Thick description of the life of intractable diseases using narrative methods
| Project/Area Number |
21653074
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| Research Category |
Grant-in-Aid for Challenging Exploratory Research
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| Allocation Type | Single-year Grants |
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| Research Field |
Clinical psychology
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| Research Institution | Ritsumeikan University |
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Principal Investigator |
SATO Tatsuya 立命館大学, 文学部, 教授 (90215806)
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| Project Period (FY) |
2009 – 2011
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| Project Status |
Completed (Fiscal Year 2011)
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| Budget Amount *help |
¥3,200,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥300,000)
Fiscal Year 2011: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2010: ¥1,100,000 (Direct Cost: ¥1,100,000)
Fiscal Year 2009: ¥800,000 (Direct Cost: ¥800,000)
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| Keywords | ナラティブ / QOL / SEIQOL / TEM / 医療心理学 / 難病 / 質的研究 / 対話的自己(Dialogical Self) / ナラティヴ / 厚生心理学 / 難行患者のライフ / 複線径路等至性モデル |
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| Research Abstract |
The purpose of this study is to psychology for treating the life of Nambyo(intractable diseases) patients. Many instruments used to measure Health Related QOL focus narrowly on physical functioning and disregard the well-being of patients. I use the qualitative and rather new methodology for treating the patients' lives. These are SEIQOL(the Schedule for the Evaluation of Individual Quality of Life) and TEM(Trajectory Equifinality Model). In empirical study, SEIQOL was conducted for describing a patient's QOL-related experiences for three years. This longitudinal survey reveals the maintenance and transformation of patient's QOL instead of patient's deterioration of disease. In theoretical part, TEM's basic methodological tools were invented and the model of psychological self which is called "mountain range selves" was proposed. A possibility of a new sub discipline of psychology concerned with the lives of Nambyo(intractable diseases) patients has been established by this study.
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Report
(4 results)
Research Products
(53 results)
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[Journal Article]2009
Author(s)
Valsiner, J.; Molenaar, P.C.M.; Lyra, M.C.D.P.; Chaudhary, N.(Eds.)
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Journal Title
Dynamic Process Methodology in the Social and Developmental Sciences(Springer)
Pages: 217-240
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[Presentation] HOW ALS PATIENTS EXPERIENCE AND MAKE SENSE THE LIFE WITH ILLNESS2012
Author(s)
Hidaka, T., Mizuki, S., Fukuda, M., Akasaka, M., and Sato, T.
Organizer
The 7th International Conference on Rare diseases & Orphan Drugs 2012
Place of Presentation
University of Tokyo, Japan
Year and Date
2012-02-05
Related Report
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[Presentation] HOW ALS PATIENTS EXPERIENCE AND MAKE SENSE THE LIFE WITH ILLNESS2012
Author(s)
Hidaka, T., Mizuki, S., Fukuda, M., Akasaka, M., Sato, T.
Organizer
The 7th International Conference on Rare diseases & Orphan Drugs
Place of Presentation
Tokyo, University of Tokyo
Year and Date
2012-02-05
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[Book] Understanding a Personality as a Whole. in Toomera, A., & Valsiner, J.(Eds.) Methodological Thinking in Psychology : 60 Years Gone Astray2010
Author(s)
Sato, T., Wakabayashi, K., Nameda, A., Yasuda, Y., & Watanabe, Y.
Publisher
InfoAge Publications
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