担増となる。本研究はこれからのALSケアの質向上に資する研究内容である。

Report

(6 results)
  • 2022 Annual Research Report   Final Research Report ( PDF )
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (33 results)

All 2023 2022 2021 2020 2019 2018 Other

All Journal Article (13 results) (of which Peer Reviewed: 9 results,  Open Access: 5 results) Presentation (19 results) (of which Int'l Joint Research: 3 results,  Invited: 2 results) Remarks (1 results)

  • [Journal Article] 筋萎縮性側索硬化症と認知症を併せ持つ療養者の生活支援に関する文献検討2023

    • Author(s)
      牛久保美津子、大谷忠広、勝田恵子、川尻洋美
    • Journal Title

      The Kitakanto Medical Journal

      Volume: 73 Pages: 81-87

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] 国内における過去12年間の筋萎縮性側索硬化症とがんの併存症例報告の検討2023

    • Author(s)
      牛久保美津子、川尻洋美、大谷忠広
    • Journal Title

      The Kitakanto Medical Journal

      Volume: 72 Pages: 407-413

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Nurses' perceptions regarding end-of-life care for individuals with non-cancer diseases on non-invasive positive pressure ventilation-dependent: A qualitative and descriptive study2023

    • Author(s)
      M. Ushikubo
    • Journal Title

      Indian Journal of Palliative Care

      Volume: 29 Pages: 175-180

    • DOI

      10.25259/ijpc_184_2022

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] 認知機能障害を有する筋萎縮性側索症療養者に対する看護支援の検討2022

    • Author(s)
      牛久保美津子
    • Journal Title

      難病と在宅ケア

      Volume: 27(10) Pages: 23-27

    • Related Report
      2022 Annual Research Report
  • [Journal Article] 認知機能障害を有する筋萎縮性側索療養者に対する看護支援の検討2022

    • Author(s)
      牛久保美津子
    • Journal Title

      難病と在宅ケア

      Volume: 27 Pages: 23-27

    • Related Report
      2021 Research-status Report
  • [Journal Article] Practical Measures for Dealing With the Struggles of Nurses Caring for People With Amyotrophic Lateral Sclerosis Comorbid With Cognitive Impairment in Japan2021

    • Author(s)
      Ushikubo M, et al.
    • Journal Title

      Frontiers in psychology

      Volume: 12:752461

    • DOI

      10.3389/fpsyg.2021.752461

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] Nurses' awareness of cognitive impairment in individuals with amyotrophic lateral sclerosis2021

    • Author(s)
      Ushikubo M, Ohtani T, Kawabata H
    • Journal Title

      The Kitakanto Medical Journal

      Volume: 71 Pages: 195-198

    • NAID

      130008091318

    • Related Report
      2021 Research-status Report
    • Peer Reviewed
  • [Journal Article] 国内文献検討からみた気管切開下の人工呼吸器装着の児に対する訪問看護の課題2021

    • Author(s)
      梨木恵実子、田村直子、牛久保美津子
    • Journal Title

      群馬保健学研究

      Volume: 41 Pages: 19-27

    • NAID

      130008020575

    • Related Report
      2021 Research-status Report
    • Peer Reviewed
  • [Journal Article] がんを併せ持つALS療養者に対する看護職者の支援状況2020

    • Author(s)
      大谷忠広、河端裕美、牛久保美津子
    • Journal Title

      難病と在宅ケア

      Volume: 26(2) Pages: 30-34

    • Related Report
      2020 Research-status Report
  • [Journal Article] Circumstances in the Last Stage of Life in Patients with Amyotrophic Lateral Sclerosis Using NOninvasive Positive Pressure Ventilation2020

    • Author(s)
      Mitsuko Ushikubo
    • Journal Title

      IMJ

      Volume: 27(2) Pages: 1-4

    • Related Report
      2020 Research-status Report
    • Peer Reviewed
  • [Journal Article] 複合疾患を有するALS療養者に対するケアの研究ことはじめ2020

    • Author(s)
      牛久保美津子、大谷忠広、河端裕美
    • Journal Title

      難病と在宅ケア

      Volume: 26(4) Pages: 31-35

    • Related Report
      2020 Research-status Report
  • [Journal Article] がんを併せ持つ筋萎縮性側索硬化症療養者の療養状況に関する事例報告2020

    • Author(s)
      牛久保美津子、高橋千里
    • Journal Title

      日本難病看護学会誌

      Volume: 25(2) Pages: 153-159

    • NAID

      40022573765

    • Related Report
      2020 Research-status Report
    • Peer Reviewed
  • [Journal Article] 筋萎縮性側索硬化症とハンチントン病の2つの神経難病をかかえた療養者の療養経過とケア困難2019

    • Author(s)
      牛久保美津子、櫛谷雅子、高橋千里
    • Journal Title

      群馬保健学研究

      Volume: 40 Pages: 36-41

    • NAID

      130007836955

    • Related Report
      2019 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] Cases with cancer and Amyotrophic lateral sclerosis comorbidity featureddin the Japanese literature over the past 10 years2022

    • Author(s)
      M.Ushikubo
    • Organizer
      12th World Research Congress of the European Association for Palliative Care
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 海外文献から学ぶ筋萎縮性側索硬化症のアドバンス・ケア・プランニングの実践則2022

