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Development of a multi-professional collaborative program to support the transition of family roles including children with chronic diseases

Research Project

Project/Area Number 19H03945
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Review Section Basic Section 58070:Lifelong developmental nursing-related
Research InstitutionUniversity of Hyogo

Principal Investigator

Honda Junko  兵庫県立大学, 地域ケア開発研究所, 教授 (50585057)

Co-Investigator(Kenkyū-buntansha) 山口 未久  京都府立医科大学, 医学部, 講師 (20771132)
粟野 宏之  神戸大学, 医学研究科, 客員教授 (30437470)
福井 美苗  武庫川女子大学, 看護学部, 助教 (70882207)
宮脇 郁子  神戸大学, 保健学研究科, 教授 (80209957)
山口 智子  兵庫県立大学, 看護学部, 助教 (80843052)
勝田 仁美  兵庫県立大学, 看護学部, 客員研究員(教授) (00254475)
Project Period (FY) 2019-04-01 – 2023-03-31
Project Status Completed (Fiscal Year 2023)
Budget Amount *help
¥7,800,000 (Direct Cost: ¥6,000,000、Indirect Cost: ¥1,800,000)
Fiscal Year 2022: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2021: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2020: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2019: ¥2,470,000 (Direct Cost: ¥1,900,000、Indirect Cost: ¥570,000)
Keywords親子関係 / 家族看護 / 慢性疾患 / 小児 / セルフケア / 意思決定 / 親子の相互作用 / 移行期 / 家族 / 多職種 / 親子 / 相互作用
Outline of Research at the Start

障害や疾患をもつ子どもは成長発達に伴い,保護者が担っていた健康・療養管理や治療・療養に関する意思決定という役割を子ども本人へと移行する過程を経験する.本研究では,子どものみ,保護者のみに焦点を当てるのではなく,子どもと保護者(家族員間)の相互作用に注目し,その相互作用が子どもの成長発達や家族の成長発達とともにどのように変化していくのかを学術的に明らかにした上で,子どもを含めた家族を一体として捉えた支援を明らかにする.それに加え,既存の介入研究成果を統合し,各職種の役割を明確化した上で,エビデンスに基づいた多職種協働の支援プログラムを開発することを目指す.

Outline of Final Research Achievements

In this study, a systematic review/scoping review, an interview survey, and a questionnaire survey were conducted to understand the phenomenon in the transition of roles from parents to children in health and medical care management, with a particular focus on the interaction between parents and children, and to understand the family as a single unit. Children and parents grow and develop as individuals and as a family, while being influenced by each other's words, actions, and behaviours. Careful clarification of this phenomenon provided suggestions for health care providers to support the child's process of acquiring self-care by treating the child and family as a unit.

Academic Significance and Societal Importance of the Research Achievements

これまでの子どものセルフケア能力獲得についてはの研究では,子どもに焦点が当てられているものが多く,保護者は,子どもの背景として捉えられていたが,本研究では,親子の相互作用に焦点を当て,家族を1つの単位として健康・療養管理における保護者から子どもへの役割の移行における現象を明らかにした.本研究結果は医療者が子どもとその家族をトータルで支援する上で必要な支援を提供する.

Report

(5 results)
  • 2023 Final Research Report ( PDF )
  • 2022 Annual Research Report
  • 2021 Annual Research Report
  • 2020 Annual Research Report
  • 2019 Annual Research Report
  • Research Products

    (25 results)

All 2024 2023 2022 2021 2020 Other

All Int'l Joint Research (6 results) Journal Article (6 results) (of which Int'l Joint Research: 2 results,  Peer Reviewed: 5 results,  Open Access: 2 results) Presentation (11 results) (of which Int'l Joint Research: 5 results,  Invited: 2 results) Book (2 results)

  • [Int'l Joint Research] University of North Carolina(米国)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research] University of Huelva, Huelva(スペイン)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research] Kyungpook National University(韓国)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research] Federal University of Minas Gerais/University of Sao Paulo(ブラジル)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research] Mahidol University/Rambhai Barni Rajabhat University(タイ)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research]

    • Related Report
      2022 Annual Research Report
  • [Journal Article] Effects of Parental Involvement on Glycemic Control in Adolescents With Type 1 Diabetes Mellitus: A Scoping Review2023

    • Author(s)
      Yamaguchi Miku、Honda Junko、Fukui Minae
    • Journal Title

      Journal of Family Nursing

      Volume: 29 Issue: 4 Pages: 382-394

    • DOI

      10.1177/10748407231171842

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Family adaptation in families of individuals with <scp>Down</scp> syndrome from 12 countries2023

    • Author(s)
      Van Riper, M., Knafl,G J., Knafl,K A., … Honda, J., … Silva, M.J.R.
    • Journal Title

      American Journal of Medical Genetics Part C: Seminars in Medical Genetics

      Volume: 196 Issue: 1

    • DOI

      10.1002/ajmg.c.32075

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] 疾患を経験した子どものPosttraumatic Growth(心的外傷後戦勝)に関する文献検討2023

