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Do patients make decisions about their end of life care in advance? Impact of Advance Care Planning (ACP) on end-of-life (EoL) in ICU; comparing practices between UK and Japan

Research Project

Project/Area Number 18K17320
Research Category

Grant-in-Aid for Early-Career Scientists

Allocation TypeMulti-year Fund
Review Section Basic Section 58010:Medical management and medical sociology-related
Research InstitutionKyoto University

Principal Investigator

Anagnostou Despoina  京都大学, 医学研究科, 准教授 (70817684)

Project Period (FY) 2018-04-01 – 2024-03-31
Project Status Completed (Fiscal Year 2023)
Budget Amount *help
¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000)
Fiscal Year 2020: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2019: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2018: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Keywordspalliative care / advanced care planning / Intensive Care / decision-making / ICU / ACP / Advancaed care planning / Intensive care / end of life care / decision making / country comparison / End-of-life care / intensive care / interviews / health expertise / advance care planning / decision- making / palliative / clinical care
Outline of Final Research Achievements

Two phases: 1. A systematic review in relation to End-of-life care in ICU, with a focus on communication and decision-making across countries. 2. Interviews with clinicians and academics in UK and Japan, to identify attitudes about advanced care planning (ACP) and its use in the intensive care (ICU) context. We generated international evidence, which demonstrated that when palliative care was integrated in the intensive care, better outcomes were found with regards to family communication and decision-making, alongside ACP implementation. The interviews revealed that both countries are considering the importance of ACP in ICU, but gave a different focus, reflecting differences in cultural values. Patient autonomy(UK) vs patient dignity (Japan) and patient-centered (UK) vs family-centered (Japan) decision-making were some of the key differences. Determining patient capacity was perceived fundamental by UK clinicians, whilst family's wishes took priority by JP clinicians.

Academic Significance and Societal Importance of the Research Achievements

これは、アドバンス・ケア・プランニングに関して英国と日本を比較した初めての研究である。レビューの結果、個々のICUの文化、ACPのトレーニング、緩和ケアチームの関与が、それぞれの病棟におけるACPの取り組みと実践のばらつきに影響しているようである。インタビューでは、両国とも患者の苦痛を和らげたいと考えているが、英国の臨床家は「患者の最善の利益」を優先し、日本の臨床家は家族の満足を優先していることが明らかになった。したがって、異なる国でアドバンス・ケア・プランニングを実施する際には、文化的背景と社会の価値観を理解することが重要である。

Report

(7 results)
  • 2023 Annual Research Report   Final Research Report ( PDF )
  • 2022 Research-status Report
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (21 results)

All 2023 2021 Other

All Int'l Joint Research (15 results) Journal Article (2 results) Presentation (4 results) (of which Int'l Joint Research: 1 results)

  • [Int'l Joint Research] Kings College London(英国)

    • Related Report
      2023 Annual Research Report
  • [Int'l Joint Research] London School of Economics(英国)

    • Related Report
      2023 Annual Research Report
  • [Int'l Joint Research] Martlets Hospice(英国)

    • Related Report
      2023 Annual Research Report
  • [Int'l Joint Research] Vlahos Savvas/King's College London/UK(英国)

    • Related Report
      2022 Research-status Report
  • [Int'l Joint Research] Maharaj Ritesh/London School of Economics/UK(英国)

    • Related Report
      2022 Research-status Report
  • [Int'l Joint Research] Brink Elmien/Martlets Hospice/UK(英国)

    • Related Report
      2022 Research-status Report
  • [Int'l Joint Research] Berry Michael/King's College London/UK(英国)

    • Related Report
      2022 Research-status Report
  • [Int'l Joint Research] Metaxa Victoria/King's College London/UK(英国)

    • Related Report
      2021 Research-status Report
  • [Int'l Joint Research] Vlahos Savvas/King's College London/UK(英国)

    • Related Report
      2021 Research-status Report
  • [Int'l Joint Research] Brink Elmien/Marlets HOspice Brighton, UK/UK(英国)

    • Related Report
      2021 Research-status Report
  • [Int'l Joint Research] Maharaj Ritesh/King's College London/UK(英国)

    • Related Report
      2021 Research-status Report
  • [Int'l Joint Research] King's College Hospital, London(英国)

    • Related Report
      2020 Research-status Report
  • [Int'l Joint Research] Martlets Hospice, Brighton(英国)

    • Related Report
      2020 Research-status Report
  • [Int'l Joint Research] King's College Hospital, London/Cardiff University(英国)

    • Related Report
      2019 Research-status Report
  • [Int'l Joint Research] king's college London/Cardiff University(英国)

    • Related Report
      2018 Research-status Report
  • [Journal Article] Is advanced care planning appropriate for patients in intensive care units? Comparative perspectives between Japan and UK2023

    • Author(s)
      Anagnostou Despoina、Maharaj Ritesh、Brink Elmien、Vlahos Savvas
    • Journal Title

      BMJ Supportive & Palliative Care

      Volume: S4, Pages: A16.3-A17

    • DOI

      10.1136/spcare-2023-acp.40

    • Related Report
      2023 Annual Research Report
  • [Journal Article] Palliative care interventions in intensive care unit patients2021

    • Author(s)
      Metaxa Victoria、Anagnostou Despina、Vlachos Savvas、Arulkumaran Nishkantha、Bensemmane Sherihane、van Dusseldorp Ingeborg、Aslakson Rebecca A.、Davidson Judy E.、Gerritsen Rik T.、Hartog Christiane、Curtis J. Randall
    • Journal Title

      Intensive Care Medicine

      Volume: 47 Issue: 12 Pages: 1415-1425

    • DOI

      10.1007/s00134-021-06544-6

    • Related Report
      2021 Research-status Report
  • [Presentation] oral presentation2023

    • Author(s)
      Anagnostou D, Maharaj R, Brink E, Vlachos S
    • Organizer
      International conference of Advanced Care Planning
    • Related Report
      2023 Annual Research Report
  • [Presentation] Barriers and facilitators of ACP implementation in the intensive care context; cross-cultural perspectives between UK- Japan2023

    • Author(s)
      Anagnostou D, Hoshiya N, Tamura K
    • Organizer
      World Research Congress of Palliative Care- EAPC
    • Related Report
      2023 Annual Research Report
  • [Presentation] 集中治療におけるACPの実施に関する態度と考え:日英の異文化間の視点2023

    • Author(s)
      Anagnostou D, Tamura K, Takenuchi S,
    • Organizer
      National Conference of Japanese Palliative Medicine Society
    • Related Report
      2023 Annual Research Report
  • [Presentation] Is Advanced Care Planning Appropriate for Patients in Intensive Care Units? Comparative Perspectives between Japan and UK2023

    • Author(s)
      Anagnostou D, Brink E, Maharaj R, Vlahos S
    • Organizer
      International conference of Palliative care
    • Related Report
      2022 Research-status Report
    • Int'l Joint Research

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Published: 2018-04-23   Modified: 2025-01-30  

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