    • Author(s)
      大谷忠広、川尻洋美、牛久保美津子
    • Organizer
      第27回日本難病看護学会学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] 難病看護のやりがい2022

    • Author(s)
      牛久保美津子
    • Organizer
      第27回日本難病看護学会学術集会
    • Related Report
      2022 Annual Research Report
    • Invited
  • [Presentation] COVID-19と筋萎縮性側索硬化症に関する文献の概要2021

    • Author(s)
      牛久保美津子、大谷忠広
    • Organizer
      第26回日本難病看護学会学術集会
    • Related Report
      2021 Research-status Report
  • [Presentation] 筋萎縮性側索硬化症に焦点をあてたテレメディシンに関する国内外文献検討2021

    • Author(s)
      大谷忠広、牛久保美津子
    • Organizer
      第26回日本難病看護学会学術集会
    • Related Report
      2021 Research-status Report
  • [Presentation] 気管切開下の人工呼吸器装着した児の訪問看護に関する文献検討2021

    • Author(s)
      梨木恵美子、田村直子、牛久保美津子
    • Organizer
      第26回日本在宅ケア学会学術集会
    • Related Report
      2021 Research-status Report
  • [Presentation] What are nursing professionals struggling with in caring for patients with amyotrophic lateral sclerosis?2021

    • Author(s)
      Ushikubo M, Ohtani T, Kawabata H
    • Organizer
      14th Asia Pacific Hospice Palliative Care Conference
    • Related Report
      2021 Research-status Report
  • [Presentation] Home visiting nursing for people who undergo tracheostomy invasive ventilation: Japanese literature review focusing on children and amyotrophic lateral sclerosis2021

    • Author(s)
      Nashiki E, Ushikubo M
    • Organizer
      14th Asia Pacific Hospice Palliative Care Conference
    • Related Report
      2021 Research-status Report
  • [Presentation] 認知機能障害を有する筋萎縮性側索硬化症療養者に対する看護支援の検討2020

    • Author(s)
      牛久保美津子、梨木恵実子、大谷忠広、河端裕美、川尻洋美
    • Organizer
      日本難病看護学会
    • Related Report
      2020 Research-status Report
  • [Presentation] 難病診療拠点病院に設置された難病相談支援センターと難病医療ネットワークの現状と課題2020

    • Author(s)
      川尻洋美、牛久保美津子、村上正巳
    • Organizer
      日本難病看護学会
    • Related Report
      2020 Research-status Report
  • [Presentation] モルヒネを使用する在宅筋萎縮性側索硬化症者の療養生活状況2020

    • Author(s)
      加藤志織、梨木恵実子、牛久保美津子
    • Organizer
      日本難病看護学会
    • Related Report
      2020 Research-status Report
  • [Presentation] 次世代につなぐ難病看護・難病保健の展望2020

    • Author(s)
      牛久保美津子
    • Organizer
      日本難病看護学会
    • Related Report
      2020 Research-status Report
    • Invited
  • [Presentation] Nurses' experiences on support for individuals with cogitive impairment in amyotrophic lateral sclerosis2020

    • Author(s)
      Mitsuko Ushikubo, Tadahiro Otani, Hiromi Kawabata
    • Organizer
      6th World Academy of Nursing Science
    • Related Report
      2019 Research-status Report
    • Int'l Joint Research
  • [Presentation] 筋萎縮性側索硬化症とハンチントン病の2つの神経難病をかかえた療養者の療養経過とケア困難2019

    • Author(s)
      櫛谷雅子、高橋千里、牛久保美津子
    • Organizer
      第24回日本難病看護学会学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] がんを併せもつ筋萎縮性側索硬化症療養者に対する看護職者の支援状況2019

    • Author(s)
      大谷忠広、牛久保美津子、冨田千恵子、河端裕美
    • Organizer
      第24回日本難病看護学会学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] 併存疾患を有する筋萎縮性側索硬化症療養者に対する看護支援上の困難2019

    • Author(s)
      牛久保美津子、大谷忠広、河端裕美
    • Organizer
      第39回日本看護科学学会学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] ALS療養者・家族に対する切れ目のない支援を提供するための神経内科看護相談の活動システムの可視化2018

    • Author(s)
      冨田千恵子、猪熊綾子、牛久保美津子
    • Organizer
      第23回日本難病看護学会
    • Related Report
      2018 Research-status Report
  • [Presentation] 筋萎縮性側索硬化症(ALS) 患者の心理面の把握と支援のための老年期うつ病尺度の導入2018

    • Author(s)
      渡邉充子、長嶋和明、牛久保美津子、池田佳生
    • Organizer
      第6回日本難病医療ネットワーク学会
    • Related Report
      2018 Research-status Report
  • [Presentation] Nursing Perspectives on Terminal Phase of Patients with Non-cancer Who Are Dependent on Non-Invasive Ventilation2018

    • Author(s)
      Mitsuko Ushikubo
    • Organizer
      22nd International Congress on Palliative Care
    • Related Report
      2018 Research-status Report
    • Int'l Joint Research
  • [Remarks] 群馬大学大学院保健学研究科看護学専攻教員紹介

    • URL

      https://www.health.gunma-u.ac.jp/?staff=%e7%89%9b%e4%b9%85%e4%bf%9d-%e7%be%8e%e6%b4%a5%e5%ad%90

    • Related Report
      2021 Research-status Report

URL: 

Published: 2018-04-23   Modified: 2024-01-30  

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