|Budget Amount *help
¥1,118,000 (Direct Cost: ¥860,000、Indirect Cost: ¥258,000)
Fiscal Year 2009: ¥728,000 (Direct Cost: ¥560,000、Indirect Cost: ¥168,000)
Fiscal Year 2008: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Adolescents (11-14years) who received bone marrow transplant between the ages of 9 and 14 years and their parents were recruited from pediatric Hematology/Oncology outpatient department in a general hospital in Japan. Data were collected using semi-structured interviews about their cognition and feelings about self-care related to their disease and/or body condition. In addition, participant observations during medical check-ups were conducted. The data were analyzed using descriptive methods.
The cognition and feelings of four adolescents were characterized by the three behaviors types-taking medication and receiving treatment, preventing excessive sun exposure and infection, and having knowledge of their disease and late effects as follows:
1. All participants understood the necessity of receiving treatment and/or medication, and they made an effort to participate in their symptom management.
2. Participants made appropriate efforts to ensure adequate protection against excessive sun ex
posure and infection. However, as their parents urged them to prevent excessive sun exposure and/or infection without further explanation, not all participants understood the reasons for protection.
3. All adolescent understand necessity of go to check-ups and go every time. However, they don't think about continuing check-ups in the future.
4. Adolescent's cognition and feelings influenced by parent's encouragement. Parent don't want to their child know about late effects until 5 years from diagnosed. But they make their child to do their self-care concerned about disease.
The cognition and feelings of adolescents who received bone marrow transplant were characterized by the three behaviors types including the taking medication and receiving treatments, preventing sunshine and infection, and knowledge of their disease and late effects. Adolescent's cognition and feelings influenced by parent's encouragement. Therefore, it is important teaching about risk behaviors like smoke and alcohol. And support them that they can management their activity by themselves. Less