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Examining the usefulness and problem related to clinical utilization of nursing care guideline for biliary atresia survivors with their native liver to organize daily lives

Research Project

Project/Area Number 20K19188
Research Category

Grant-in-Aid for Early-Career Scientists

Allocation TypeMulti-year Fund
Review Section Basic Section 58070:Lifelong developmental nursing-related
Research InstitutionShowa University (2022-2023)
Sophia University (2020-2021)

Principal Investigator

Hiratsuka Katsuhiro  昭和大学, 保健医療学部, 講師 (30802475)

Project Period (FY) 2020-04-01 – 2024-03-31
Project Status Completed (Fiscal Year 2023)
Budget Amount *help
¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2022: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2021: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2020: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Keywords小児看護 / 胆道閉鎖症 / 思春期 / 青年期 / ケアガイドライン / 社会実装 / セルフケア / トランジション / 実践 / 実装 / 移行期
Outline of Research at the Start

胆道閉鎖症は、小児期に発症し、継続的な治療を行う病気で、常に肝移植を要する可能性があるという特徴がある。
肝移植を受けていない胆道閉鎖症患者は、親との関係性や親から自立した生活を築くことに難しさを抱える。一方で、患者の親は、生体肝移植ドナーになる怖さや、子どもを自立させることへの不安を感じる。
そこで、患者が自ら生活を整えながら肝移植の可能性に対処していく過程を支えることを目指した、看護師が使用するケアガイドラインを開発した。
この研究では、このケアガイドラインを経験豊富な看護師に実際に活用してもらい、臨床現場で日常的に取り入れ、ケアの質向上に活かすことができるか等を検討する。

Outline of Final Research Achievements

"Nursing practice using care guidelines by nursing professionals in clinical settings" was followed by the completion of "Interview survey on the usefulness of care guidelines and issues in their utilization," and the results were analyzed. The results showed that the care guidelines should be evaluated not only by the nurses who provide care, but also by the organization as a whole, with a view to team building among other professions, including physicians, and an organizational movement involving the hospital system, so that the care guidelines can be evaluated not only as "good and effective," but also as "usable and used, The results confirmed the possibility that the Care Guide could lead to an implementation outcome of "usable and used" rather than just "good and effective.

Academic Significance and Societal Importance of the Research Achievements

先行研究で開発した『自己肝にて生存する思春期・青年期胆道閉鎖症患者が自ら療養生活を整えていくための患者と親へのケアガイドライン』について、看護職者によるケアガイドの活用で得た実践知から、ケアガイドの有用性と継続的活用への課題を明らかにした。この成果により、開発や効果検証に留まることが多い研究によるガイドライン等の社会実装における課題解決や臨床現場と研究を往還した新しい成果の創造に繋がる可能性が示された。

Report

(5 results)
  • 2023 Annual Research Report   Final Research Report ( PDF )
  • 2022 Research-status Report
  • 2021 Research-status Report
  • 2020 Research-status Report
  • Research Products

    (5 results)

All 2024 2022 2021 2020

All Journal Article (2 results) (of which Peer Reviewed: 2 results,  Open Access: 1 results) Presentation (3 results)

  • [Journal Article] Examining How Adolescent and Young Adult Patients with Biliary Atresia Survive with Their Native Liver to Organize Their Daily Lives2021

    • Author(s)
      平塚 克洋
    • Journal Title

      Journal of Japan Society of Nursing Research

      Volume: 44 Issue: 1 Pages: 1_73-1_85

    • DOI

      10.15065/jjsnr.20200805098

    • NAID

      130008028224

    • ISSN
      2188-3599, 2189-6100
    • Year and Date
      2021-04-20
    • Related Report
      2020 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] How Parents of Adolescents and Young Adults with Biliary Atresia Surviving with Native Livers Transfer the Responsibility of Medical Treatment to Their Children in Japan.2021

    • Author(s)
      Hiratsuka K, Nakamura N, Sato N, Saito T.
    • Journal Title

      J Pediatr Nurs.

      Volume: 61 Pages: 115-121

    • DOI

      10.1016/j.pedn.2021.05.004

    • Related Report
      2021 Research-status Report
    • Peer Reviewed
  • [Presentation] 思春期・青年期の胆道閉鎖症患者の療養生活の整えを支えるケアガイドの有用性と活用課題の検討2024

    • Author(s)
      平塚克洋, 濟陽寛子
    • Organizer
      第71回日本小児保健協会学術集会
    • Related Report
      2023 Annual Research Report
  • [Presentation] 思春期・青年期胆道閉鎖症患者が自ら療養生活を整えていくための患者と親へのケアガイドラインの開発2022

    • Author(s)
      平塚克洋、中村伸枝、佐藤奈保
    • Organizer
      第32回 日本小児看護学会学術集会
    • Related Report
      2022 Research-status Report
  • [Presentation] 思春期青年期の胆道閉鎖症患者が自ら療養生活を整えていくためのケアガイドライン開発 ―肝移植後のより良い生活を見据えて―2020

    • Author(s)
      平塚克洋、中村伸枝、佐藤奈保
    • Organizer
      第38回 日本肝移植学会学術集会
    • Related Report
      2020 Research-status Report

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Published: 2020-04-28   Modified: 2025-01-30  

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