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A project of improve nursing practice abilities for people who have a genetic disease.

Research Project

Project/Area Number 21390568
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypeSingle-year Grants
Section一般
Research Field Fundamental nursing
Research InstitutionYamaguchi University

Principal Investigator

KUTSUNUGI Saeko  山口大学, 大学院・医学系研究科, 助教 (50513785)

Co-Investigator(Kenkyū-buntansha) MURAKAMI Kyoko  山口大学, 大学院・医学系研究科, 教授 (10294662)
IINO Hidechika  西南女学院大学, 保健福祉学部, 教授 (20284276)
TSUJINO Kumiko  琉球大学, 医学部, 教授 (60269157)
TURALE SUSAN (TURALE Susan)  山口大学, 大学院・医学系研究科, 教授 (30420516)
Project Period (FY) 2009 – 2012
Project Status Completed (Fiscal Year 2012)
Budget Amount *help
¥17,680,000 (Direct Cost: ¥13,600,000、Indirect Cost: ¥4,080,000)
Fiscal Year 2012: ¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2011: ¥4,550,000 (Direct Cost: ¥3,500,000、Indirect Cost: ¥1,050,000)
Fiscal Year 2010: ¥4,420,000 (Direct Cost: ¥3,400,000、Indirect Cost: ¥1,020,000)
Fiscal Year 2009: ¥4,420,000 (Direct Cost: ¥3,400,000、Indirect Cost: ¥1,020,000)
Keywords遺伝的疾患 / 看護実践能力 / e-ラーニング / ネットワーク / 稀少遺伝性疾患
Research Abstract

The studies were conducted for the purpose of improve nursing practice abilities for people who have a genetic disease. We set up a Web page, and developed an e-learning materials. We built a network among nurses who were doing care for patients (clients) with a genetic disease and their parents. We also share information in the workshop. We conducted some surveys about rare genetic diseases that haven’t been done research before, and announced results. It was possible through the invitation of researchers and visits to foreign countries, to incorporate an international perspective on nursing to genetic disease.

Report

(5 results)
  • 2012 Annual Research Report   Final Research Report ( PDF )
  • 2011 Annual Research Report
  • 2010 Annual Research Report
  • 2009 Annual Research Report
  • Research Products

    (48 results)

All 2013 2012 2011 2010 2009 Other

All Journal Article (10 results) (of which Peer Reviewed: 10 results) Presentation (36 results) Remarks (2 results)

  • [Journal Article] apanese women's attitudes towards routine ultrasound screening during pregnancy2012

    • Author(s)
      Kyoko Murakami、 Kumiko Tsujino、Masakatsu Sase、Masahiko Nakata、Misae Ito 、 Saeko Kutsunugi
    • Journal Title

      Nursing and Health Sciences

      Volume: Vol.14、No.1 Pages: 95-10

    • Related Report
      2012 Final Research Report
    • Peer Reviewed
  • [Journal Article] Japanese women's attitudes towards routine ultrasound screening during pregnancy2012

    • Author(s)
      Murakami K, Tsujino K, Sase M, Nakata M, Ito M, Kutsunugi S
    • Journal Title

      Nursing and Health Sciences

      Volume: 13(1)(未定)

    • Related Report
      2011 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 看護職の遺伝医療への関わりとケアに伴う困難感-山口県における周産期・小児領域看護職の現状-2011

    • Author(s)
      村上京子、辻野久美子、沓脱小枝子、飯野英親、伊東美佐江
    • Journal Title

      日本遺伝看護学会誌

      Volume: 10巻第1号 Pages: 61-69

    • NAID

      120005285738

    • Related Report
      2012 Final Research Report 2011 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 近年の看護師・保健師国家試験における遺伝関連問題出題状況と課題2010

    • Author(s)
      辻野久美子
    • Journal Title

      日本遺伝看護学会誌

      Volume: 8巻第1,2号 Pages: 21-23

    • Related Report
      2012 Final Research Report 2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Genetic competence of midwives in the UK and Japan2010

    • Author(s)
      Heather Skirton、Kyoko Murakami、Kumiko Tsujino、Saeko Kutsunugi、Sue Turale
    • Journal Title

      Nursing and Health Sciences

      Volume: Vol.12、No.3 Pages: 292-303

    • Related Report
      2012 Final Research Report
    • Peer Reviewed
  • [Journal Article] 酵素補充療法を受けたムコ多糖症II型患児の看護-経過報告と今後に向けての課題2010

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子、仁志昌子、安本寿美江、板垣智恵子、塚原正人
    • Journal Title

      日本遺伝看護学会誌

      Volume: 8巻第1,2号 Pages: 1-6

    • Related Report
      2012 Final Research Report
    • Peer Reviewed
  • [Journal Article] 酵素補充療法を受けたムコ多糖症II型患児の看護-経過報告と今後に向けての課題-2010

