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UK-JP Collaborative Research on Public Engagement and Bioethics

Research Project

Project/Area Number 19KK0002
Research Category

Fund for the Promotion of Joint International Research (Fostering Joint International Research (B))

Allocation TypeMulti-year Fund
Review Section Medium-sized Section 1:Philosophy, art, and related fields
Research InstitutionKyoto University

Principal Investigator

Minari Jusaku  京都大学, iPS細胞研究所, 特定准教授 (60635332)

Co-Investigator(Kenkyū-buntansha) 西條 玲奈  大阪大学, 文学研究科, 助教 (10768500)
木村 めぐみ  公益財団法人未来工学研究所, 研究センター, 研究員 (50711579)
日比野 愛子  弘前大学, 人文社会科学部, 教授 (00511685)
Project Period (FY) 2019-10-07 – 2023-03-31
Project Status Completed (Fiscal Year 2022)
Budget Amount *help
¥15,340,000 (Direct Cost: ¥11,800,000、Indirect Cost: ¥3,540,000)
Fiscal Year 2022: ¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2021: ¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2020: ¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2019: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Keywordsパブリックエンゲージメント / 生命倫理 / ELSI / 市民意識 / データサイエンス / エンターテインメント / 科学コミュニケーション / パブリック・エンゲージメント / ゲノム情報 / デザイン
Outline of Research at the Start

近年、英国では科学と社会との関わりをめぐって科学コミュニケーションからパブリックエンゲージメントへの政策的転化が生じている。この転化は専門家のみに依存した科学やその社会的な応用の進め方からの反省から生じている。この対応として将来社会をも視野に入れつつ多様な人々の意向を政策形成に反映していく必要性が高まっている。本研究課題では英国のAnna Middleton教授の研究チーム(Wellcome Genome Campus/University of Cambridgeに所属)とともに、ゲノム情報の取り扱いを事例としつつ、一般市民や非専門家が関与・参画する政策・制度形成のあり方について熟議する。

Outline of Final Research Achievements

This study has provided new insights regarding the integration of public engagement and bioethics by promoting a joint research project between Japan and the UK, where the “Your DNA, Your Say” (YDYS) project, led by Professor Middleton's research team, was centered. The new insights obtained through the YDYS project included the development of a novel method to approach a challenge to conducting public surveys, which was the public's unfamiliarity with the social handling of genomic and health information. As a solution to this challenge, the YDYS project tried combining public surveys with originally created short movies that informed potential respondents of the information and knowledge necessary/essential to respond to the surveys. Eventually, through this joint research between Japan and the UK, the diversity and differences in the public's perceptions of and opinions on such social issues in an international context were addressed.

Academic Significance and Societal Importance of the Research Achievements

ゲノム情報や健康情報を含めたビックデータの取り扱いは、昨今、社会的に極めて重要な論点となっており、このような論点に関して、一般市民の意識をどのように喚起し認識を向上していくかが問われている。本研究では、英国において先駆的な取り組みを推進しているMiddleton教授の研究チームとの共同研究を通じて、新たな研究手法を実践することにより、国際的な文脈における一般市民の認識や意向の抽出、さらには国際的な研究組織との連携等が達成されたことから、本研究成果には、ある程度の学術的意義かつ社会的意義があるものと考える。

Report

(5 results)
  • 2022 Annual Research Report   Final Research Report ( PDF )
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • Research Products

    (20 results)

All 2023 2022 2021 2020 2019 Other

All Int'l Joint Research (2 results) Journal Article (8 results) (of which Int'l Joint Research: 5 results,  Peer Reviewed: 8 results,  Open Access: 6 results) Presentation (10 results) (of which Int'l Joint Research: 4 results,  Invited: 3 results)

  • [Int'l Joint Research] Wellcome Genome Campus/University of Cambridge(英国)

    • Related Report
      2022 Annual Research Report
  • [Int'l Joint Research] Wellcome Genome Campus(英国)

    • Related Report
      2020 Research-status Report
  • [Journal Article] How can the unnaturalness of cellular agricultural products be familiarized?: Modeling public attitudes toward cultured meats in Japan2023

    • Author(s)
      Hibino A, Nakamura F, Furuhashi M, Takeuchi S.
    • Journal Title

      Frontiers in Sustainable Food Systems

      Volume: 7 Pages: 1129868-1129868

    • DOI

      10.3389/fsufs.2023.1129868

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] BMI(ブレイン・マシン・インタフェース)の報道に関する日中比較分析2023

    • Author(s)
      HAO Zhechen, 日比野愛子
    • Journal Title

      科学技術社会論研究

      Volume: 21 Pages: 89-105

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed
  • [Journal Article] The future regulation of artificial intelligence systems in healthcare services and medical research in the European Union2022

