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The Development of a Genetic Nursing Education Program for Nurses : Genetic Nursing for Hereditary Nerve Incurable Disease Patients and their Families

Research Project

Project/Area Number 20592542
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionKumamoto University

Principal Investigator

KUKINAKA Chieko  熊本大学, 大学院・生命科学研究部, 准教授 (60274726)

Co-Investigator(Kenkyū-buntansha) NAKAGOMI Satoko  山梨大学, 大学院・医学工学総合研究部, 教授 (10254484)
ONO Mitsu  九州大学, 大学院・医学系学府保健学専攻, 教授 (60315182)
MAEDA Hitomi  熊本大学, 大学院・生命科学研究部, 教授 (90183607)
Co-Investigator(Renkei-kenkyūsha) MUTO Kaori  東京大学, 医科学研究所, 准教授 (50345766)
Research Collaborator KITAGAWA Sayomi  熊本大学, 医学部附属病院, 看護師長
YANO Fumika  熊本大学, 医学部附属病院, 看護師長
MURAKAMI Rieko  熊本大学, 医学部附属病院, 副看護師長
FUKUDA Yukari  元熊本大学, 医学部附属病院, 副看護師長
Project Period (FY) 2008 – 2011
Project Status Completed (Fiscal Year 2011)
Budget Amount *help
¥4,550,000 (Direct Cost: ¥3,500,000、Indirect Cost: ¥1,050,000)
Fiscal Year 2010: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2009: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Fiscal Year 2008: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywords遺伝 / 難病 / 神経疾患 / 看護 / 患者 / 家族 / 神経難病 / 患者・家族 / 看護職 / 教育プログラム
Research Abstract

This research focused on the familial amyloidtic polyneropathy which is hereditary nerve incurable disease. The purpose of this research is to develop the heredity nursing education program to a nurse based on the needs investigation to patients and a families, and a nurse. The needs investigation to patients and families showed the following things. The patients and families had various suffering and conflicts. Moreover, the nurse felt difficulty for the care to the hereditary disease. The contents incorporated in an educational program were examined based on these results.

Report

(4 results)
  • 2011 Final Research Report ( PDF )
  • 2010 Annual Research Report
  • 2009 Annual Research Report
  • 2008 Annual Research Report
  • Research Products

    (8 results)

All 2011 2010 2009

All Presentation (8 results)

  • [Presentation] Experiences of Families with inherited nerve intractable disease who receive presymptomatic genetic testing in japan. analysis of familial amyloidotic polyneuropathy、family narrative-2011

    • Author(s)
      Chieko Kukinaka, Satoko Nakagomi, Mitsu Ono, Hitomi Maeda, Hiromi Kawasaki, Yukio Ando
    • Organizer
      VIIIth International Symposium on Familial Amyloidotic Polyneuropathy
    • Place of Presentation
      Kumamoto City Medical Association Hall(kumamoto Japan)
    • Related Report
      2011 Final Research Report
  • [Presentation] Experiences of Families with inherited nerve intractable disease who receive presymptomatic genetic testing in japan-analysis of familial amyloidotic polyneuropathy, family narrative-2011

    • Author(s)
      Chieko Kukinaka, Satoko Nakagomi, Mitsu Ono, Hitomi Maeda Hiromi, Kawasaki Yukio, Ando
    • Organizer
      VIIIth International Symposium on Familial Amyloidotic Polyneuropathy
    • Place of Presentation
      Kumamoto City Medical Association assembly hall
    • Related Report
      2010 Annual Research Report
  • [Presentation] 遺伝性神経難病患者家族の体験-当事者の語りからみえるもの-2010

    • Author(s)
      柊中智恵子, 中込さと子, 小野ミツ, 前田ひとみ
    • Organizer
      第30回日本看護科学学会
    • Place of Presentation
      北海道札幌市産業振興センター
    • Year and Date
      2010-12-04
    • Related Report
      2010 Annual Research Report
  • [Presentation] 遺伝性神経難病患者家族の体験2010

    • Author(s)
      柊中智恵子, 中込さと子, 小野ミツ, 前田ひとみ
    • Organizer
      第30回日本看護科学学会
    • Place of Presentation
      札幌コンベンションセンター・札幌市産業振興センター(北海道)
    • Related Report
      2011 Final Research Report
  • [Presentation] The Development of a Genetic Nursing Education Program for Nurses : Genetic Nursing for Familial Amyloidotic Polyneuropathy Patients and their Families2009

    • Author(s)
      Chieko Kukinaka
    • Organizer
      The 1^<st> International Nursing Research Conference of World Academy of Nursing Science
    • Place of Presentation
      Kobe International Exhibition Hall
    • Year and Date
      2009-09-19
    • Related Report
      2009 Annual Research Report
  • [Presentation] 遺伝性神経難病患者・家族と看護職の協働教育プログラム開発の提言-家族性アミロイドポリニューロパチーに関する文献検討をもとに-2009

    • Author(s)
      柊中智恵子
    • Organizer
      第8回日本遺伝看護学会
    • Place of Presentation
      広島大学広仁会館
    • Year and Date
      2009-09-11
    • Related Report
      2009 Annual Research Report
  • [Presentation] The Development of a Genetic Nursing Education Program for Nurses : Genetic Nursing for Familial Amyloidotic Polyneuropathy Patients and their Families2009

    • Author(s)
      Chieko Kukinaka, Mitsu Ono, Satoko Nakagomi, Hitomi Maeda, Kaori Muto, Sayomi Kitagawa, Fumika Yano, Yukari Fukuda, Rieko Murakami
    • Organizer
      The 1st International Nursing Research Conference of World Academy of Nursing Science(WANS)
    • Place of Presentation
      Kobe International Exhibition Hall(Kobe、Japan)
    • Related Report
      2011 Final Research Report
  • [Presentation] 遺伝性神経難病患者・家族と看護職の協働教育プログラム開発の提言-家族性アミロイドポリニューロパチーに関する文献検討をもとに-2009

    • Author(s)
      柊中智恵子, 小野ミツ, 中込さと子, 前田ひとみ, 武藤香織
    • Organizer
      第8回日本遺伝看護学会学術集会
    • Place of Presentation
      広島大学広仁会館(広島)
    • Related Report
      2011 Final Research Report

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Published: 2008-04-01   Modified: 2016-04-21  

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