    • Author(s)
      沓脱小枝子
    • Journal Title

      日本遺伝看護学会誌

      Volume: 8(1-2) Pages: 1-6

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Genetic competence of midwives in the UK and Japan2010

    • Author(s)
      H.Skirton
    • Journal Title

      Nursing and Health Sciences

      Volume: 12(3) Pages: 292-303

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 酵素補充療法を受けたムコ多糖症II型患児の看護2010

    • Author(s)
      沓脱小枝子
    • Journal Title

      日本遺伝看護学会誌 第八巻第一号

    • Related Report
      2009 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Genetic competence of midwives in the UK and Japan.2010

    • Author(s)
      Heather Skirton
    • Journal Title

      Nursing and Health Sciences Vol.12 no.3

    • Related Report
      2009 Annual Research Report
    • Peer Reviewed
  • [Presentation] Change in nursing students' image of autism- Through rehabilitation volunteer activities2013

    • Author(s)
      Tsujino Kumiko
    • Organizer
      The 16th East Asian Forum of Nursing Scholars
    • Place of Presentation
      The Emerald Hotel, Bangkok, Thailand
    • Related Report
      2012 Annual Research Report
  • [Presentation] Nursing care for children with PWS and their parents2012

    • Author(s)
      Saeko Kutsunugi、Kumiko Tsujino、Kyoko Murakami、 Hidechika Iino、 Kumiko Takeuchi
    • Organizer
      25th Annual ISONG Conference
    • Place of Presentation
      Philadelphia USA
    • Year and Date
      2012-10-26
    • Related Report
      2012 Final Research Report
  • [Presentation] A study on father's involvement and emotional feeling in parenting toddlers2012

    • Author(s)
      Kyoko Murakami
    • Organizer
      The 9thInternational Conference with the Global Network of WHO Collaborating Centers for Nursing and Midwifery
    • Place of Presentation
      Kobe Portpia Hotel Hyogo
    • Year and Date
      2012-07-01
    • Related Report
      2012 Final Research Report
  • [Presentation] Nursing care for children with PWS and their parents2012

    • Author(s)
      Saeko Kutsunugi
    • Organizer
      ISONG 25th Annual Conference
    • Place of Presentation
      Philadelphia, Pennsylvania USA
    • Related Report
      2012 Annual Research Report
  • [Presentation] A study on fathers’ involvement and emotional feeling in parenting toddlers.2012

    • Author(s)
      Kyoko Murakami
    • Organizer
      The 9th International Conference with the Global Network of WHO Collaborating Centres for Nursing and Midwifery
    • Place of Presentation
      Kobe Portpia Hotel, Hyogo
    • Related Report
      2012 Annual Research Report
  • [Presentation] 青年期における育児の見通しと医療の意思決定度2012

    • Author(s)
      村上京子
    • Organizer
      第32回日本看護科学学会学術集会
    • Place of Presentation
      東京国際フォーラム,東京
    • Related Report
      2012 Annual Research Report
  • [Presentation] The psychological strength and changes in Japanese mothers having children with chromosomal abnormalities2011

    • Author(s)
      Hidechika Iino、Kumiko Tsujino、Kyoko Murakami、Saeko Kutsunugi、Hideko Oda、Emi Kajiwara、Teruko Honda、Kazuyoshi Ohtsuka 、 Susan Turale
    • Organizer
      23rd Annual ISONG Conference
    • Place of Presentation
      The Fairmont Dallas, Texas, USA
    • Year and Date
      2011-10-18
    • Related Report
      2012 Final Research Report
  • [Presentation] Awareness of Prenatal Diagnosis among Japanese University Students2011

    • Author(s)
      Kumiko Tsujino
    • Organizer
      24th Annual ISONG Conference
    • Place of Presentation
      Montreal, Quebec, Canada
    • Year and Date
      2011-10-10
    • Related Report
      2012 Final Research Report
  • [Presentation] Awareness of Prenatal Diagnosis among Japanese University Students2011

    • Author(s)
      Tsujino.K
    • Organizer
      International Society of Nursing in Genetics
    • Place of Presentation
      Montreal, Quebec
    • Year and Date
      2011-10-10
    • Related Report
      2011 Annual Research Report
  • [Presentation] プラダーウィリー症候群の子どもとその家族への看護‐第2 報‐2011

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子、飯野英親、竹内久美子、Susan Turale
    • Organizer
      第10回日本遺伝看護学会学術集会
    • Place of Presentation
      日本赤十字看護大学、東京
    • Year and Date
      2011-09-23
    • Related Report
      2012 Final Research Report
  • [Presentation] 学校卒業後のダウン症者の生活、自立状況の実態と母親の思い2011