    • Author(s)
      Meszaros J, Minari J, Huys I.
    • Journal Title

      Frontiers in Genetics

      Volume: 13 Pages: 927721-927721

    • DOI

      10.3389/fgene.2022.927721

    • Related Report
      2022 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries2022

    • Author(s)
      Milne R, et al. (including Minari J, Hibino A and Kimura M)
    • Journal Title

      Genetics in Medicine

      Volume: - Issue: 5 Pages: 1120-1129

    • DOI

      10.1016/j.gim.2022.01.002

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Researcher dynamics in the generation of emerging topics in life sciences and medicine2022

    • Author(s)
      Ohniwa Ryosuke L.、Takeyasu Kunio、Hibino Aiko
    • Journal Title

      Scientometrics

      Volume: 127 Issue: 2 Pages: 871-884

    • DOI

      10.1007/s11192-021-04233-1

    • Related Report
      2021 Research-status Report
    • Peer Reviewed
  • [Journal Article] Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries2021

    • Author(s)
      Milne R, et al. (including Minari J, Hibino A and Kimura M)
    • Journal Title

      Genome Medicine

      Volume: 13 Issue: 1 Pages: 92-92

    • DOI

      10.1186/s13073-021-00903-0

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Global public perceptions of genomic data sharing: What shapes the willingness to donate DNA and health data?2020

    • Author(s)
      Middleton A et al. (including Minari J, Hibino A and Kimura M)
    • Journal Title

      The American Journal of Human Genetics

      Volume: 107 Issue: 4 Pages: 743-752

    • DOI

      10.1016/j.ajhg.2020.08.023

    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] COVID‐19 and the boundaries of open science and innovation2020

    • Author(s)
      Minari Jusaku、Yoshizawa Go、Shinomiya Nariyoshi
    • Journal Title

      EMBO reports

      Volume: 21 Issue: 11

    • DOI

      10.15252/embr.202051773

    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] The cultural transmission system as a guide to communicating with people regarding stem cell research and regenerative medicine2022

    • Author(s)
      Shahrier S, Gaydarska H, Takashima K, Minari J.
    • Organizer
      The 2022 ESOCITE/4S Joint Meeting
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] A Japanese perspective for the promotion of mHealth2022

    • Author(s)
      Minari J.
    • Organizer
      International Conference 2022: IoMT, Healthcare AI, and ELSI (Yonsei University, College of Medicine)
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research / Invited
  • [Presentation] The definition and handling of genomic data in a digitalized society: A Japanese perspective2022

    • Author(s)
      Minari J.
    • Organizer
      The 5th ELSI Congress: ELSIcon2022: Innovating for a Just and Equitable Future (Columbia University)
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 培養肉の理解における技術情報の影響2022

    • Author(s)
      日比野愛子, 古橋麻衣, 相部かおり, 竹内昌治
    • Organizer
      日本社会心理学会第63回大会
    • Related Report
      2022 Annual Research Report
  • [Presentation] STSと科学技術イノベーション(STI)政策研究はどうつながるか(パネルディスカッション)2021

    • Author(s)
      日比野愛子
    • Organizer
      科学技術社会論学会第20回年次研究大会(20周年国内記念イベント)
    • Related Report
      2021 Research-status Report
    • Invited
  • [Presentation] 内なる他者との出逢いを支える:ゲーミング・シミュレーションを用いたコミュニケーションの可能性2021

    • Author(s)
      日比野愛子
    • Organizer
      弘前大学大学院保健学研究科リスクコミュニケーション教育部門講演会
    • Related Report
      2020 Research-status Report
    • Invited
  • [Presentation] Beyond the New Atlantis: How can we promote public engagement in Japan?2020

    • Author(s)
      Kimura M, Taguchi K, Ueki T, Nonaka T, Kim B, Ueda H, Hasegawa D and Minari J.
    • Organizer
      Engage Festival 2020
    • Related Report
      2020 Research-status Report
    • Int'l Joint Research
  • [Presentation] アイデアの価値:パブリックエンゲージメントの組織と戦略2020

    • Author(s)
      木村めぐみ, 三成寿作
    • Organizer
      研究・イノベーション学会第35回年次学術大会
    • Related Report
      2020 Research-status Report
  • [Presentation] 生命らしきものがあふれる世界:ポストヒューマン・アクションリサーチ2020

    • Author(s)
      日比野愛子
    • Organizer
      質的心理学会第17回全国大会
    • Related Report
      2020 Research-status Report
  • [Presentation] ゲノム情報の科学的・社会的含意に関する整理と検討2019

    • Author(s)
      三成寿作
    • Organizer
      第18回科学技術社会論学会年次研究大会
    • Related Report
      2019 Research-status Report

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Published: 2019-10-10   Modified: 2024-01-30  

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