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Development of a decision aid for patients with Crohns disease considering biologic treatment

Research Project

Project/Area Number 18K10372
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 58060:Clinical nursing-related
Research InstitutionMukogawa Women's University

Principal Investigator

Nunotani Maya  武庫川女子大学, 看護学部, 教授 (70514735)

Co-Investigator(Kenkyū-buntansha) 中山 和弘  聖路加国際大学, 大学院看護学研究科, 教授 (50222170)
石橋 千夏  奈良県立医科大学, 医学部, 講師 (30564976)
Project Period (FY) 2018-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2021: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2020: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2019: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2018: ¥2,470,000 (Direct Cost: ¥1,900,000、Indirect Cost: ¥570,000)
Keywordsクローン病 / ディシジョン・エイド / 生物学的治療 / 意思決定 / Shared decision making
Outline of Final Research Achievements

The study aim was to develop a decision aid for patients with Crohn’s disease considering biologic treatment. First, we conducted a nationwide online survey of gastroenterologists who had treated patients with Crohn’s disease in Japan. According the results, a decision aid prototype was systematically created based on the Ottawa Decision Support Framework. A questionnaire survey was designed to assess the prototype’s usability, validity, and acceptability. The survey was completed by 18 patients and 6 clinicians. Results of the survey indicate that this DA is useful, acceptable and valued by patients and clinicians and meets a significant gap in the resources available for patients. We created an evidence-based decision aid after modifying a prototype according to the survey results of free responses.

Academic Significance and Societal Importance of the Research Achievements

本研究成果の学術的意義はオタワ意思決定支援フレームワークやInternational Patient Decision Aid Standards instrumentの基準をもとに系統的プロセスでディシジョン・エイドを開発した点である。
本研究成果の社会的意義は意思決定支援を可視化する点である。エイドを活用することで、医療者の提示したい情報と患者の持つ価値観の見える化が図られ、患者と医療者の共有による意思決定を実現しやすくなると考える。クローン病患者は年々増加しており、新たな生物学的治療薬の開発が進んでいる現状から、開発したディシジョン・エイドは患者中心の意思決定支援に貢献できると考える。

Report

(5 results)
  • 2021 Annual Research Report   Final Research Report ( PDF )
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (6 results)

All 2021 2020 2019 Other

All Journal Article (2 results) (of which Peer Reviewed: 2 results) Presentation (3 results) (of which Int'l Joint Research: 1 results) Remarks (1 results)

  • [Journal Article] Gastroenterologists’ perceptions and practice regarding shared decision-making for patients with Crohn’s disease2021

    • Author(s)
      Maya Nunotani, Chinatsu Ishibashi
    • Journal Title

      Journal of the Japan Academy for Health Behavioral Science

      Volume: 35 Pages: 30-39

    • NAID

      40022526387

    • Related Report
      2021 Annual Research Report 2020 Research-status Report
    • Peer Reviewed
  • [Journal Article] 炎症性腸疾患患者における治療選択の意思決定支援-国内外の文献検討-2019

    • Author(s)
      布谷麻耶
    • Journal Title

      日本慢性看護学会誌

      Volume: 13 Pages: 2-9

    • NAID

      40021961109

    • Related Report
      2019 Research-status Report
    • Peer Reviewed
  • [Presentation] クローン病患者の生物学的治療選択を支援するディシジョン・エイドの開発2021

    • Author(s)
      布谷麻耶、石橋千夏、中山和弘
    • Organizer
      第41回日本看護科学学会学術集会
    • Related Report
      2021 Annual Research Report
  • [Presentation] Nurses' support for patients with inflammatory bowel disease in their treatment decision-making: a qualitative study2020

    • Author(s)
      Maya Nunotani, Chinatsu Ishibashi, Nobuo Aoyama
    • Organizer
      The 6th International Nursing Research Conference of World Academy of Nursing Science
    • Related Report
      2020 Research-status Report
    • Int'l Joint Research
  • [Presentation] クローン病患者を診療する消化器専門医のShared Decision Makingの実践と関連要因の検討2019

    • Author(s)
      布谷麻耶
    • Organizer
      第10回日本炎症性腸疾患学会学術集会
    • Related Report
      2019 Research-status Report
  • [Remarks] 納得して"決める"ガイド クローン病患者さんが生物学的治療を納得して決めるために

    • URL

      https://www.healthliteracy.jp/decisionaid/DA_IBD_2021.pdf

    • Related Report
      2021 Annual Research Report

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Published: 2018-04-23   Modified: 2023-01-30  

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