    • Author(s)
      辻野久美子、白木千夏、中島ちひろ、山根有賀、沓脱小枝子、村上京子
    • Organizer
      第10回日本遺伝看護学会学術集会
    • Place of Presentation
      日本赤十字看護大学、東京
    • Year and Date
      2011-09-23
    • Related Report
      2012 Final Research Report
  • [Presentation] プラダーウィリー症候群の子どもとその家族への看護-第2報-2011

    • Author(s)
      沓脱小枝子
    • Organizer
      日本遺伝看護学会第10回学術大会
    • Place of Presentation
      日本赤十字看護大学、渋谷区
    • Year and Date
      2011-09-23
    • Related Report
      2011 Annual Research Report
  • [Presentation] 学校卒業後のダウン症者の生活、自立状況の実態と母親の思い2011

    • Author(s)
      辻野久美子
    • Organizer
      日本遺伝看護学会第10回学術大会
    • Place of Presentation
      日本赤十字看護大学、渋谷区
    • Year and Date
      2011-09-23
    • Related Report
      2011 Annual Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態第1 報~学校卒業後の生活の実態~2011

    • Author(s)
      白木千夏
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、愛知
    • Year and Date
      2011-09-02
    • Related Report
      2012 Final Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態第2 報~学校卒業後の生活の実態~2011

    • Author(s)
      中島ちひろ
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、愛知
    • Year and Date
      2011-09-02
    • Related Report
      2012 Final Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態 第3 報~学校卒業後の生活の実態~2011

    • Author(s)
      山根有賀
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、愛知
    • Year and Date
      2011-09-02
    • Related Report
      2012 Final Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態第1報~学校卒業後の生活の実態~2011

    • Author(s)
      白木千夏
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、名古屋市
    • Year and Date
      2011-09-02
    • Related Report
      2011 Annual Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態第2報~学校卒業後の生活の実態~2011

    • Author(s)
      中島ちひろ
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、名古屋市
    • Year and Date
      2011-09-02
    • Related Report
      2011 Annual Research Report
  • [Presentation] ダウン症候群をもつ子どもにおける学校卒業後の生活や自立の実態第3報~学校卒業後の生活の実態~2011

    • Author(s)
      山根有賀
    • Organizer
      第58回日本小児保健協会学術集会
    • Place of Presentation
      名古屋国際会議場、名古屋市
    • Year and Date
      2011-09-02
    • Related Report
      2011 Annual Research Report
  • [Presentation] 稀少遺伝性疾患をもつ子どもとその家族への看護‐プラダーウィリー症候群について‐2011

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子、飯野英親、竹内久美子、Susan Turale
    • Organizer
      第116回山口大学医学会学術講演会
    • Place of Presentation
      山口大学医学部霜仁会館、山口
    • Year and Date
      2011-07-16
    • Related Report
      2012 Final Research Report
  • [Presentation] 稀少遺伝性疾患をもつ子どもとその家族への看護-プラダーウィリー症候群について-2011

    • Author(s)
      沓脱小枝子
    • Organizer
      第116回山口大学医学会学術講演会
    • Place of Presentation
      山口大学医学部霜仁会館、宇部市
    • Year and Date
      2011-07-16
    • Related Report
      2011 Annual Research Report
  • [Presentation] 出生前診断に対する大学生の意識2010

    • Author(s)
      辻野久美子、沓脱小枝子、村上京子
    • Organizer
      第30回日本看護科学学会学術集会
    • Place of Presentation
      札幌コンベンションセンター、北海道
    • Year and Date
      2010-12-04
    • Related Report
      2012 Final Research Report
  • [Presentation] 出生前診断に対する大学生の意識2010

    • Author(s)
      辻野久美子
    • Organizer
      第30回日本看護科学学会学術集会
    • Place of Presentation
      札幌コンベンションセンター
    • Year and Date
      2010-12-04
    • Related Report
      2010 Annual Research Report
  • [Presentation] The psychological strength and changes in Japanese mothers having childrern with chromosomal abnormalities2010

    • Author(s)
      H.Iino
    • Organizer
      ISONG 23rd Annual conference
    • Place of Presentation
      The Fairmont Dallas, Texas, USA
    • Year and Date
      2010-10-18
    • Related Report
      2010 Annual Research Report
  • [Presentation] プラダーウィリー症候群の子どもとその家族への看護ケア‐第1報‐2010

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子
    • Organizer
      第9回日本遺伝看護学会学術集会
    • Place of Presentation
      慶応義塾大学信濃町キャンパス、東京
    • Year and Date
      2010-10-03
    • Related Report
      2012 Final Research Report
  • [Presentation] 遺伝医療における周産期・小児領域看護職の関わりとケアに伴う困難感2010

