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Educational Support for Children with Severe Infantile Type of Congenital Myopathy: Revealing What They "Seem to Understand"

Research Project

Project/Area Number 18K13206
Research Category

Grant-in-Aid for Early-Career Scientists

Allocation TypeMulti-year Fund
Review Section Basic Section 09060:Special needs education-related
Research InstitutionMiyagi University of Education

Principal Investigator

Teramoto Atsushi  宮城教育大学, 教育学部, 准教授 (70713345)

Project Period (FY) 2018-04-01 – 2024-03-31
Project Status Completed (Fiscal Year 2023)
Budget Amount *help
¥2,210,000 (Direct Cost: ¥1,700,000、Indirect Cost: ¥510,000)
Fiscal Year 2020: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2019: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2018: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywords先天性神経・筋疾患 / 乳児重症型 / コミュニケーション / 教育的支援 / 教育課程 / 先天性筋疾患 / 乳児期重症型 / 先天性筋疾患児
Outline of Final Research Achievements

The purpose of this study is to identify effective educational supports for children with severe infantile type of congenital neuromuscular diseases. A survey of special education schools for students with physical and/or health disabilities revealed that significant motor functional limitations and medical care needs lead to difficulty in understanding the child's actual situation and in determining the content of instruction. Interviews with parents revealed that the issues such as differences in behavior exhibited by children at school and at home can lead to gaps in perceptions between parents and teachers. The three case studies suggested that efforts to draw out and make sense of the slight movements shown by children through the use of ICT and detailed reading can lead to the expansion of expression of intention and the development of educational activities based on such expressions.

Academic Significance and Societal Importance of the Research Achievements

乳児重症型先天性神経・筋疾患児に対する教育的支援について、特別支援学校における実態と課題、教師の認識、及び3事例の面接調査から得られた具体的なエピソードの分析から、教師と保護者等の関係者が認識を共有し、対象児の微細な表出を読み取り、さらに教育活動へと繋げていくための支援の在り方の一端を明らかにすることができた。実践研究からはその意思表出の読み取りやそれらを土台とした教育活動の具体的な在り方を示すことができた。これらの知見は、今後の特別支援学校等における教育実践の充実をもたらしうると考える。

Report

(7 results)
  • 2023 Annual Research Report   Final Research Report ( PDF )
  • 2022 Research-status Report
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (4 results)

All 2024 2023 2021 2019

All Journal Article (1 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (3 results)

  • [Journal Article] 乳児重症型先天性ミオパチー児の意思表出に関する教育的支援の展開過程ー文字による意思表出の獲得ー2024

    • Author(s)
      寺本淳志
    • Journal Title

      宮城教育大学紀要

      Volume: 58 Pages: 261-271

    • Related Report
      2023 Annual Research Report
    • Peer Reviewed / Open Access
  • [Presentation] 先天性ミオパチー児のコミュニケーション行動の変容-家庭及び学校での9年間の係わり合いから-2023

    • Author(s)
      寺本淳志
    • Organizer
      日本特殊教育学会第61回大会
    • Related Report
      2023 Annual Research Report
  • [Presentation] 乳児重症型先天性筋疾患児の文章表現の拡大に関する実践研究2021

    • Author(s)
      寺本淳志
    • Organizer
      日本特殊教育学会第59回大会
    • Related Report
      2021 Research-status Report
  • [Presentation] 重篤な運動障害を示す先天性筋疾患児への教育的支援に関する一考察2019

    • Author(s)
      寺本淳志
    • Organizer
      日本特殊教育学会第57回大会
    • Related Report
      2018 Research-status Report

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Published: 2018-04-23   Modified: 2025-01-30  

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