| Project/Area Number |
22592517
|
|---|
| Research Category |
Grant-in-Aid for Scientific Research (C)
|
| Allocation Type | Single-year Grants |
|---|
| Section | 一般 |
|---|
| Research Field |
Lifelong developmental nursing
|
|---|
| Research Institution | Japan University of Health Sciences |
|---|
Principal Investigator |
TAZAKI Chieko 日本保健医療大学, 保健医療学部, 准教授 (00389892)
|
|---|
| Co-Investigator(Kenkyū-buntansha) |
KUBO Kyoko 横浜創英大学, 看護学部, 教授 (10320798)
KISHIDA Yasuko 杏林大学, 保健学部, 教授 (60294237)
TAMURA Takeshi 東京学芸大学, 教育学部, 教授 (10242231)
|
|---|
| Project Period (FY) |
2010 – 2012
|
| Project Status |
Completed (Fiscal Year 2012)
|
| Budget Amount *help |
¥4,030,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥930,000)
Fiscal Year 2012: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2011: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2010: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
|
|---|
| Keywords | ムコ多糖症 / 酵素補充療法 / 恩恵と負担 / 意思決定 |
|---|
| Research Abstract |
Mucopolysaccharidosis is one of lysosomal diseases that are congenital and hereditary inborn errors of metabolism , and currently we ’ve found no specific treatment for full recovery from mucopolysaccharidosis . In 2007 , an enzymereplacement therapy with Elaprase , a long-awaited therapeutic agent (genetical recombination) for mucopolysaccharidosis , was introduced to Japan . This study aims to research the benefit and burden the patients and their families are suffering due to the therapy for mucopolysaccharidosis , and to define an approach to consistently support the patients who are under the therapy with anxiety . The writingorganized in the benefit group could be further divided into 3 categories : bodycondition , psychology and sociology , and development , whileas the writing in the burden group could be further divided into 4 categories of therapy approach , nursing care , medical effect , and medical facility and system.
|
