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Sjogren's syndrome patients with work-life balance and health support

Research Project

Project/Area Number 22890207
Research Category

Grant-in-Aid for Research Activity Start-up

Allocation TypeSingle-year Grants
Research Field Community health/Gerontological nurisng
Research InstitutionJapanese Red Cross College of Nursing

Principal Investigator

MIYAUCHI Kiyoko  日本赤十字看護大学, 看護学部, 講師 (40459649)

Project Period (FY) 2010 – 2011
Project Status Completed (Fiscal Year 2011)
Budget Amount *help
¥2,678,000 (Direct Cost: ¥2,060,000、Indirect Cost: ¥618,000)
Fiscal Year 2011: ¥1,339,000 (Direct Cost: ¥1,030,000、Indirect Cost: ¥309,000)
Fiscal Year 2010: ¥1,339,000 (Direct Cost: ¥1,030,000、Indirect Cost: ¥309,000)
Keywords地域看護学 / 健康教育 / 看護学 / ワークライフバランス / 健康支援
Research Abstract

This study aimed to determine the view of patients diagnosed with Sjogren's syndrome and understand the type of difficult situations experienced by these patients. The study had a qualitative descriptive. And involved 8 women who had Sjogren's syndrome and belonged to different age groups ranging from the 30s to the 70s. These participants underwent semi-structured interview. The data from the interviews indicated that these patients took some time to get over the difficult experiences encountered as a result of ill acceptance. For a considerable period of time, these women required a great effort to arrive at the medical institution. Moreover, they were troubled by symptoms and stress symptoms that were not understood by other people. Furthermore, there were other unfair responses and a sense of alienation. We became a disease perception reception, they understood the actions to be taken against a particular symptom and devised their lives accordingly. Their disease perception reception accomplish an important a large role by that were able to understand the needs of the women with Sjogren's syndrome.
The interview results based on questionnaire survey was conducted. This study was obtained from 316 women, to whom a self-ansering questionnaires were distributed. Depression scale in the outcomes(CED-D) scoring average 23.0(SD11.1), The depressed state showed significantly high scores of'enjoy in recuperation'Raynaud's phenomenon''work fatigue''lack of understanding around''action restrictions such as the hobby'. Our results indicate that early intervention is important with respect to providing health support for patients with Sjogren's syndrome, and suggest that these interventions should involve self-help.

Report

(3 results)
  • 2011 Annual Research Report   Final Research Report ( PDF )
  • 2010 Annual Research Report
  • Research Products

    (1 results)

All 2012

All Journal Article (1 results) (of which Peer Reviewed: 1 results)

  • [Journal Article] シェーグレン症候群患者の疾病受容過程における思い2012

    • Author(s)
      宮内清子
    • Journal Title

      日本赤十字看護大学紀要

      Volume: 第26巻 Pages: 51-59

    • NAID

      40019280346

    • Related Report
      2011 Annual Research Report 2011 Final Research Report
    • Peer Reviewed

URL: 

Published: 2010-08-27   Modified: 2016-04-21  

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