    • Author(s)
      国分映希, 本田順子
    • Journal Title

      日本小児看護学会誌

      Volume: 32 Pages: 213-222

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 糖尿病予防に関するポピュレーションアプローチの先駆的事例分析2023

    • Author(s)
      本田 順子, 谷口 麻希, 塩見 美抄, 竹村 和子, 築田 誠
    • Journal Title

      Phenomena in Nursing

      Volume: 7

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Measurement of Family Management in Families of Individuals with Down Syndrome2021

    • Author(s)
      Van Riper, M., Knafl, G., Barbieri Figueiredo, M., Choi, H., de Graaf, Gert, Duarte, E., Honda, J., … Knafl, K.
    • Journal Title

      Journal of Family Nursing

      Volume: 27(1) Issue: 1 Pages: 8-22

    • DOI

      10.1177/1074840720975167

    • Related Report
      2020 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] ダウン症のこどものいる家族の家族力を高めるには2021

    • Author(s)
      本田順子
    • Journal Title

      子供の城

      Volume: 47 Pages: 5-9

    • Related Report
      2020 Annual Research Report
  • [Presentation] Challenges faced by Japanese pediatric nurses in providing healthcare transition support and decision-making support2024

    • Author(s)
      Minae Fukui, Hitoshi Ogasawar, Mika Kitao, Junko Hond, Yuichi Fuji
    • Organizer
      The 27th East Asian Forum of Nursing Scholars Conference
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 総合病院の看護師が認識する難しい小児看護技術と学習ニーズについて2023

    • Author(s)
      本田順子, 萩岡あかね
    • Organizer
      第43回日本看護科学学会学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] 急性期領域における家族の意思決定支援ー日本とアフリカの比較から見えるもの2023

    • Author(s)
      本田 順子, 新家 一輝, 島田 なつき, 相墨 生恵, 山口 智治, 森﨑 真由美, 中口 尚始, 藤井 淳子, Petra Brysiewicz
    • Organizer
      日本家族看護学会第30回学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] 小児期の手術の経験に関連した Posttraumatic Growth(心的外傷後成長) の実感とその要因2023

    • Author(s)
      国分映希, 本田順子
    • Organizer
      日本小児看護学会第33回学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] 疾患を経験した子どものPosttraumatic Growth(心的外傷後成長)に関する文献検討2023

    • Author(s)
      国分映希, 本田順子
    • Organizer
      日本小児看護学会第33回学術集会
    • Related Report
      2022 Annual Research Report
  • [Presentation] Incubating Family Nurse Scientist Across the Globe2023

    • Author(s)
      Junko Honda
    • Organizer
      16th International Family Nursing Conference
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research / Invited
  • [Presentation] 在宅医療的ケア児の健康,発達,参加を支えるための家族支援2023

    • Author(s)
      本田順子
    • Organizer
      第27回日本医療保育学会 総会・学術集会
    • Related Report
      2022 Annual Research Report
    • Invited
  • [Presentation] Adolescent-parent interactions in decision-making of adolescent with chronic condition: A systematic review2021

    • Author(s)
      Fukui, M., Honda, J., Miyawaki, I.
    • Organizer
      15th International Family Nursing Conference
    • Related Report
      2020 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Parent-child interactions in self-care acquisition of child with chronic condition: A systematic review2020

    • Author(s)
      Honda, J., Fukui, M., Yamaguchi, M., Katsuda, H., Yamaguchi, T., Miyawaki, I.
    • Organizer
      The 6th International Nursing Research Conference of World Academy of Nursing Science
    • Related Report
      2020 Annual Research Report
    • Int'l Joint Research
  • [Presentation] ダウン症の子どもをもつ家族の子どもの成長発達に伴う家族ニーズの変化2020

    • Author(s)
      牧野彩夏, 藤井わかば, 本田順子
    • Organizer
      第27回日本家族看護学会学術集会
    • Related Report
      2020 Annual Research Report
  • [Presentation] Parent-child interactions in self-care acquisition of child with chronic condition: A systematic review2020

    • Author(s)
      Junko Honda, Minae Fukui, Miku Yamaguchi, Hitomi Katsuda, Tomoko Yamaguchi, Ikuko Miyawaki
    • Organizer
      The 6th International Nursing Research Conference of World Academy of Nursing Science
    • Related Report
      2019 Annual Research Report
    • Int'l Joint Research
  • [Book] 保育者のためのわかりやすい子どもの保健(第2版)2024

    • Author(s)
      飯島 一誠, 稲垣 由子, 本田 順子, 八木 麻理子, 永瀬裕朗
    • Total Pages
      200
    • Publisher
      総合医学社
    • Related Report
      2022 Annual Research Report
  • [Book] 保育者のためのわかりやすい子どもの保健2022

    • Author(s)
      飯島, 一誠, 稲垣, 由子, 本田, 順子, 八木, 麻理子
    • Total Pages
      182
    • Publisher
      総合医学社
    • Related Report
      2022 Annual Research Report

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Published: 2019-04-18   Modified: 2025-01-30  

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