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Development of research methods for improving care to support the lives of the children who have severe multiple disabilities

Research Project

Project/Area Number 20K10926
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 58070:Lifelong developmental nursing-related
Research InstitutionSetsunan University

Principal Investigator

Naoko KAMEDA  摂南大学, 看護学部, 講師 (70737452)

Co-Investigator(Kenkyū-buntansha) 家高 洋  東北医科薬科大学, 教養教育センター, 教授 (70456937)
池田 友美  摂南大学, 看護学部, 教授 (70434959)
Project Period (FY) 2020-04-01 – 2024-03-31
Project Status Discontinued (Fiscal Year 2023)
Budget Amount *help
¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2023: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2022: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2021: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2020: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Keywords重症心身障害 / 子ども / 意図的反応 / 生活 / ケア / ケア提供者 / 研究方法 / 質的研究 / 介護者 / 看護
Outline of Research at the Start

重度脳損傷児の生活を支えるケアのための研究方法開発(2017年度~基盤研究C 17K12381)の継続課題である。質的記述的研究を基幹とし、質問紙調査による情報や量的データを補完的に活用し、データ収集、分析を実施中である。目的とする介護者の経験開示と研究方法開発を推進したい。2020年度~2021年度は新型コロナの影響を鑑み、データ分析、方法論的考察、研究成果に基づくパンフレット制作を進め、新型コロナの収束を待って、データ収集を再開する。2022年度には完成したパンフレットを研究方法に組み込み、2023年度には『超重度の重症心身障害児の生活を支えるケア向上に繋がる研究方法』として提示したい。

Outline of Final Research Achievements

The objective of this study is to disclose the experiences of caregivers in caring for children with severe multiple disabilities who have difficulty expressing themselves through words or gestures. Additionally, it aims to develop care methods and research methodologies to better capture these children's intentional responses. This study continues our previous research, "Phenomenological Study on the Lives of Children with Severe Brain Injuries" and "Development of Research Methods to Support the Care of Children with Severe Brain Injuries." We presented a process of sharing to get new viewpoints to notice the will of a child with severe multiple disabilities at academic conferences. And we published papers discussing research methodologies. With the grant obtained from last year's continued application, this project will transition to "Development of Research Methods for Improving Care to Support the Lives of Children with Severe Multiple Disabilities" (JSPS KAKENHI 23K10146).

Academic Significance and Societal Importance of the Research Achievements

本研究の学術的意義は、言葉やジェスチャーによる意思表示が困難な状態にある超重症児へのケアにおけるケア提供者の「不確かな感覚」を含む経験を現象学的に記述し、ケア方法開発と研究方法構築を図る点にある。特に、超重症児の環境刺激への応答や意図的な反応をより正確に捉える方法を提示したことは、国際的課題である超重症児へのケアの最適化および意識障害の誤分類克服に資する基礎的データとして、医学的にも意義がある。社会的意義としては、超重症児とその家族の生活の質を向上させ、ケア提供者の負担軽減に寄与する点が挙げられる。本研究の成果は、ケア提供の現場において具体的な改善をもたらすと考えられる。

Report

(4 results)
  • 2023 Final Research Report ( PDF )
  • 2022 Annual Research Report
  • 2021 Research-status Report
  • 2020 Research-status Report
  • Research Products

    (13 results)

All 2023 2022 2021 2020 Other

All Journal Article (5 results) (of which Peer Reviewed: 5 results,  Open Access: 1 results) Presentation (4 results) (of which Int'l Joint Research: 4 results) Remarks (4 results)

  • [Journal Article] 特別記事 応答的理性について1-一例を扱う質的研究の正当性のために2023

    • Author(s)
      家髙 洋
    • Journal Title

      看護研究

      Volume: 56 Issue: 1 Pages: 52-63

    • DOI

      10.11477/mf.1681202068

    • ISSN
      0022-8370, 1882-1405
    • Year and Date
      2023-02-15
    • Related Report
      2022 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 看護実践の事例研究の学術性2022