    • Author(s)
      村上京子、辻野久美子、沓脱小枝子、飯野英親、伊東美佐江
    • Organizer
      第9回日本遺伝看護学会学術集会
    • Place of Presentation
      慶応義塾大学信濃町キャンパス、東京
    • Year and Date
      2010-10-03
    • Related Report
      2012 Final Research Report
  • [Presentation] プラダーウィリー症候群の子どもとその家族への看護ケア-第1報-2010

    • Author(s)
      沓脱小枝子
    • Organizer
      第90回日本遺伝看護学会学術集会
    • Place of Presentation
      慶応義塾大学信濃町キャンパス
    • Year and Date
      2010-10-03
    • Related Report
      2010 Annual Research Report
  • [Presentation] 遺伝医療における周産期・小児領域看護職の関わりとケアに伴う困難感2010

    • Author(s)
      村上京子
    • Organizer
      第9回日本遺伝看護学会学術集会
    • Place of Presentation
      慶応義塾大学信濃町キャンパス
    • Year and Date
      2010-10-03
    • Related Report
      2010 Annual Research Report
  • [Presentation] Nursing practice for a child with Mucopolysaccharidosis in enzyme replacement therapy -Case Report-2009

    • Author(s)
      Saeko Kutsunugi、Kumiko Tsujino、Kyoko Murakami 、 Susan Turale 、 Masato Tsukahara 、 Hidechika Iino
    • Organizer
      22nd Annual ISONG Conference
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2012 Final Research Report
  • [Presentation] Masato Tsukahara、Susan Turale、ASSESSMENT OF GENETIC CONTENT IN JAPAN'S NATIONAL BOARD EXAMS FOR REGISTERED NURSES AND PUBLIC HEALTH NURSES, 2004-20082009

    • Author(s)
      Kumiko Tsujino、Yuko Nakashima、Saeko Kutsunugi、 Kyoko Murakami、 Masato Tsukahara、Susan Turale
    • Organizer
      22nd Annual ISONG Conference
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2012 Final Research Report
  • [Presentation] Experiences of genetic nursing care among perinatal and pediatric nurse professionals in Japan2009

    • Author(s)
      Kyoko Murakami、Kumiko Tsujino、Saeko Kutsunugi、Misae Ito、Hidechika Iino、Masato Tsukahara
    • Organizer
      22nd Annual ISONG Conference
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2012 Final Research Report
  • [Presentation] The characteristics of nursing diagnosis for children with Wolf-Hirschhorn Syndrome2009

    • Author(s)
      Hidechika Iino、 Masato Tsukahara 、Kumiko Tsujino、Kyoko Murakami、Saeko Kutsunugi、Hideko Oda、Emi Kajiwara、Yuri Hara、Kazuyoshi Ohtsuka、Teruko Honda 、 Susan Turale
    • Organizer
      22nd Annual ISONG Conference
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2012 Final Research Report
  • [Presentation] Nursing practice for a child with Mucopolysaccharidosis in enzyme replacement therapy-Case Report-2009

    • Author(s)
      Saeko Kutsunugi
    • Organizer
      22nd Annual ISONG Conferrence
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2009 Annual Research Report
  • [Presentation] ASSESSMENT OF GENETIC CONTENT IN JAPAN'S NATIONAL BOARD EXAMS FOR REGISTERED NURSES AND PUBLIC HEALTH NURSES, 2004-20082009

    • Author(s)
      Kumiko Tsujino
    • Organizer
      22nd Annual ISONG Conferrence
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2009 Annual Research Report
  • [Presentation] Experiences of genetic nursing care among perinatal and pediatric nurse professionals in Japan2009

    • Author(s)
      Kyoko Murakami
    • Organizer
      22nd Annual ISONG Conferrence
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2009 Annual Research Report
  • [Presentation] The characteristics of nursing diagnosis for children with Wolf-Hirschhorn Syndrome2009

    • Author(s)
      Hidechika Iino
    • Organizer
      22nd Annual ISONG Conferrence
    • Place of Presentation
      The Catamaran Resort San Diego, California USA
    • Year and Date
      2009-10-18
    • Related Report
      2009 Annual Research Report
  • [Remarks] 遺伝看護学習用webページ

    • URL

      http://web.cc.yamaguchi-u.ac.jp/shouni/

    • Related Report
      2012 Final Research Report
  • [Remarks] 遺伝看護学習用webページ

    • URL

      http://web.cc.yamaguchi-u.ac.jp/~shouni/

    • Related Report
      2010 Annual Research Report

URL: 

Published: 2009-04-01   Modified: 2019-07-29  

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