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Change in role recognition of ALS patients:Given up roles, maintained roles, and acquired roles

Research Project

Project/Area Number 22530599
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Social welfare and social work studies
Research InstitutionOita University (2012-2013)
Niigata University (2010-2011)

Principal Investigator

SUMIDA YOSHIMI  大分大学, 福祉社会科学研究科, 教授 (90377185)

Co-Investigator(Renkei-kenkyūsha) SASAKI Kouichi  日本ALS協会, 東京都支部
Project Period (FY) 2010-04-01 – 2013-03-31
Project Status Completed (Fiscal Year 2013)
Budget Amount *help
¥3,250,000 (Direct Cost: ¥2,500,000、Indirect Cost: ¥750,000)
Fiscal Year 2012: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2011: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2010: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Keywords障害受容 / 家族役割 / 社会役割 / アイデンティティ / 筋萎縮性側索硬化症 / 社会福祉関係 / 医療・療福祉 / 難病 / 医療福祉
Research Abstract

The process of identity rebuilding following identity destruction with the progression of ALS was found to be related to the process of moving from role loss to role continuation and new role acquisition. Regardless of whether the patient was a mechanical ventilator user, 50% perceived themselves as having a familial role. Patients with a higher number of sources of enjoyment had higher levels of perception of a societal role. It was also possible for patients to have sources of enjoyment regardless of mechanical ventilator use or severity of disability. These findings suggest that regaining a perception of role through sources of enjoyment increases the possibility of rebuilding identity.

Report

(4 results)
  • 2013 Final Research Report ( PDF )
  • 2012 Annual Research Report
  • 2011 Annual Research Report
  • 2010 Annual Research Report
  • Research Products

    (8 results)

All 2013 2012 2011 Other

All Journal Article (2 results) (of which Peer Reviewed: 2 results) Presentation (6 results)

  • [Journal Article] 筋萎縮性側索硬化症(ALS)患者の役割認識の変化―非連続性から連続性へのプロセスを通して―

    • Author(s)
      隅田好美
    • Journal Title

      社会福祉学

      Volume: (投稿中)

    • NAID

      110009900518

    • Related Report
      2013 Final Research Report
    • Peer Reviewed
  • [Journal Article] 筋萎縮性側索硬化症(ALS)患者における家族役割・社会役割の認識

    • Author(s)
      隅田好美、佐々木公一
    • Journal Title

      日本難病看護学会

      Volume: (投稿中)

    • Related Report
      2013 Final Research Report
    • Peer Reviewed
  • [Presentation] 筋萎縮性側索硬化症の進行に伴う不安と役割認識の変化2013

    • Author(s)
      隅田好美、佐々木公一
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2013-08-24
    • Related Report
      2013 Final Research Report
  • [Presentation] 筋萎縮性側索硬化症の進行に伴う不安と役割認識の変化2013

    • Author(s)
      隅田好美
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東邦大学看護学部(東京都大田区)
    • Related Report
      2012 Annual Research Report
  • [Presentation] 筋萎縮性側索硬化(ALS)患者における家族役割・社会役割の変化2012

    • Author(s)
      隅田好美、佐々木公一
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2012-09-01
    • Related Report
      2013 Final Research Report
  • [Presentation] 筋萎縮性側索硬化(ALS)患者における家族役割・社会役割の変化2012

    • Author(s)
      隅田好美
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      セシオン杉並(東京都杉並区)
    • Related Report
      2012 Annual Research Report
  • [Presentation] 病いの受容過程における役割認識の変化―ALS患者への質的調査を通して―2011

    • Author(s)
      隅田好美、佐々木公一
    • Organizer
      第16回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2011-08-27
    • Related Report
      2013 Final Research Report
  • [Presentation] 病いの受容過程における役割認識の変化-ALS患者への質的調査を通して-2011

    • Author(s)
      隅田好美
    • Organizer
      第16回日本難病看護学会学術集会
    • Place of Presentation
      昭和大学医学部附属看護専門学校(東京都)
    • Year and Date
      2011-08-27
    • Related Report
      2011 Annual Research Report

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Published: 2010-08-23   Modified: 2019-07-29  

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