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Study to relate to QOL with chronologic change of SEIQoL-DW for juvenile nerve intractable disease patients

Research Project

Project/Area Number 23593275
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical nursing
Research InstitutionHiroshima International University

Principal Investigator

AKIYAMA SATORU  広島国際大学, 看護学部, 教授 (50284401)

Research Collaborator OKAMOTO Yuko  
Project Period (FY) 2011-04-28 – 2016-03-31
Project Status Completed (Fiscal Year 2015)
Budget Amount *help
¥2,730,000 (Direct Cost: ¥2,100,000、Indirect Cost: ¥630,000)
Fiscal Year 2015: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2014: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2013: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2012: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2011: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Keywords神経難病 / 若年性パーキンソン病 / QOL / SEIQoL-DW / ライフヒストリー / ナラティブ / MASAC-PD31 / 看護学 / UUIS
Outline of Final Research Achievements

The purposes of this study are to investigate the QOL of early-onset Parkinson's disease patients continuously by using SEIQoL-DW, and to clarify the characteristics of the subjective QOL of the patients.
48 sets of patients’data from tests which were performed multiple times were examined. The drop in SEIQoL-DW scores in some cases, compared to those scores of the previous year, was caused by the following factors: ① self-depletion experience, ② family affairs, and ③ affiliated aggravation of family relationships. In the cases in which SEIQoL-DW scores rose, major factors were: ① recovery of what was lost, ② obtaining anything which was lost, and ③ modification of the framework of thought. As for the patient experiencing various depletion experiences with aggravation of their condition, there was no remedy for it, but that subjective QOL was not necessarily reduced was suggested if we obtained anything from the experience and changed the framework of thought.

Report

(6 results)
  • 2015 Annual Research Report   Final Research Report ( PDF )
  • 2014 Research-status Report
  • 2013 Research-status Report
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (21 results)

All 2015 2014 2013 2012 2011

All Journal Article (2 results) (of which Acknowledgement Compliant: 1 results) Presentation (14 results) (of which Invited: 2 results) Book (5 results)

  • [Journal Article] 難病患者の社会参加と生活設計~SEIQoL-DWから見えてきた若年性PD患者のQOL2014

    • Author(s)
      秋山 智
    • Journal Title

      日本難病看護学会誌

      Volume: 19 Pages: 104-107

    • Related Report
      2014 Research-status Report
  • [Journal Article] 第19回日本難病看護学会学術集会を終えて2014

    • Author(s)
      秋山 智
    • Journal Title

      広島国際大学看護学ジャーナル

      Volume: 12 Pages: 35-50

    • NAID

      120005614384

    • Related Report
      2014 Research-status Report
    • Acknowledgement Compliant
  • [Presentation] ドーパミン調節異常症候群に苦しんだ若年性パーキンソン病患者の事例分析2015

    • Author(s)
      秋山智、岡本裕子
    • Organizer
      第21回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-25
    • Related Report
      2015 Annual Research Report
  • [Presentation] SEIQoL-DWによる経時的変化からみた若年性PD患者のQOLの検討2015

    • Author(s)
      秋山智、岡本裕子
    • Organizer
      第21回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-24
    • Related Report
      2015 Annual Research Report
  • [Presentation] 女性若年性パーキンソン病患者の結婚と出産・育児2015

    • Author(s)
      秋山智、岡本裕子
    • Organizer
      第21回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-24
    • Related Report
      2015 Annual Research Report
  • [Presentation] 男性若年性パーキンソン病患者の就業の現状と支援2015

    • Author(s)
      秋山智、岡本裕子
    • Organizer
      第21回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-24
    • Related Report
      2015 Annual Research Report
  • [Presentation] 難病患者が本音で語る:第1回JPC開催と若年性パーキンソン病2015

    • Author(s)
      秋山智
    • Organizer
      第21回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-24
    • Related Report
      2015 Annual Research Report
  • [Presentation] 難病患者の社会参加と生活設計~SEIQoL-DWから見えてきた若年性PD患者のQOL(会長講演)2014

    • Author(s)
      秋山智
    • Organizer
      第19回日本難病看護学会学術集会
    • Place of Presentation
      広島国際大学(広島県呉市)
    • Year and Date
      2014-08-29 – 2014-08-30
    • Related Report
      2014 Research-status Report
    • Invited
  • [Presentation] 家族と離別した若年性パーキンソン病患者の事例分析~経時的にSEIQoL-DWを用いた2例の男性患者の比較2013

    • Author(s)
      秋山智、岡本裕子、上西孝明
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2013 Research-status Report
  • [Presentation] 職を失った若年性パーキンソン病患者の事例分析~経時的にSEIQoL-DWを用いた4例の男性患者の分析2013

    • Author(s)
      秋山智、岡本裕子、上西孝明
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2013 Research-status Report
  • [Presentation] 看護研究と実践の相互作用~SEIQoL-DWを用いた研究実践を通して2013

    • Author(s)
      秋山智
    • Organizer
      第16回北日本看護学会学術集会
    • Place of Presentation
      山形市
    • Related Report
      2013 Research-status Report
    • Invited
  • [Presentation] SEIQoL-DWを用いた若年性パーキンソン病患者のQOLに関する研究2012

    • Author(s)
      秋山 智、岡本裕子、上西孝明
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report
  • [Presentation] 若年性パーキンソン病患者に対するMASAC-PD31を用いた分析2012

    • Author(s)
      秋山 智、岡本裕子、上西孝明
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report
  • [Presentation] 若年性パーキンソン病患者の"社会との接点"と"SIEQoL-DW "との関連に関する研究2011

    • Author(s)
      秋山智、岡本裕子、上西孝明
    • Organizer
      第16回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2011 Research-status Report
  • [Presentation] 若年性パーキンソン病患者におけるSIEQoL-DWとMASAC-PD31との関連2011

    • Author(s)
      秋山智、岡本裕子、上西孝明
    • Organizer
      第16回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2011 Research-status Report
  • [Presentation] 第16回日本難病看護学会学術集会2011

    • Author(s)
      パーキンソン病若年発症患者の総括的支援
    • Organizer
      秋山智、結城勝巳
    • Place of Presentation
      東京
    • Related Report
      2011 Research-status Report
  • [Book] 言語障害のある患者の看護:緊急度・重症度からみた症状別看護過程[第2版]2014

    • Author(s)
      秋山 智
    • Total Pages
      1099
    • Publisher
      医学書院
    • Related Report
      2014 Research-status Report
  • [Book] 不随意運動のある患者の看護:緊急度・重症度からみた症状別看2014

    • Author(s)
      秋山 智
    • Total Pages
      1099
    • Publisher
      医学書院
    • Related Report
      2014 Research-status Report
  • [Book] 若年性パーキンソン病を生きる2011

    • Author(s)
      秋山智
    • Total Pages
      390
    • Publisher
      長崎出版
    • Related Report
      2011 Research-status Report
  • [Book] 言語障害のある患者の看護、緊急度・重症度からみた症状別看護過程と病態関連図2011

    • Author(s)
      秋山智、上西孝明
    • Total Pages
      8
    • Publisher
      医学書院
    • Related Report
      2011 Research-status Report
  • [Book] 不随意運動のある患者の看護、緊急度・重症度からみた症状別看護過程と病態関連図2011

    • Author(s)
      秋山智
    • Total Pages
      8
    • Publisher
      医学書院
    • Related Report
      2011 Research-status Report

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Published: 2011-08-05   Modified: 2019-07-29  

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