    • Author(s)
      家高 洋
    • Journal Title

      家族看護学研究

      Volume: 27(2) Pages: 1-6

    • Related Report
      2021 Research-status Report
    • Peer Reviewed
  • [Journal Article] 「現象学とエスノメソドロジーの現在」について2021

    • Author(s)
      家高 洋
    • Journal Title

      現象学と社会科学

      Volume: 4 Pages: 63-68

    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] 実践の事例研究で学ばれる事柄をどのように考えるか(前編)2020

    • Author(s)
      家高 洋
    • Journal Title

      看護研究

      Volume: 53(4) Pages: 316-324

    • Related Report
      2020 Research-status Report
    • Peer Reviewed
  • [Journal Article] 実践の事例研究で学ばれる事柄をどのように考えるか(後編)2020

    • Author(s)
      家高 洋
    • Journal Title

      看護研究

      Volume: 53(5) Pages: 430-438

    • Related Report
      2020 Research-status Report
    • Peer Reviewed
  • [Presentation] HOW CAREGIVERS GOT THE NEW PERSPECTIVE TO OPTIMIZE THE CARE FOR A CHILD WHO COULD NOT EXPLAIN HIS WILL DUE TO SEVERE CEREBRAL PALSY2023

    • Author(s)
      Naoko KAMEDA, Hiroshi IETAKA, Tomomi IKEDA
    • Organizer
      International Council of Nursing Congress 2023 Montreal
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] EFFECTS OF A STUDY THAT DISCLOSE CAREGIVERS’ EXPERIENCES TO READ THE WILL OF A CHILD WITH SEVERE MULTIPLE DISABILITIES2022

    • Author(s)
      Naoko KAMEDA, Tomomi IKEDA, Hiroshi IETAKA
    • Organizer
      The25th East Asian Forum of Nursing Scholars Conference
    • Related Report
      2022 Annual Research Report
    • Int'l Joint Research
  • [Presentation] EFFECTS OF A STUDY THAT DISCLOSE CAREGIVERS’ EXPERIENCES TO READ THE WILL OF A CHILD WITH SEVERE MULTIPLE DISABILITIES2021

    • Author(s)
      Naoko KAMEDA, Tomomi IKEDA, Hiroshi IETAKA
    • Organizer
      The 25th East Asian Forum of Nursing Scholars
    • Related Report
      2021 Research-status Report
    • Int'l Joint Research
  • [Presentation] A PROCESS OF SHARING TO GET NEW VIEWPOINTS TO NOTICE THE WILL OF A CHILD WITH SEVERE CEREBRAL PALSY2021

    • Author(s)
      Naoko KAMEDA, Tomomi IKEDA, Hiroshi IETAKA
    • Organizer
      The 24th East Asian Forum of Nursing Scholars
    • Related Report
      2020 Research-status Report
    • Int'l Joint Research
  • [Remarks] 摂南大学研究者総覧 研究者詳細 亀田直子

    • URL

      https://gyoseki.setsunan.ac.jp/html/100001237_ja.html

    • Related Report
      2020 Research-status Report
  • [Remarks] ORCID 亀田直子

    • URL

      https://orcid.org/0000-0002-3171-0676

    • Related Report
      2020 Research-status Report
  • [Remarks] 摂南大学研究者総覧 研究者詳細 池田友美

    • URL

      https://gyoseki.setsunan.ac.jp/html/100001147_ja.html

    • Related Report
      2020 Research-status Report
  • [Remarks] 東北医科薬科大学 教養教育センター 研究室案内 家高洋

    • URL

      https://www.tohoku-mpu.ac.jp/facilities/kyoyokyoiku/lab/lp_f08/

    • Related Report
      2020 Research-status Report

URL: 

Published: 2020-04-28   Modified: 2025-01-30  

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